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porocarcinoma survivor story... please

Bianca S.
Posts: 3
Joined: May 2010

I was first diagnosed with Squamous cell, but when the labs came back it was worse, porocarcinoma which is apparently much nastier and easily spreads, I think. Did a CT which came back normal. (yeah!!) I have a great doctor with a postitive attitude, but they all talk about the best case scenario. I have a small wonderful support network already. On the other hand, I can only find the worse case scenarios in my on-line research. Surfing the net scared the hell out me. I stopped after about an hour, but would like to hear from someone dealing with this longer than I.

Bianca S.
Posts: 3
Joined: May 2010

So far, I am my own answer. Had MOHS surgury and a clean bill of health. Scar is still healing and no signs of spreading.

Posts: 82
Joined: Apr 2009

thats fantastic news!
sorry you have had no responses to date...
i have never heard of porocarcinoma before.

Posts: 1
Joined: May 2013

My boyfriend was just diagnosed with porocarcinoma a few days ago.  We still don't know yet if it had spread anywhere but hoping for the best.   Have you had any recurrence since 2010?  

Posts: 1
Joined: Sep 2013

Early dectection is key.  I had surgery on March 18th.  I thought I was going in for a routine out patient removal of a cyst.  10 days later I find out that it was Porocarcinoma.  6 months later and many additional test everything is still looking up.  Tell him to keep positive and monitor everything closely and he will live a long and wonderful life.

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