Jun 19, 2010 - 8:47 pm
I am looking to be connected to survivors of Stage IV Wilms tumor. My 4 year old twin son was diagnosed with stage IV Wilms last week Monday & had his kidney removed on Tuesday. He has mets to both lungs, the flank, and a tumor bed in an artery to his heart. It seems that most survivors survived because of early detection. My son showed absolutely no signs, we ate super healthy, and obliged with routine medical care. I feel hopeless. I am sad and scared. I know all the percentages and stats, however, we have already fallen into this slim percentage of being struck with Wilms. Additionally, stage IV Wilms. If you're out there, I need to hear from you please.