Sep 06, 2010 - 10:57 am
My husband was diagnosed with astrocytoma Grade 3 this past February 2010.
The tumor is located right in the middle of his brain--the corpus collusum. Because of the location, the surgeon was not able to remove the tumor. He had the regular treatmet of Temador pills and radiation for 6 weeks. After the checkup with an MRI, they found that the tumor was the same size but it had a small "hot" spot. They increased the dose of Temador by quite a bit, and he had the pills for 5 days and was off for 23.
He was extremely sick on this round of chemo. He did this for two months and had another MRI. This one showed that the cancer had spread. They stopped all treatment because it was not working, and suggested that we try to get into a clinical trial. We are meeting with a clinical trial doctor this Wednesday. Our treatment is at MD Anderson.
Has anyone else been through this and could give us some pointers? I have a list of questions I found online to ask the clinical trial doctor, but it would be great to chat with someone who has gone through this. Please contact us and let us know what to expect.
It has been a roller coaster ride of doctors, treatments, and a new normal for our family--a lot of changes, emotions, and re-evaluating. We have a super support system from church and family and God has been blessing us abundantly.