May 04, 2010 - 10:41 pm
Hello, Unfortunately I'm a new winner for the head and neck cancer lottery. I'm only 38 years old (too young for this crap in my opinion! Non-smoker moderate weekend drinker. Yes it was HPV + so I assume that was the culprit! :( Was dx Mar 29th with IVA SCC Tonsil primary with 1 Right lymph node involvement. T2N2M0. Had radical Tonsillectomy and Right neck resection. Had 38 lymph nodes removed with only one positive.. The margins were all negative but had focal extracapillary extension on the lymph node. Here's the dilemma.
Being see an Wilmont Cancer center Rochester, NY Uof R. The tumor board agreed that since it was a HPV+ tumor and current trends in research show that HPV+ tumors respond well to tx and that my margins were negative with only one lymph node they only think I need radiation. However, since I'm a RN I know the importance of 2nd opinions. Went to Roswell Buffalo, NY and the doc there said he still sticks to the traditional approach chem (cisplatin and radiation). Not sure what to do; my surgeon insists that the growing trend in HPV+ tumors is less aggressive tx decreasing unnecessary chemo exposure; but not sure if this is too much of a gamble. Going to memorial Sloan Kettering on Friday. For 3rd opinion. Anyone on here have the same kind of HPV+ cancer with surgery and only radiation?? Scared and confused in Rochester!!!!