Aug 16, 2010 - 11:19 am
I was wondering if anyone has any experience with the long term effects of radiation after the diagnosis of a grade 3 anaplastic astrocytoma? My husband was diagnosed in March of 1989 and went thru 2 craniotomies, chemo(BCNU)(didn't work), whole head radiation, and radiation implants. He was originally given 6 months but who listens to those predictions. He did have a bout with radiation necrosis which resolved itself. He recovered pretty well at first but now, 21 years later, he has been showing much more fatigue and balance issues. His tumor was in the right parietal lobe. His original symptoms were left leg numbness and the left leg continues to be his weak area. Amazingly he is still working at his job full time but the stress of it is also affecting him. He has been on Dilantin the whole time but we are now going to begin switching him to a new seizure medication because we are told that it can lose it's effectiveness over time. He is also set up for an MRI because he hasn't had one in a few years. His neurosurgeon who had been following him from the start released him as cured. I've seen some references here to new tumors showing up after 20+ years that are caused by the radiation previously given.