CSN Login
Members Online: 20

Anyone a long term survior - what stage were you.

Posts: 71
Joined: Aug 2010

anoyone a long term survior and what stage were you?

I am a survior baby (just 6 month since surgery).


Posts: 39
Joined: Aug 2010

I just joined and can't figure out how to post questions or comments - all I can do is hit
reply to someone else's post??? I'm a 66 year old grandma of 10 who had chemo/radiation and then the Ivor Lewis surgery. That was mid=May & I've been hospitalized for the last two months from many complications. I sailed through chemo/radiation without one side effect but this surgery has nearly killed me. I've lost 20 pounds and started as a size 2. I went to Mayo Clinic in MN (only a 2-hr drive for me) and the surgery was done by the head of thoracic surgery - he does 40 of these every year and the hospital unit handles 200 a year. The main problem was that they discharged me after only seven days. I was home one day and then hospitalized locally for 3 weeks for double pneumonia. One thing after another- I've only been home for 2 weeks since.

Please assist me in knowing how to navigate, leave comments, etc. I don't even know for sure how to get back to this site!

Nancy Edwards age 66
ECIII (T2 N1 M0)
Ivor Lewis @ Mayo Clinic May 17, 2010

Posts: 71
Joined: Aug 2010

I am new too, so can't help much

LOOK at the top of the screen on click on CNShelp.

K_ann1015's picture
Posts: 555
Joined: Aug 2009

I love the term survivor baby! thank you for the optimism! We all need it here since we have lost some dear folks to this disease. I also think that the "fear" of return makes many of us (family as well) reluctant to even "call" themselves a survivor!!! I want to share your post with my dad... It really is the attitude, baby steps, faith (face it--God's will & love), great Dr's, caregivers & support that help us all through this EC maze!

But I notice---compared to other cancers---EC folks are justifiably more cautious calling themselves "survivors" before year 5. That is a shame == so thanks for starting the ball rolling to give others the option to look at themselves with maybe a little more HOPE. I have found through difficult circumstances that it is difficult to see the glass half full (like when my dad was so sick with follow up chemo---loosing weight, etc---but HEY he was (& is) alive!!!! He unfortunately lost his little brother to this same disease 5/10, so now we are more aware of how well he is doing---considering the "alternatives". It is in the perspectives...

He is also back at being a volunteer fireman (light duty though)! His surgery was 12/09---so... WOW he is a 9 month SURVIVOR BABY!!!! I can't call him a survivor yet---but I love your new term!!!!

thanks Callie!

Posts: 71
Joined: Aug 2010


Thanks for the reply, I like your optimism too.
Your comments help me to see things clearer. Now I am proud to say I am a SURVIVOR BABY.

Tell you dad we look forward to His one year Surviror baby birthday party.

Look on my sight, and see the poem i wrote, I think you would enjoy it.

God Bless

ps I am at work, so I can't write much.

With Love
Survivor baby 6mos.

sandy1943's picture
Posts: 883
Joined: Jun 2010

I had surgery in May 2008--CT scan in Nov 2008 which showed I was C free. I am a SUVIVOR of stage 111 EC with 2 lymph nodes in stomach. I don't know all the codes so I just write it out. I will be coming up on what I celebrate as my 2nd birthday--Yaaaa! So glad you are doing well ! Keep us posted.

Posts: 71
Joined: Aug 2010

So glad you are doing well. Can't get the smile off my face.

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2015 © Cancer Survivors Network