Bone biopsy results

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BonnieR
BonnieR Member Posts: 1,526 Member
edited March 2014 in Ovarian Cancer #1
The biopsy came back that I have myelodyspla​sia, so we were told no more chemo. Lots of questions asked, but not all the ones I should have asked. Guess we'll have a lot of questions for the appointment with my gyn/onc next week.

Randy asked about a bonemarrow transplant and we were told, because I have ovarian cancer, I would not be considered.​ Their thinking is that even though the myelodyspla​sia could be cured I would still have cancer, not the exact quote but very cl​ose. We both knew this may be the outcome, but knowing did not make it any easier, we always remain so hopeful.

We knew this time would eventually come, but t​hought after this last surgery I had been blessed with even more time. Even my gyn/onc was very positive about how much cancer had been removed saying "we can manage what was left". We talked about how well the avastin had actually ki​lled off tumors the first time I was on it,(this was our next plan of action). Yes life looked good; I even kidded him we could do another seven years together.

Monday I go for labwork, and see my gyn/onc on Wednesday ... Randy took the day off as we know this well be hard day for everyone. I feel pretty confident my doc will allow me to continue transfusions _ the hemo doc kinda of said what's the point..... I guess to me as long as feel pretty good I say why not? It will give me the energy I need to enjoy my life left here.

If I sound pretty calm, today is a good day but believe me I have cried buckets of tears.

I shared the shortest verse ever on caringbridg.. Jesus Wept... I believe His heart aches with compassion for us in our time of trials. For He loved us so much He gave His life for us.

Life ~ L♥ve ~ Hope ~ Courage ~ Comfort..... all these are ours in Jesus Christ. May the loving-kind​ness and compassion of Jesus Christ be yours today and always. I know He is here with us and will never leave us.

Prayers ♥ Hugs Bonnie

Comments

  • saundra
    saundra Member Posts: 1,370 Member
    #2
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    Amazing Bonnie
    You are a great mentor in faith to me. Yep, I would go for the transfusions also, just to feel better. Praise to God that today is a good day for you.
    Have you healed from the surgery incision wise? I am limping along (they cut some muscle and nerves in my left groin that left a pain and limp). Limits the distance that I can walk before having to rest. Otherwise everything is OK. I see improvement daily which is a blessing.
    I will wait for the oncologist/gyn report next week on what he has up his sleeve. They always pull something out of the hat, don't they? Full of surprises these guys are. Mine is having second thoughts on the radiation bit now. Any hoo, I can't have anything until this hole in my stomach closes up completely. I haven't had a blood test, so don't know how that area is doing after surgery. I did have one transfusion during it.
    Prayers and Hugs coming your way. How fortunate we are to have the promises of Christ. Saundra
  • mopar
    mopar Member Posts: 1,972 Member
    #3
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    HUGS
    Thank you for responding to my email, Bonnie. I certainly hadn't expected that you would take the time to do that, given the circumstances. But, that's just you - ever faithful, forever filled with hope and love.

    I guess I would ask why, just because you have cancer, would they not consider the bone marrow transplant, especially considering they've already said that the chemo could probably take care of the rest of the cancer. On the other hand, I suppose there is reason for it, good reason or just their 'way of thinking' in matters like this.

    I'm not stopping with the Hope of Glory, Christ in you, that He will find a way to restore your body and give you the strength to continue. May those tears be dried by His Mighty Hand.

    Much love and hugs, too. . .
    Monika
  • Tina Brown
    Tina Brown Member Posts: 1,036 Member
    #4
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    Dear sweet Bonnie
    Oh Bonnie you are so brave - to have the courage to post on here. While ever we breathe we have hope and I am convinced that your doctors will do everything they can to give you more time. You are blessed to have Randy right by your side. No one knows what is around the corner and you never know your doctors may come up with something to give you more time.

    Your faith with help you I know. Much love Tina xx
  • azgrandma
    azgrandma Member Posts: 609 Member
    #5
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    Tina Brown said:

    Dear sweet Bonnie
    Oh Bonnie you are so brave - to have the courage to post on here. While ever we breathe we have hope and I am convinced that your doctors will do everything they can to give you more time. You are blessed to have Randy right by your side. No one knows what is around the corner and you never know your doctors may come up with something to give you more time.

    Your faith with help you I know. Much love Tina xx

    My friend
    Bonnie God blessed you with such a compassionate spirit, I admire you so. None of have any guarantee of tomorrow, I am just living each day and thanking God for it. I do hope you can maybe get the bone morrow and get more time wtih us. I love yuo Bonnie and your an inspration to me
    Love Lynda
  • sanam
    sanam Member Posts: 106
    #6
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    Dear Bonnie
    I admire you and
    Dear Bonnie
    I admire you and your paradigm.
    Take care.love you and Hug
  • Unknown
    Unknown
    #7
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    This comment has been removed by the Moderator
  • Lisa13Q
    Lisa13Q Member Posts: 677
    #8
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    Dearest Bonnie
    I am deeply saddened by this news. You were one of the first people to respond to me when I was terrified and felt so alone. You mean so much to me. I just don't understand why a bone marrow transplant won't work. Is a second opinion in order? I don't know, I just hate this disease and this week. God loves you though and the end of your story has not been written yet.
  • kayandok
    kayandok Member Posts: 1,202 Member
    #9
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    Dear Bonnie,
    Thank you for sharing your news here. I read your update on CB and am still in shock, I can't imagine all the feelings you must be processing. I have been praying for you that you will have such a strong sense of God' loving arms around you and a deep peace that passes all understanding. There are many emotions and thoughts washing over me now, and coming out in a flood of tears. Know that I love you and I am praying for you, but I hate this disease and pray it will be vanished some day!
    Kathleen
  • lindaprocopio
    lindaprocopio Member Posts: 1,980
    #10
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    kayandok said:

    Dear Bonnie,
    Thank you for sharing your news here. I read your update on CB and am still in shock, I can't imagine all the feelings you must be processing. I have been praying for you that you will have such a strong sense of God' loving arms around you and a deep peace that passes all understanding. There are many emotions and thoughts washing over me now, and coming out in a flood of tears. Know that I love you and I am praying for you, but I hate this disease and pray it will be vanished some day!
    Kathleen

    & even in your sadness, you share with us...
    I also have been reeling all day after reading your CaringBridge post. You could have just hid this from us and nursed your disappointment in private, but you are so brave and generous to share even this new hurt with us. I can't tell you how important that is to me personally. Your grace shines, sweet Bonnie! My own type of cancer, although similar in treatment to OVC, has a faster poor prognosis, with life expectancies after 1st recurrence typically 12 to 15 months. I am coming out of my 2nd remission and going back into treatment again this month, and can so easily count on my fingers that 7 months have passed of those statistical 12-to-15 months, and it's human nature to re-do the math at the start of each new month. I'm not a statistic and I like to think I have lots more time, but still I think we all imagine ourselves where you are today, the decision out of our hands. You make it less scary by being so matter-of-fact, finding your peace with the process. And, you know what, I think you'll fool them, Bonnie, and hold back the beast even without their damn chemo! Stranger things have happened! Are you going to shop around for a different opinion?
  • hockeygolf7
    hockeygolf7 Member Posts: 52
    #11
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    Bonnie, my heart goes out to
    Bonnie, my heart goes out to you. You are such a positive person and always there for all of us on this crazy journey. You are always in my prayers. I don't write much on here but I do love to read about everyone. You have touched my heart and I thank god for letting me know you. Much love, Elaine
  • nancy591
    nancy591 Member Posts: 1,027 Member
    #12
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    speechless.....sorry to hear this news.
  • LPack
    LPack Member Posts: 645
    #13
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    Bonnie
    Bonnie,

    I have not been on for awhile and I see this was one week ago today. My response is late, but none the less I am sorry about your results. I am so glad you know Jesus!!

    Still coming to Minnesota and hope to see you.

    Living for Eternity,
    Libby ☺
  • Unknown
    Unknown
    #14
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  • BonnieR
    BonnieR Member Posts: 1,526 Member
    #15
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    LPack said:

    Bonnie
    Bonnie,

    I have not been on for awhile and I see this was one week ago today. My response is late, but none the less I am sorry about your results. I am so glad you know Jesus!!

    Still coming to Minnesota and hope to see you.

    Living for Eternity,
    Libby ☺

    give me details again
    I remember you were coming, is it in August? that is what my brain is saying.. I pray I am well enough to drive when you are here. I do plan on somehow connecting. Hugs Bonnie
  • BonnieR
    BonnieR Member Posts: 1,526 Member
    #16
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    unknown said:

    This comment has been removed by the Moderator

    thank you
    Dear Teal Warriors

    Thank you all for your kind words, love and support. Hugs ♥ Prayers Bonnie
  • LPack
    LPack Member Posts: 645
    #17
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    BonnieR said:

    give me details again
    I remember you were coming, is it in August? that is what my brain is saying.. I pray I am well enough to drive when you are here. I do plan on somehow connecting. Hugs Bonnie

    July this year
    Last year was August but chemo kept us in Ohio that time. This year we are shooting for sometime in the middle of July.

    I will let you know for sure. And see how you are doing first.

    Love,
    Libby

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