She is 56, her feet and ankles swelled up, went to emergency, they took lung x-rays, thats where the cancer showed up, we had insurance TERRIBLE INSURANCE! Set up appt. for lung Doctor, earliest appt. was 4 wks away, from there to the onoclogists (cancer doctor) sfter numerous tests cancer was found in upper rt lung (fist size) and lower right lung small (pebble size) I asked the cancer doc what is the time left was told 6 months without treatment, 2yrs with treatment. The doctor answered the questions to quick for my liking (standardized answers)these answers were given to us before any biopsy. Needless to say we both left the office shocked and devastated!
I know absolutely nothing about Cancer nor its treatment, so we went home we own a business thats open to the public, and I started asking questions of my customers, figuring someone had to know something or had a experience with relative, friend due to cancer. I spoke with anyone that would listen. Looking for starting point of what to do, I was surprised of how many have been affected by cancer somewhere in thier lives. (I've been in business for twenty years same location so most of my customers and I are like friends I have a good repore with them. I wasn't whinning, just looking for information. Although there was times that I had hard time with my emotions)
99% asked me if they were going to remove the fist sized lung,and work with the pebble sized lung. I replied I didn't know yet, but 100% said to get a 2nd opinion. Remember terrible insurance.
So we had another appt with cancer doctor and I asked about the lung removal, and was told it wasn't an option. I asked why and she changed the subject and basically ignored me (I wasn't the one with the cancer, my Wife of 29yrs, the Mother of our two kids is, like my concern wasn't important. Before we left I asked again,
The Cancer Doctor set up an appt. for an MRI which our insurance said they would only pay $400. and the MRI people wanted $2000. from us upfront, so we went to our community hospital same deal ins. $400. $2000, upfront from us. Now I've been paying most everyting out of pocket due the insurance crap, figuring my wife doesn't have time for the arguments wit ins, and I can take care of ins. co. after my Wife is taken care of. But no MRI.
So I said the hell with this were going to go for a 2nd opinion but a second opinion out of our county, mainly because I didn't want to get a 2nd opinion from a doctor that was friends of our 1st doctors (the good ol boy syndrome)
We went in for a second opinion at out of County Doctor, the doctor explained why right now lung removal wasn't an option, he listened to my therory, said it wasn't good idea righ now and explained why.
I explained the situation with our insurance, said he wasn't worried about that right now he was concerned about My Wife. There is programs for situations like these, yesterday the social worker(?) from the hospital spent a couple hrs filling out papers for ssi, disiability, medi-cal. I explained thats why I got health insurance been paying for it for years, so when we did run into health problems we would be covered.
Yesterday, Tuesday we went in for the MRI test, another blood test, and radiation simulation test. She starts radiation treatments this coming Tuesday, five days a week for six weeks. And she got declassified from stage IV to stage 3B.
If the insurance company wouldn't have given me so much grieve, I probabaly would not have insisted to my Wife to get the 2nd opinion. And the 2nd one I believe is where the best care for her is.
Thanks for letting me Share