May 31, 2010 - 12:55 am
Hi, I am posting here as this seems like my best place to go for advice. I had my first go round with thyroid cancer (pappillary) in 2001, at that time 2.2cm of the thyroid was cancerous and also all 7 lymphnodes they took out of my neck were too. Then in 2008 I went thru alot of crap to get diagnosed. I live in Wyo where they are not familiar with this type of cancer and there is only 1 endo in this whole state sigh. Anyways after the Dr. giving me a cat scan with dye instead of a nuc med test it took me till April of 2009 to get treated. The 1st time I had RA131 it was 100microcuries (unsure of spelling lol) and the second time it was 150 microcuries. In May of 2008 and Nov of 2008 there was an enlarged lymphnode under my collar bone, well I just had another cat scan last week and now that lymphnode has grown to 2.4cm and they saw what they called "another mass that was 13mm in size and rounded and susupicious". I went on Thur to see an ENT and he seems to be at a loss how to possibly even treat me. He is unsure if he can give me RA131 again so soon and he said I am almost at the dosage that tops the safe area after the last go round. I have alot of pain in the left side of my chest where those are, my levels of blood calcium, Vit D, and thyroid are all over the map, somehow I am managing to stay out of the seriously dangerous, send you to the hospital levels but I am feeling it. And now to top it all off I am scared and stuck with waiting, not even knowing if they can treat me or with what, sigh. Though I will say that the ENT is really concerned about the size of the enlarged lymphnode he just didn't seem to know what to do and wanted to consult some other docs. I hate this waiting and not knowing, and I am really scared this time. I mean I didn't even really get a year in remission this time and it seems like that lymphnode doesn't want to respond to treatment as it didn't seem to respond this last time I was radioactive. I guess what I am asking in the rambling message is does anyone have any advice for me? Should I be really scared this time? Usually I am pretty blase about it but this time I can't seem to get that mind set. And not having access to good Dr.s here worries me too, the first time I had cancer I was living in MI. I guess I will apologize for rambling but also say thank you for reading it and for any advice or help or support that you give.