Sep 18, 2010 - 2:12 pm
I have NPC stage 3, they have treated me so far with 33 radiation, which is done and 4 chemo, 3 of which were concurrent with radiation. I have done 1 since radiation and they want to do 2 more. Is this extreme or are there others who have had the same treatments? Also i have read that the other chemo after radiation has caused debate over it's help for survival. Any thoughts, because i have a chemo doctor that ordered a PET scan 2 weeks after my radiation/chemo was finished because i didn't want to do anymore chemo. My radiation doctor told me he should not have done that because the reading would not be accurate. I feel my body is going backwards now that i have started the other rounds of chemo, but i am really considering stopping until they can get an accurate reading. I don't see why i should let them put more crap in me if there is a chance it's already gone. The PET scan came back with a small spot on the nasal pharnax, but before treatment. I had it on the base of my tounge, in my Lymph system R neck, and nasal pharnax. So i know the radiation/chemo worked because it's gone everywhere else. Should i wait to see if the other goes away as well? My radiation doctor said it could simply be radiation showing on the PET scan. I don't know what to do.