Sep 16, 2010 - 11:39 am
I won't be posting for a few days because you are not supposed to do anything that cause friction between your toes and fingers for 3 to 5 days after a Doxil infusion to help prevent the hand/foot syndrome, with TYPING specifically listed. (ARGH! I can't imagine being cut off from you all and Facebook and my grantwriting clients this way!! Withdrawal will be awful! HA!) I wanted to post this now, since I leave in an hour for my 1st Doxil infusion. (For those who missed the last installment in my ongoing treatment drama: my insurance refused to cover the cost of any possible complications if I went into the Clinical Trial at Fox Chase & I couldn't take that risk, so I shifted to Plan B.)
My oncologist hasn't told me any of the stuff I learned myself online and from the wonderful women here and on the Ovarian Cancer Discussion Board about how to minimize and control the side affects of Doxil, so I want to get what I learned into the archives here, for anyone else who is offered Doxil as a treatment option:
1.) You shpould get a MUGA scan to make sure your heart is strong enough to take Doxil, 1 BEFORE your 1st treatment, and then at regular intervals if you take Doxil long-term to make sure you're still okay. Search for my post on 'MUGA' scans if you want to know what that test is like.
2.) Check out: http://www.doxil.com/managing_side_effect.html
3.) I'm also taking along a little pot of Eucerin (original formula only) cream and will be stripping off my compression socks just before my infusion (and NOT wearing them now for the next week!), and creaming up my hands and feet real good before I put on the light little footies I brought along for the treatment. Once I get home, the women on the OVC board recommend that I wear just fur-lined crocs with no socks all the time on my feet, and to ice my hands and feet multiple times over the next 5 days and keep them lathered up with the Eucerin cream.
4.) I am wearing no bra or undies to chemo (!!!) and loose baggy pants, so that nothing rubs or makes me too warm. I may need to increase my wardrobe of baggy tops that allow access to my port, do not bind anywhere, and look okay with no bra. (GOD KNOWS WHAT THAT I CAN EVEBN FIND LIKE THAT!!) Kafcans and moo-moos might work but I've never owned anything remotely like that and may need to shop. Online it looks like a lot of them come with matching scarves for an ethnic look. Next chemo will be in 28 days, so I have lots of time to come up with a new chemo-wardrobe.
5.) Mouth sores is the other potential side affect with Doxil. i got a couple of new soft toothbrushes and baking soda/peroxide toothpaste and some no-alcohol dental mouth wash like they make for kids. One of the OVC ladies recommended an immunity building oral supplement drink made by Nestle that I may get, called ORAL IMPACT, recommended by her oncologist that she credits with saving her from any mouth sores (It's quite expensive so I didn't get it yet, but probably will once I run it by my oncologist.)
Time for me to go ! Wish me luck!