Jun 13, 2010 - 6:19 pm
I was diagnosed in November 2006 with SLL. I was stage IV, lymph nodes in neck, liver, spleen involvement. I did R-Chop with Rituxan and then maintenance Rituxan through last June. It was only in July last year that my enlarged spleen finally went back down to within normal range. I have had abnormal liver tests, as reently as last September, though now they are fine.
I get my pet/cat scan results from a week ago at the end of the month. I have nodes they are watching in my lungs, supposedly its normal to have these there? I am always tired, have stomach issues frequently.and definitely have chemo brain as my family reminds me.
I noticed most here are diagnosed with follicular NHL. Anyone out there with SLL or even CLL as they are paired together usually? Starting out at Stage IV and not getting to CR until 3 years later, I just wonder what I can expect as prognosis. I read that most likely 7 years is median; 5 -10 is the range because of where I started at. So hearing from anyone with SLL and what they have gone through would be great, although I know that no two patients are alike!