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tesslee
tesslee Member Posts: 97
edited March 2014 in Colorectal Cancer #1
i was dx with stage iv colon cancer on mar 26 after undergoing surgery. i'm having a real hard time. after surgery i had an ostomy bag, i'm 56 yrs old and it is hard to teach an old dog new tricks.

i start chemo tomorrow and i am scared to death.

i've been reading this board for a couple weeks now and i have to say i can only read so much. i feel so negative i don't know if i can handle this. i've moved in with my brother and sister in law and i sleep as much as possible. the only time i leave the house is doctor appts.

the thing is i have no energy. i had no energy before this dx.

i'm having a hard time believing i can get thru this. the fight seems so hard. i'm sorry for being so negative, but i'm sitting here crying.

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  • JR6020
    JR6020 Member Posts: 14
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    On way home from Dr appt.
    On way home from Dr appt. Just had rectal ultrasound. They staged me at T3N1. Only 2cm from anus so I will more than likely have colostomy after surgery which will b after weeks of chemo/radiation. It's tough, like a kick in the nuts. I'm 44 male and we're supposed to be tough manly men right. Well sometimes u have to cry and no one that truely loves u and people like me now that know what you're going through would ever look or think of u any differently. U can b sad but u also have to b possitive no matter hard it gets like my old buddy said "it's all about attitude" stay tuff no matter what, if I can do it so can u
  • khl8
    khl8 Member Posts: 807
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    Ok, first Breathe! You can
    Ok, first Breathe! You can do this. I also had an illeostomy and as much as that devestated me I got through it. As for Chemo, the unknown is frightening, but again this can be done. I was also petrified and after the first one I realized , ok this is not so bad. You need to talk to your doctor about getting you an anti depressent, I needed thema and so do alot of other people here. This helped me alot.
    You will get used to the bag and the chemo and before you know it you will be helping someone else here.
    If you have question, want to vent or need a virtual hug we are all here for you!
    Kathy
  • tesslee
    tesslee Member Posts: 97
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    khl8 said:

    Ok, first Breathe! You can
    Ok, first Breathe! You can do this. I also had an illeostomy and as much as that devestated me I got through it. As for Chemo, the unknown is frightening, but again this can be done. I was also petrified and after the first one I realized , ok this is not so bad. You need to talk to your doctor about getting you an anti depressent, I needed thema and so do alot of other people here. This helped me alot.
    You will get used to the bag and the chemo and before you know it you will be helping someone else here.
    If you have question, want to vent or need a virtual hug we are all here for you!
    Kathy

    yes i've had panic attack for first time
    and it's funny you picked up on that. i started on a vomiting attack for several hours ended up not being able to breathe and went to ER. it was a panic attack and a low grade infection which i lived with for a couple weeks until a port was put in and they put antibiotic into iv for the procedure. again i think i started to panic again last night and threw up again, but today feel better. i have never heard of thema, is that an antidepressant?

    thank you both for your replies. i hope i can be of help someday but it's not possible right now.
  • AnneCan
    AnneCan Member Posts: 3,673 Member
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    Hi Tesslee,
    I am sorry you

    Hi Tesslee,

    I am sorry you have to be here. That being said, I am glad you found the forum; I have found it very useful + supportive. I think the first chemo treatment is the most difficult because you don't know what to expect. I have been on chemo for quite awhile now + it is working well on me. In fact, I am scheduled for treatment tomorrow + my thoughts will be with you.
  • damama24
    damama24 Member Posts: 174 Member
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    tesslee said:

    yes i've had panic attack for first time
    and it's funny you picked up on that. i started on a vomiting attack for several hours ended up not being able to breathe and went to ER. it was a panic attack and a low grade infection which i lived with for a couple weeks until a port was put in and they put antibiotic into iv for the procedure. again i think i started to panic again last night and threw up again, but today feel better. i have never heard of thema, is that an antidepressant?

    thank you both for your replies. i hope i can be of help someday but it's not possible right now.

    new
    I am also stage IV colon cancer with mets to liver. I have had no surgery as i am inoperable at this time. Have been on two different chemo in the last 8 months and am always hoping for the best. You can do this if you need help for depression please talk to you dr. It can help a lot please try to stay positive and know that we are here for you always. Blessings to you. Deb
  • suelanders
    suelanders Member Posts: 25
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    new here
    Hi,

    I don't know your name. I am Sue. I found out I have StageIII B colon cancer on Feb 21st. I have had surgery to remove a portion of my colon. I do not know how you feel as I do not have a colostomy but I can speak to your being scare. I believe we all have to find our own strangth to fight this cancer. You have the support of your family and this will be a great comfort to you. The thing is, you need to find the things in your life that will make your life worth living. Don't give up hope. My Doctors told me attitude is 70% of my treatment, I have to have it in my head and heart that I can beat this. I am blessed with a great attiude, I am 55 years old and plan to live another 40 or 50 years. My family has no history of cancer so this was a shock to the whole family and they tell me how proud they are of me for fighting for my self to get well. I too, start my Chemo on Wed. and I have to say, I am very scared but what is the alternative! I will keep you in my thoughts as we go on this journy together. Please keep your hopes up and I hope to see you back here.

    Sue
  • khl8
    khl8 Member Posts: 807
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    khl8 said:

    Ok, first Breathe! You can
    Ok, first Breathe! You can do this. I also had an illeostomy and as much as that devestated me I got through it. As for Chemo, the unknown is frightening, but again this can be done. I was also petrified and after the first one I realized , ok this is not so bad. You need to talk to your doctor about getting you an anti depressent, I needed thema and so do alot of other people here. This helped me alot.
    You will get used to the bag and the chemo and before you know it you will be helping someone else here.
    If you have question, want to vent or need a virtual hug we are all here for you!
    Kathy

    Could not help but pick up
    Could not help but pick up on that, I am you! I was where you are right now. Lean on us however much you need to. We have been there and have lots of advice to give!
    Kathy
  • khl8
    khl8 Member Posts: 807
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    tesslee said:

    yes i've had panic attack for first time
    and it's funny you picked up on that. i started on a vomiting attack for several hours ended up not being able to breathe and went to ER. it was a panic attack and a low grade infection which i lived with for a couple weeks until a port was put in and they put antibiotic into iv for the procedure. again i think i started to panic again last night and threw up again, but today feel better. i have never heard of thema, is that an antidepressant?

    thank you both for your replies. i hope i can be of help someday but it's not possible right now.

    Thema was supposed to be
    Thema was supposed to be them. pinky finger does not like to type properly!:)
  • tesslee
    tesslee Member Posts: 97
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    new here
    Hi,

    I don't know your name. I am Sue. I found out I have StageIII B colon cancer on Feb 21st. I have had surgery to remove a portion of my colon. I do not know how you feel as I do not have a colostomy but I can speak to your being scare. I believe we all have to find our own strangth to fight this cancer. You have the support of your family and this will be a great comfort to you. The thing is, you need to find the things in your life that will make your life worth living. Don't give up hope. My Doctors told me attitude is 70% of my treatment, I have to have it in my head and heart that I can beat this. I am blessed with a great attiude, I am 55 years old and plan to live another 40 or 50 years. My family has no history of cancer so this was a shock to the whole family and they tell me how proud they are of me for fighting for my self to get well. I too, start my Chemo on Wed. and I have to say, I am very scared but what is the alternative! I will keep you in my thoughts as we go on this journy together. Please keep your hopes up and I hope to see you back here.

    Sue

    hi Sue, my name is Tess. i
    hi Sue, my name is Tess. i want to wish you well with your beginning chemotherapy. thank you for your story also. i'm very happy for you that you have a strong belief you can beat this. and i'm sure you will. thank all of you for your help and encouragement.
  • tesslee
    tesslee Member Posts: 97
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    khl8 said:

    Could not help but pick up
    Could not help but pick up on that, I am you! I was where you are right now. Lean on us however much you need to. We have been there and have lots of advice to give!
    Kathy

    Kathy, thank you so much.
    Kathy, thank you so much. you said the exact words i needed to hear. reading about everyone's positive attitudes is wonderful but i just can't find mine now. hearing that you felt this way also has made me have a good afternoon. thank you for that.
  • dmdwins
    dmdwins Member Posts: 454 Member
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    tesslee said:

    hi Sue, my name is Tess. i
    hi Sue, my name is Tess. i want to wish you well with your beginning chemotherapy. thank you for your story also. i'm very happy for you that you have a strong belief you can beat this. and i'm sure you will. thank all of you for your help and encouragement.

    Hi Tess
    Boy I remember those early days. Anxiety,depression,disbelief.... Stage IV. ...it isn't easy but hang in there...come for support,vent,cry,share.

    I was diagnosed Stage IV in October of 2007 and doing well....stay Hopeful!!!!

    Smiles,
    Dawn
  • karguy
    karguy Member Posts: 1,020 Member
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    Welcome
    Welcome to the site,don't be afaid to ask any questions.I have a permanant colostomy bag,for a little over 1 1/2 years now,it becomes part of your routine,no big deal.I had no energy for a long time,then the doctor started me on iron pills,4 per day,after about 2 months I got about 70 to 80% of my energy back.Talk to the doctor about medication for depression,and anxiety,that will help.You can get thru this,don't get scared,get angry.Don't never ever give up.Feel free to come and ask questions anytime.
  • Buzzard
    Buzzard Member Posts: 3,043 Member
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    karguy said:

    Welcome
    Welcome to the site,don't be afaid to ask any questions.I have a permanant colostomy bag,for a little over 1 1/2 years now,it becomes part of your routine,no big deal.I had no energy for a long time,then the doctor started me on iron pills,4 per day,after about 2 months I got about 70 to 80% of my energy back.Talk to the doctor about medication for depression,and anxiety,that will help.You can get thru this,don't get scared,get angry.Don't never ever give up.Feel free to come and ask questions anytime.

    I was diagnosed March 25th 2008 so I am 2 years ahead of you...
    Sounds like the same deal...I have permanent ostomy....piece of cake...I had 5 weeks of chemo and radiation before surgery, piece of cake, I had surgery, piece of pie, in tuesday out Friday...Then I had post op chemo, 5fu,oxaliplatin, leucouvorin...Hmm...not very pleasant but very doable....it will be a year of fast flying Dr appointments, blood draws, scans etc but it will pass by hurriedly. You will have to mentally prepare yourself for the hustle and bustle that it will entail, but !!! once you see how everything rolls it will start to get routine for you and the anxiety will ease. I am 2 years out of diagnosis and I am just now getting my strength back to where it was close to before diagnosis. My "new normal" is pretty durn good considering the alternative...But, that is something to dismiss completely, you will do great, be your own advocate for your treatment processes and ask lots of questions. stay out of the internet except for here for information. It is all 2-5 years behind out there in cyberspace but in here its up to the minute with great information about anything from poop to peanuts. Don't look for major strides in your move towards getting back to complete normal to quickly, you celebrate the little steps forward, the small victories won, for those are what will get you through the whole ordeal. It won't be easy, but it will change your life and you will be stronger mentally than you have ever been in your life. It will give you a new respect for living and enjoyment of the smallest things that we use to take for granted. We don't cull anything here as far as conversation so...Unload, unpack, and relax, Tess and Sue, you are both in great hands here........Love to you both, Buzz
  • biglaur
    biglaur Member Posts: 72 Member
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    Welcome Tess and Sue
    Wow...two newbies for the price of one :) I feel for you both...I was there (as was everyone else on the board) and we know what you're going through and what you have ahead of you. But take a deep breath...it all seems to be coming fast but once you get in a routine like someone mentioned...it is very "DO-ABLE" . I won't bore you with my diagnosis...you can read my profile, but I too am Stage IV, first diagnosed Sept '06, recurrence (well, it was there all the time but not found) June '08. I did 11 rounds of Chemo, 9 zaps of cyperknife radiation and 6 months of Xeloda. I felt crummy some of the time and ok some of the time. I was able to throw a BIG BEAUTIFUL wedding for my daughter while undergoing chemo AND build our dream vacation house. We went on a bicycle trip to Bordeaux while I was doing Xeloda...so...just know life goes on and you can deal with it if you have the attitude that you're stronger than the cancer and won't let it stop you. I'm just going to keep having a good time...no matter what! Ask tons of questions. I remember my first chemo day, no one explained anything to me. My second infusion day I sat next to a gal having her first. Her nurse explained it all...so I sort of leaned over and listened to her explanation. It made more sense knowing what was happening and why. Give your doc all your symptoms and side effects...they have lots of cool drugs to help out. It's easy to "go to the dark side" but try and stay upbeat and know you'll win this fight! Laurie
  • biglaur
    biglaur Member Posts: 72 Member
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    Welcome Tess and Sue
    Wow...two newbies for the price of one :) I feel for you both...I was there (as was everyone else on the board) and we know what you're going through and what you have ahead of you. But take a deep breath...it all seems to be coming fast but once you get in a routine like someone mentioned...it is very "DO-ABLE" . I won't bore you with my diagnosis...you can read my profile, but I too am Stage IV, first diagnosed Sept '06, recurrence (well, it was there all the time but not found) June '08. I did 11 rounds of Chemo, 9 zaps of cyperknife radiation and 6 months of Xeloda. I felt crummy some of the time and ok some of the time. I was able to throw a BIG BEAUTIFUL wedding for my daughter while undergoing chemo AND build our dream vacation house. We went on a bicycle trip to Bordeaux while I was doing Xeloda...so...just know life goes on and you can deal with it if you have the attitude that you're stronger than the cancer and won't let it stop you. I'm just going to keep having a good time...no matter what! Ask tons of questions. I remember my first chemo day, no one explained anything to me. My second infusion day I sat next to a gal having her first. Her nurse explained it all...so I sort of leaned over and listened to her explanation. It made more sense knowing what was happening and why. Give your doc all your symptoms and side effects...they have lots of cool drugs to help out. It's easy to "go to the dark side" but try and stay upbeat and know you'll win this fight! Laurie
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
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    Hi
    You're very early in your diagnosis, and of course you're scared and worried. Don't borrow trouble, though. Some of the journey may be better than you are expecting right now. And we'll be here for you.

    *hugs*
    Gail
  • chicoturner
    chicoturner Member Posts: 282
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    Hi Tess and Sue
    Sorry to have to meet you here, but you have found a safe place to say what you feel. I am dx stage 4 colon cancer. Surgery 2 years ago and have mets to the lungs. I am doing fine, but taking a break from treatment (per my local onc and the UCSF doc) Other then surgery, my most scary day was the first day of chemo. Make sure someone is with you who can hear all the instructions and why and what's. You will get through it despite how you feel! Next treatment you will not be the newbee, and soon you will be the go to person! Know that you are stronger then you think! You are in my thoughts and prayers. Jean
  • jillpls
    jillpls Member Posts: 238
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    we've all been there so we understand
    Hi Tess, as said, we've all had the scare of not knowing our future. It's like you life goes before you in slow motion. I felt a heavy weight on my shoulder for about three days after my first DX which was in 2006. No history in family, just went in for my 50th b-day. What a gift! But there are many positive things that come out of being a part of the cancer club. For one, my faith has grown enormously. Each day seems better and the colors around are more intense. You learn who your real friends are and the bond of family becomes strong like cement. I know how scary it is but there is a lot of hope and help out there for you. This site is one. We've all gotten through the chemo, surgery, radiation etc and we're still here as you will be too. It's not a death sentence so take a breath and know and believe that you will be able to conquer this. God bless you today and always
    JIll
  • WinneyPooh
    WinneyPooh Member Posts: 318
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    The good things
    Hi tess
    there are good things about cancer
    1. You have free time to do things you had no time to do before
    2. if you stopped working since you have stage IV you will automatically qualify for SS disability, So go apply.
    3. Yoga classes are free at the hospital
    4. Foundations will give money to help with your cost, (ask your oncology's staff)
    5. Random people when they see you will tell you how good you look, (something about the colostomy and ostomy bags making are waste system work give you a healthy glow I guess)

    6. You now have a real excuse to put off sex(i am not sure how good that one is)

    7. If you have an ileostomy you can eat what you want and not gain weight

    Now that you know the good and there is more, get out of bed and enjoy the day you have cancer your not a vampire the sun light wont hurt you.

    For energy, try fruit and juicing, make sure you get enough protien, vitamin D, B complex,

    Excerise, just walking will help,

    It will be ok.

    LIve, Love, Play
    Winnie