Aug 05, 2010 - 5:07 pm
My mom was diagnosed with uterine cancer about 2 years ago. She got a round of chemo. Then, about 5 months after that, the cancer had apparently metastasized into her lower abdomen. She got very sick so she got another set of 6 chemo sessions with taxol and carbo. During her chemo she was doing pretty well. She even gained weight, was active, walking 2 miles a day, eating well. Then her chemo regimen stopped about 2 months ago, and about 3 weeks ago she began feeling weak again, abdominal pain, now she has back pain and a stiff neck too (and no one knows why). The CT revealed that disease is still present in her abdomen and the Dr. said apparently the chemo didnt work on her. But my questions is
1) if it didnt work, how come she did so well during her second round of chemo?
2) why are her CA 125 down to 19 from 4000 if the chemo didnt work
3) where is the back pain coming from. The CT scan didnt reveal any masses on her spinal cord or back. The metastasis is in the abdomen only right now.
4) they say they cant do surgery because it is too many of them in her abdomen and because of her heart and that radiation isnt a possibility either. I wonder, why. Why no radiation, no surgery. There is a 7 by 3 cm mass in her lower abdomen. That could be easily removed. Cant it?
I am worried and dont know what else to do. She is very down, sleeps all day long, feels weak when she is up (even though her CA 125 is down) and her doctor doesnt want to do anything.
But I cant give up and leave it at that. What options do I have? can anyone tell me about the CA 125 levels ? The back pain? She is just lying at home, screaming at night about the back pain and we cant figure it out. She has no kidney issues or infection, no masses on psinal chord. She DID have a disk/back injury 15 years ago and been struggling with it and I assume the chemo damaged nerves and made it worse.
I am so lost. And i feel weary asking the doctor out of fear he will tell me something horrible that I cant bear to hear. Sometimes these doctors are tactless cause its not them who has cancer.