Sep 28, 2010 - 10:03 am
Hi there, everyone ...
First, let me apologize for all these questions. During this journey, I've found that if I know what to expect, I can handle things a little better. Even though you have *no* control over what happens ... it gives you the sense of having a bit of control. Anyhow ...
My husband was diagnosed with sqamous cell carcinoma of the nasopharynx in June. The first stage of his treatment was 35 radiation treatments done consecutively with cistplatin. He has a port but no peg ... and the last week of the treatment was *really* hard on him.
So now ... he starts the second stage of treatment on October 4th. Chemotherapy ... cistplatin with something else (I assume 5FU) ... one day at infusion and four days at home with the pump. So, I'm wondering if anyone could give me details of how this works.
So, Monday morning we go in, talk to the doctor, then go to infusion. Do they give him the pump Monday before we leave? Or do we go back in on Tuesday to get it? The last time he had cistplatin, they had him come into infusion the rest of the week just for fluids, potassium, and magnesium. Will he still have to go back into infusion for fluids since he'll have that pump with him? Then do you go in at the end of the day on Friday and they remove it? Is it hard to take care of? Can you take a shower with it?
I know a lot of this seems unimportant ... but I'm having to juggle work with the treatments ... and I'm trying desparately to manage my time. If anyone could tell me your experiences with this type of chemo, it would be SO very welcome ...