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Newly Diagnosed with Breast Cancer at 32

tjohnson2310's picture
tjohnson2310
Posts: 168
Joined: May 2010

Please share your experiences with me on surgery, treatment,emotions, and self-worth. Thank you.

Katz77
Posts: 598
Joined: Sep 2009

hello. I'm sorry that you have cancer, but it's a great place to vent, ask questions and even tell jokes. lol
What is ur diagnoses?
I had stage 3 HER, ERand PR positive and 18/20 lymph nodes. Diagnosise last June 20thish. Surgery ( mastectomy) on the right side. Let us now how u are doing. What have you decided? Emotions are all over the place. lol Best to you.

tjohnson2310's picture
tjohnson2310
Posts: 168
Joined: May 2010

My diagnoses is invasive ductal carcinoma and ductal carcinoma in situ of the right breast. It is believed to be stage 1.I was diagnosed on May 17,2010. So i am just beginning. When I first got the diagnosis I was in disbelief, its starting to settle in now. But still hard to wrap my head around.

lanie940's picture
lanie940
Posts: 492
Joined: Jul 2009

I had invasive ductal carcinoma in the right breast in July of 2009. I had a lumpectomy and Radiation. I had the Oncotype dx test and oppted not to have Chemo. The surgery went well, no lymph node involvement, it was caught early I'm taking Arimidex, no problems except for some ankle swelling occassionally.

tjohnson2310's picture
tjohnson2310
Posts: 168
Joined: May 2010

I read your about me page LOL.In 2008 I noticed a bloody discharge, so immediately went to my PCP. I was nervous because my mother was diagnosed with breast cancer at 41. My PCP then sent me to a surgeon specializing in breast care. I had ultrasounds, mammograms and galactagrams(ouch) all showing benign cyst. I was told fibrocystic breast and to avoid caffeine. But still I visited with the surgeon every 3 months then every 6 months for clinical breast exams. In the most recent visit he said he felt something different. Now its cancer. I think back now and say I should have known better than just "avoiding caffeine". Maybe it was there all along..But no use in crying over spilled caffeine.I really missed Dr.Pepper.LOL

Katz77
Posts: 598
Joined: Sep 2009

Sorry taking long to reply back. I still drink Dr.Pepper. They have the caffeine free. It's not bad, but goes flat quickly. lol Still drink the "real thing" once a day. Avoid headaches. If you think about it, caffiene wasn't the issue. Dumb Tx Dr.! After he told me, "just a fibroid", I went on my merry way. My dx was almost a yr later when I noticed it was growing. In 2 months went from a 1.5cm to a 5.3 cm. 18/20 nodes positive and HER2,ER and PR positive. Dumb Tx Dr. lol. I'm now in remission and living large. You,to will be living large bf you know it. Keep it real and positive. Let me know how it's going sista in pink. ( not my fav color) Sad uh? Gayla

Balentine's picture
Balentine
Posts: 393
Joined: Feb 2010

Hello T Johnson and welcome to your new support system! Please post back with details....which type of breast cancer and stage do you have? What are the doctors saying as far as their treatment plan and options? I was diagnosed with Invasive Ductal Carcinoma in December. They said it was stage 1/2. Lump was 2.2cm. Had a mastectomy in January. They removed 3 lymph nodes and found no cancer in the lymph nodes. I just finished 4 rounds of chemo on 5/17. Had to have cytoxan and taxotere once every 3 weeks. I did not get sick, just very fatigued and lost my hair. I am just now recovering from the last chemo and glad it is behind me. You can get through this and you will...and we all will be here rooting you on. Remember that God is a strength to you and to lean on and trust Him above all else. I will check back tomorrow to hear from you again. Be blessed and hang in there.
Lorrie Balentine

tjohnson2310's picture
tjohnson2310
Posts: 168
Joined: May 2010

Thanks for the words of encouragement.

MichPro
Posts: 19
Joined: May 2010

I had a lumpectomy 4/5/10, IDC, Stage 2 Grade 3, Triple negative. Lymph node negative. Am receiving a port tomorrow and then chemo and radiation. My question is - could the cancer somehow morph into a higher stage? They got clean margins. The triple negative part scares me.

weazer's picture
weazer
Posts: 440
Joined: Mar 2010

Triple negative is scarey, but the more you find out about it the more you will understand what your up against.
I to am triple negative, and I'm just looking forward too getting past 5 years.
As far as it morphing into a higher stage, the only thing I can say is that your odds look good with clean margins and with doing Chemo and rads takes your chances to a better level that you might not get a reacurance.
God Bless You and take it easy I will keep you in my prayers.
Your Friend Weazer in Colo

TraciInLA's picture
TraciInLA
Posts: 1839
Joined: Jul 2009

I think what any one of us here knows about surgery, treatment, emotions, and self-worth could fill a book.

I read your page, and see that you were diagnosed just 5 days ago. All of us here know and understand how overwhelmed and scared you probably are right now.

Give us a little more information about your diagnosis and what you know so far, and we'll be here to help you through this.

Traci

Kat11's picture
Kat11
Posts: 1931
Joined: May 2009

Sorry for the reason you here, but it is really a good place to come. Your at the beginning of your journey and there is going to be soooo much information that your going to have to take in. It's very scary and overwhelming. I was Dx a year ago April and I have come through surgery,( lumpectomy ) chemo, Rads and continue doing herceptin and tomaxifen. My advice to you is to make notes of all your questions you want to ask your doctors. Have someone with you at your appointment,because you won't remember a lot of what they tell you. I think my brain went on shut down, I had my husband and a best friend with me.What the husband did not get the girlfriend did. Day at a time. As hard as it is that is what I had to do. Ask questions, get answers. I know your scared, but it is all doable, and we will be here to help you through. Hugs

tjohnson2310's picture
tjohnson2310
Posts: 168
Joined: May 2010

As it stands now my doctor tells me it is less than 2 cm or stage 1. I will have a PET scan of the body this Friday. Since my diagnosis I contacted MD Anderson Cancer Center. I am awaiting their call on Monday or Tuesday.

zivagirl's picture
zivagirl
Posts: 19
Joined: Jun 2010

Welcome - although very sorry for the reason you are here with us. Can you please post the steps you took to contact MD and the numbers you have for contacting them? Thx!

tjohnson2310's picture
tjohnson2310
Posts: 168
Joined: May 2010

Thanks for the welcome. I am grateful I came here.

Boppy_of_5's picture
Boppy_of_5
Posts: 1139
Joined: Apr 2010

You have come to the right place, I have not been on here very long but it has been a great help. I was diagnosed Jan. 2010 invasive ductual carcinoma stage 1 grade 1. Lumpectomy on Mar.22-10 clear margins no lymph nodes involved.
I had my 2nd, of 4 chemo treatments today, cytoxan and taxotere. I have done really well, tired but nothing terrible. I will follow up with rads.
It is very scary and upsetting when you find out. Trust in God he will bring you through this, please keep us posted. God Bless
(((Hugs))) Janice

greyhoundluvr's picture
greyhoundluvr
Posts: 402
Joined: Apr 2010

Welcome to the board - I have found it a blessing and hope you do, too! There are so many variations of this disease so if you are comfortable sharing information as you go along and are facing decisions, we can probably give you more feedback. In the beginning, I recommend seeing an oncologist even before or at the same time as your surgeon. I found that is where I got a lot of understanding of the disease, possible treatment options, the process, and it helped me make decisions along the way. I was stage I, grade I going into surgery but they found 2 positive nodes so I came out stage 2, grade 2. Because of a positive family history of bilateral breast cancer, I opted for a bilateral mastectomy, just finished my 5th out of 6 chemo rounds with cytoxan/taxotere (which hasn't been bad) and then have 33 rounds of radiation.

Ask all the questions you need to ask, I encourage taking family/friend with you to doc appointments as we are often a bit numb at all the info coming in, take notes, check out your doctors on-line, and if you are not comfortable with them, get a second opinion. Trust in your providers will make this journey a lot easier. And always, you can come here to ask questions, vent, or just get moral support. Good luck!

Chris

Mama G
Posts: 764
Joined: Nov 2009

Please let us know a little more about your cancer so we can help. I can say the first thing in this battle, which is the surgery was no where near as bad as I thought it would be. I had basically very little "pain". More like what I would call discomfort.
God bless,
Lorraine

aisling8's picture
aisling8
Posts: 1260
Joined: Feb 2010

Sorry you're here, but welcome.

Sending you positive thoughts and energy,

Victoria

tjohnson2310's picture
tjohnson2310
Posts: 168
Joined: May 2010

Pain is definitely a concern.....I have stage 1 ductal carcinoma of the right breast.

KayNYC's picture
KayNYC
Posts: 495
Joined: Mar 2010

Dear Tjohnson,
I had my lumpectomy of left breast on March 17, 2010 with removal of six nodes, no nodes found to be cancerous- Margins clear- mass was very small, 3mm.Changes on my yearly mammogram resulted in follow-up with CT scan and biopsy that revealed Invasive ductal Ca. I have completed seven radiation treatments with fourteen to go.MedOnc recommends starting five years on Arimidex (I was positive for estrogen and progesterone hormone receptors).
Glad you found this site. There is a lot of useful information, as well as great pink sisters to support you here.
Keep us posted.
Hugs, K

tjohnson2310's picture
tjohnson2310
Posts: 168
Joined: May 2010

Thank you for the hugs.

MyTurnNow's picture
MyTurnNow
Posts: 2694
Joined: Aug 2009

Tjohnson, I also just wanted to shout out a "welcome" to this amazing group of caring, supportive, knowledgeable and loving individuals. We'll be your pink sisters and provide whatever you need to get through your treatments. You've come to the right place. Take care.

tjohnson2310's picture
tjohnson2310
Posts: 168
Joined: May 2010

Thank you so much.

mjjones453
Posts: 125
Joined: May 2010

I was diagnosed in January with BC. Stage 1; the size of the tumor in my left breast was 1.5 cm. When my gyne told me I had breast cancer, I asked him if he could recommend the surgeon that he would send his wife to. He gave me his choices. I was appreciative of that. I had many people give recommendations of which Oncologist to go to, I trusted my primary care physicians advice, when I told him the recommendations. You may be put in contact with a Breast cancer navigator, they are very helpful in answering questions, giving advice on Dr.s. on when to do things next etc. I had a Lumpectomy and sentinal node biopsy on Feb. 4, of this year, saw my Oncologist about a month later, after giving me the prognosis, my nodes being clear, I am Er/pr+; the Dr suggested for me to take the oncotype test to find where I stood with my cancer reoccuring. My score was 8 which was good. The treatment for me was 33 treatment of Radiation, the last 5 being to the scar area, and then after that to go on Tamoxifen. I finished my radiation treatments on May 5th. I am larger breasted, so I had painful sores that developed under my arm, and breast and experienced fatigue. After I finished my treatments, I was amazed at how quickly the sores went away. Fatigue still hits me at times, but you deal with it by resting when you can. I will be on Tamoxifen for 5 years, I started that medication on May 6.
Do make notes and ask questions. So many of us have different diagnosis, and treatment. Be encouraged, even though it is very scary, you will get through this, take one day at a time. Mary

nkosi1127's picture
nkosi1127
Posts: 7
Joined: May 2010

Hi,
You will be ok - God is with you - I was diagnosed at 32 - and treated very aggressively - surgery was ok - chemo was the worse - 90% mental - you give up and start having a pity party you get worse - stay focused - plenty of vitamin C and rest. No stress and love yourself - look at yourself and see the beauty in yourself. If you ever need to talk in more detail - my number is 630-371-7144 - my name is Cynthia Harris - 5/15/2010 I am in remission - I made it and so will you -

tjohnson2310's picture
tjohnson2310
Posts: 168
Joined: May 2010

Thank you for your encouraging words.They are what I need right now.

JUDYLOOS
Posts: 2
Joined: May 2010

I am being treated at MDACC, and I think it is the most wonderful place to be for cancer. I have all the confidence in the world that they will cure me. I have invasive ductal carcinoma, stage II, grade 1-2. After 11 weekly Taxols, the tumors are shrinking, and I feel really well. I still have most of my hair (Surprise), and I just get a little tired. Having 3 young children at home doesn't leave me much time to rest, but that is what I need. They keep my mind off things, too. I only remember that I have cancer when I am getting the chemo or pulling all the hair out of my brush every morning.

This is not what we choose to go through in life, but we can do it. It could be a lot worse, and you will get through it. It brings your friends and family closer to you, and you become very close to God. From the day you are diagnosed, you are a survivor. Every emotion you are feeling is normal. It's a process to get where you are comfortable about these things. I remember trying to think how my husband would be able to care for our kids without me. That will never happen! I am not going anywhere. Medical research has come too far in breast cancer research. They will make me all better, and I'll have cute, perky, symmetrical new boobs when this is all over. Gotta think positive!

Balentine's picture
Balentine
Posts: 393
Joined: Feb 2010

Hurray for you! You will get through all of this just fine. Mentally you are exactly where you need to be and that is the bigges part. I am so thankful that you are hitting this head on with a good attitude. How old are you? Anyway God bless you and keep you!
Lorrie

Sam726's picture
Sam726
Posts: 233
Joined: Sep 2009

Hey girl...Im 33 and was diagnosed last year with BC in my left breast. Stage 2b, HER2 positive. I had a lumpectomy, 6 rounds of chemo and 6 weeks of radiation and Im cancer free now for 5 months! I know its hard but stay positive and you will be able to do this! The women on here are so great and helpful. I couldnt have done it without them.
Good luck to you girl.
Sam

tjohnson2310's picture
tjohnson2310
Posts: 168
Joined: May 2010

Wow, that's great thanks for giving me encouragement.

zivagirl's picture
zivagirl
Posts: 19
Joined: Jun 2010

I noticed from your post that you are in area code "630". I am very close to your area code; Northwest Indiana. Can you please share the facility name of where you rec'd your treatment/surger, etc. please? Thanks - zivagirl

tjohnson2310's picture
tjohnson2310
Posts: 168
Joined: May 2010

Today I go for my breasts MRI and Friday full body PET scan.

Bella Luna's picture
Bella Luna
Posts: 1571
Joined: Aug 2009

I am 45 and was diagnosed last June 2009 with invasive ductal carcinoma, Stage 1, Grade 3. I had a lumpectomy, chemo( 6 rounds), and radiation. I tested positive for HER2 and am on Herceptin. I am over the major hurdles and have been working on my Temple!

Best of luck to you on your Journey! You came to the right place for tons of good advice from the "Sisters in Pink"!
BL

kiki3
Posts: 15
Joined: May 2010

Hey, you should check out the Young Survivors Network. It is for 40 and under. They are on facebook too. Also check out the RapunzelFoundation.org. I don't know where you are, or if you have to do chemo or not, but I am kicking myself that I did not do the cold caps to save my hair. I was too cheap. Now I realize that this chemo thing has been a piece of cake so far, and had I not lost my hair, no one would ever realize I had it. I am done with 2 rounds of TCH, and have 4 left. I only have one tired day, and a taste in my mouth for about a week. That is it. I am 40, and had a lumpectomy, am HER2 positive, and was node negative. You can do this thing- You are young, probably have a good attitude, and that is 95% of the battle. I should add that I am a Diet Coke addict, and no, I have not given it up. That would make me VERY crabby. We all have to have our vices :-)

tabfreckles
Posts: 2
Joined: May 2010

Hello,
I am sorry you were diagnosed at such a young age. I was diagnosed with left breast cancer (invasive ductal carcinoma) at the age of 35. Due to the large size of the area my only option was a complete left mastectomy. I ended up having both breasts removed at the same time with sentinal lymph node dissection. I am blessed, there was NO lymph node involvement. I am taking tamoxifen and I have a few side effects but I guess that is part of the deal. It was my faith in God and my family and friends that helped me through this. Keep believing and take one day at a time. Good Luck!

DebbyM's picture
DebbyM
Posts: 3294
Joined: Oct 2009

Sending you a warm welcome and gentle hugs!

Jennifer1961
Posts: 137
Joined: May 2010

I'm new also, diagnosed 5/4. I'm stage 2a, no lymph nodes, grade 3, estrogen +, progesterone +. All I can tell you is that when I first got the news I thought that this is the beginning of the end. I'm 48 and have three kids, 5, 9 and 11 and all I could think of was how they would grow up without a mother. Anyhow, I've been assured by both my surgeon and oncologist that things look very good for me and they both expect me to do well in treatment. Hang in there!

CypressCynthia's picture
CypressCynthia
Posts: 3956
Joined: Oct 2009

Welcome and know that you can survive this! I was 33 when I was diagnosed with invasive ductal carcinoma, large tumor, 4 nodes. Been through chem, radiation twice, bilateral mastectomies, tamoxifen, zometa and arimidex. I am now 57 and have bone metastasis (disgnosed 2009), but am still doing very well. I figure I have at least another 23 years to go! If you have specific concerns, you have come to the right place. Hang tough and know we are rooting for you!

tjohnson2310's picture
tjohnson2310
Posts: 168
Joined: May 2010

I am so glad I found CSN.

e_hope's picture
e_hope
Posts: 371
Joined: Sep 2009

tjohnson.. so sorry you had to find us, but you will find comfort here.

I was 36 when diagnosed a little over a year ago. BC is a wicked ride on rollercoaster! You will find your emotions all over the place. and hit every spectrum of those emotions.
I started with fear and anger... and now linger in a little place of sadness as I try to wrap my head around what just happened.

I had a double mastectomy with expander reconstruction. Surgery it self was a little tough, followed by weeks of seeing doctors for fills ( which are uncomfortable)

Since your only 32 you are most likely like myself and don't have much experience with seeing doctors... Hell other than my once a year gyn exam I didn't see my family doctor except if I was having a issue.. Now, I see more doctors than I have in my entire life. Which takes some getting use to.

I than had chemo, which sucks but is doable... and radiation...

Self-Worth... what a interesting question to ask!! It (in my experience) takes time. Getting use to your new body filled with numerous scars.. Dealing with the chemo induced menopause.. And if you significant other isn't supportive this battle takes a little longer to heal from long after treatment is complete.

This ride takes a hell of a toll on every relationship and can consume you. My advice, try to keep the lines of communication open and allow yourself to express you fears, concerns, and needs.

tjohnson2310's picture
tjohnson2310
Posts: 168
Joined: May 2010

I was diagnosed on 5/17/10. I have asked my self why me? How will this impact my job and my financial situation.etc. Next month I will travel to Houston,Tx to the MD Anderson Cancer Center to meet with an oncologist. I am sure this will be another wave of emotions.

Balentine's picture
Balentine
Posts: 393
Joined: Feb 2010

Hey what did you find out from your PET scan and MRI? I am surprised they did a PET scan on you. They don't usually do that for the breast cancer they say you have. I am curious to know what they tell you about the scans. Let me know and God bless. Hang in there.
Lorrie

tjohnson2310's picture
tjohnson2310
Posts: 168
Joined: May 2010

I was diagnosed with DCIS and IDC according to a biopsy. The MRI confirmed the carcinoma of the right breast and found no cancer in the left breast. Because I have IDC they did the PET scan. IDC of course can spread. I am going to MD Anderson because I feel I will be better served there. I will meet with an oncologist there in 2 weeks. Then i will have a better idea of where things are going for me.

Balentine's picture
Balentine
Posts: 393
Joined: Feb 2010

I also had IDC but they did not recommend a PET scan so I was just curious. Let me know when you get your PET scan results and what they tell you. Also let me know what MD Anderson tells you. I pray you are doing well and keeping your spirits up. You can get through this just as so many of us have. God bless!
Lorrie

jnl's picture
jnl
Posts: 3873
Joined: May 2009

So sorry you are here too tjohnson. Sending you hugs and prayers!

Leeza

zivagirl's picture
zivagirl
Posts: 19
Joined: Jun 2010

Sorry for the reason we meet here but very much appreciative of the support which I would be a mental mess if I could not meet the great people on this site. Curious as to where you will be traveling from to get treatment at MD and what steps took you to MD?

tjohnson2310's picture
tjohnson2310
Posts: 168
Joined: May 2010

sorry so late... u can self refer...call 1-713-792-2360

ScubaGirl
Posts: 32
Joined: Jun 2010

I was diagnosed on may 20 and have since had a lumpectomy with three lymph nodes out for sentinel biopsy. Luckily I'm stage I, clear margins and no lymph impact. I am triple negative which scared me but the ladies on this site made me feel better about that. I had a port in yesterday and start 6 months of chemo next Thursday followed by 6.5 weeks of radiation. I had brac analysis due to age and family history with negative results.

I am not happy about having cancer (imagine that) but am approaching it with a sense of humor and a feisty demeanor. I have a team of Cancer *****es, a term of endearment, who do things for me and won't take no for an answer. Add a very supportive husband who 'loves' my new short 'do and great family and I'm emotionally ok for now. Ask me at the end of the day. I'm wig shopping today.

Best of luck with xoxo's!

jo jo's picture
jo jo
Posts: 1175
Joined: Jun 2010

tjohnson sorry that you had to join the club but youll find this site to be very helpful thru your journey...and thru the emotional rollercoaster that your going to take a ride on.
Good luck

sohardbnme's picture
sohardbnme
Posts: 129
Joined: Jun 2010

Hi, i am 37. I was diagnosed Monday. I am in shock.

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