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Primary Peritoneal Carcinoma

niuangel
Posts: 1
Joined: Jun 2010

I have been having pelvic and abdominal pain for about two years. Last year, I had a uterine biopsy that showed reactive endometrial cells which prompted a d & c, laprascopy, and hysterocopy. This procedure showed cysts, chocolate cysts, polyps, small tumor, etc. Doctor then told me that it looks like I have Primary Peritoneal Carcinoma. She sent me to a teaching hospital, which said as long as no atypia is present, they don't believe treatment is necessary.
Since that time, I have been diagnosed with gastritis, three hernias, esophageal inflammation, inflammation in the lungs, colon, appendix. Now, I also have adenomyosis and fluid in the abdomen. At my last ultrasound, they found a possible fibroid tumor on my right ovary and left ovary is attached to the wall.
My latest discovery is that a family member died at the age of 48 with a rare stomach cancer that was very similar to what I am going through. No one could/would diagnos until it was too late to treat and he died within the year.
I am 29 and am overwhelmed and not sure what to do or what the next steps I should take. Has anyone has a similar experience? Any thoughts?

beckyracn's picture
beckyracn
Posts: 323
Joined: May 2009

niuangel,
You sure have been through a lot over the past two years and I can totally understand your concerns. I have not had your experiences and would suggest getting a second opinion if you are not comfortable with your doctors current suggested regimen. Good luck!

jinni28
Posts: 3
Joined: Aug 2010

Hi
My name is Jinni, in july 2010 I was diagosed with this horrible cancer. I'm 58, and always did "everything" right. so much for that. Going to Stanford for treatment, which is a 6 hour drive each way from where I live. Had the port put in 4 weeks ago, and have had 3 treatments so far. One week it's IV and IP, then 8 days later just the IP. then 2 weeks off, then the cycle starts again. My problem is I can't gain any weight, and I'm now down to 100 pounds. The digestive issues are the w