Hello everyone my name is Joel and I live in Rochester NY. I am 39 years old and married to a wonderful angel of a wife and we have two young children.
One month ago I was diagnosed with SCC unknown primary after a biopsy was performed on a swollen lymph node I noticed on my left neck.
A PET scan showed activity in my right and left tonsil and other lymph nodes in the left neck.
I had a tonsillectomy and left neck dissection two weeks ago. My Doctor at the Wilmot Cancer Center expected the primary to be found in the tonsil.
Pathology revealed that the only cancer found was in the original node, Doc said I'm N1 with no extracapsular spread.
The tricky part was the primary was not found. The tumor board met this week and reached a consensus that I should not have follow up radiation which was what they were planning on doing prior to the pathology report.
They are suggesting that I should just have follow up exams and if a primary is found they will take action. They think there is a good chance that the primary is gone.
I want to accept this as good news and an answer to prayer but this is all so unexpected I don't know what to think.
Has anyone here heard of anything like this?
Also I'd like to take a second to thank of all of you who have shared their stories and experiences in hopes of helping others. You are all very kind and brave.