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possible 2nd reoccurance after 2 years

MLG
Posts: 52
Joined: Mar 2010

I wrote some posts a few months ago writing about my Tg being nondetectable for almost 2 years post TT and lymph node removal.
Tg came back in March at 14, with body scan negative.
Had bloodwork of Tg done a few months after that and it came back at 1.1. (Mistake in the lab? No one knows.)

Went to new dr who ordered a sonogram of my neck w/new bloodwork. Don't know bloodwork yet, but sonogram dr at hospital came it and looked at the pictures and said there was a spot that he feels pretty confident that it is thyroid tissue.
So, even if it is cancer or not cancer, I know it has to go.

I have a drs appt coming up for my endocrine to talk to me about what to do next.

Has anyone had a reoccurance of tissue and what have they done? I had in April a thyrogen injection before body scan which showed up negative. The sono dr said they may want to 100% prove that it is thyroid tissue w/another body scan.
Since I just had one w/thyrogen injection I would think they wouldn't do it that way again. I would think they would want to be more definitive and have me go hypo for 6 weeks then the body scan.
What route has other drs taken? After sono, have they done a biopsy to prove the tissue instead of body scan?
I also know that you can't leave even good thyroid tissue in the neck and if it is definately that then would have to be removed with radiation.
Any other insights?
Michelle

lynn2318
Posts: 41
Joined: Jan 2010

Hi Michelle, I am 2 years post surgery with a thyroglobulin level at 2.6. Do you mind telling me what type of thyroid cancer you had? Mine was papillary. Thanks.

MLG
Posts: 52
Joined: Mar 2010

I had papillary.
I had a total thyroidectomy with 8 lymph nodes removed in my neck and 6 were cancerous.

My Tg was always nondetectable after surger/ablation. 0.2

Now, with the different levels, I'm not sure what it actually is.
Will find out when I have my appt. w/my dr to go over that and this sonogram I had.

lynn2318
Posts: 41
Joined: Jan 2010

I have papillary. I had total thyroid removed, 2 lymph nodes removed which were both positive. My Tg has never been 0. Right now it is 2.6 which is low but my endo said it should not be measurable at all. I go in 2 weeks for a check up and always get nervous before I go. Thanks for the info and you are in my prayers. Please keep us posted on your treatment.

MLG
Posts: 52
Joined: Mar 2010

Hope things go well with your appt.
Keep us posted.

Michelle

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