May 03, 2010 - 3:56 am
I am new here to this site. Is there anyone out there who is in a similar situation re you child has Rhabdo? My son is in week 13 of an intensive protocol. I would like to hear from anyone who knows about this topic!Our protocol runs for 54 weeks and we are doing well so far. We are in Australia.
I think I just need to reach out to someone else who is going through this specific cancer as it is so agressive. We are stage 4.
Our oncologist either does not have exact answers (ie the type we have been told is defibately NOT Alvioli but it seems not to be Embyonal either! We have no definative fish results back. It feels like we are in no mans land !
We are very positive though ! We have been told that there will be surgery then 5 weeks of radiation .
Hope to hear from you !