Sep 02, 2010 - 11:38 am
I've posted recently about me having papillary cancer and had a total thyroidectomy w/lymph node remove (6 out of 8 were cancer) 2 years ago.
Had a sonogram done and it showed a small mass (7mm) that the sono dr very well thinks it is thyroid tissue. (I've never had any after my ablation 2 years ago.)
Had thyrogen shots and body scan recently. Body scan showed up negative, but my Tg bloodwork (after taking the thyrogen shots) was a 5.5
My endo dr said they like to see it below a 2 and with someone of my age, 42, and that I had it spread to my lymph nodes two years ago, they definately don't want it to be a 5.5
He said that there is a huge, huge chance that since my body scan showed up negative, which he said meant that the tissue in my neck didn't "take up" the radioactive iodine for the scan, then I could very possibly go thru the time of no thyroid meds...do radiation ablation and that the tissue still wouldn't "take up" that high dose. Then I would be back to square one again.
He said if it were him, he would do a biopsy of that tissue in my neck, to be 100% sure. Then if that came back positive (meaning that is what was causing my Tg to be elevated after thyrogen shots) then I would have to have it surgically removed.
Does that sound correct, that if the tissue doesn't "take up" the low radioactive dose for the scan then there would be a good chance it wouldn't "take up" the ablation dose?
And about the size...7mm. I'm sure the endo dr would have to consult w/the surgeon who performed my thyroidectomy, but is that even big enough that the dr would even be able to remove completely or would there be a possibility that the surgeon would think it is too small to remove?
I was totally expecting the route of going off meds then another ablation...not this suggestion.