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Vulvar Melanoma

mh1229
Posts: 22
Joined: May 2010

I am hoping to connect with others who have been there done that. Preferably those with vulvar melanoma in particular and not vulvar cancer.

I was diagnosed in January, Stage 3 with a large primary. I have been doing my homework and talking with my oncologist and I know the prognosis is not wonderful... or even good. I have done the surgeries and am doing adjuvant therapy. I feel like a recurance is not a matter of if, but when. I would love to talk with someone!

Cbeth
Posts: 1
Joined: Jul 2011

I was recently diagnosed with vulvar melanoma. I had a radical vulvectomy and discection of the right groin lymph nodes. I've been told that my type of cancer is very agressive and at a high risk of reoccurence. i will be starting immunotherapy with Interferon in a few weeks. I'm scared of the side effects and even more scared of reoccurence.

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