Lhermitte's Symptom or Sign

Scambuster
Scambuster Member Posts: 973
edited March 2014 in Head and Neck Cancer #1
Hi All,

We have discovered a common symptom among a few of us here (D'Ware Jim, Skiffin John & I) called 'Lhermitte's Symptom'.

Please read below to see if you think you get this sensation and can anyone who has, please post a brief note re: when it started, where you get it and if you have had any medical opinion etc.

This is a bit of research as the information I have read does not referred this as being a condition suffered by post Radiation /Chemo survivors. It would be interesting to see how many of us have have it. Thanks in Advance.

Scambuster

======================L'Hermittes Sign=====================

L'Hermittes sign is the name given to an electric shock-like sensation which often presents itself with multiple sclerosis; although Lhermitte's sign is not exclusive to ms and may be the result of some other conditions such as electrolyte imbalance, cervical cord tumour, cervical spondylosis, or even vitamin B12 deficiency.

Typically, the electric shock-like sensation radiates from the neck downwards and lasts for a very short duration; usually less than a second. The sensations can repeat indefinitely so that it might feel almost continuous.

The areas affected by Lhermitte's sign are usually the arms and / or the legs, although the sensations can radiate to the trunk.

Lhermitte's sign gets its name from the person who first characterized it, Jacques Jean Lhermitte, and is sometimes (rarely) known as 'barbers chair phenomenon'.

This is because of the way that Lhermitte's response is triggered; by flexing the neck forwards. When the head moves in this way, the electric shock like sensations are triggered.

http://www.themcfox.com/multiple-sclerosis/ms-symptoms/lhermittes-sign.htm
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Comments

  • pattyanny
    pattyanny Member Posts: 544
    Hi Scambuster
    OMG! This is the first I have heard of anyone having this! I have had this since Jan 2010, 3 months after my Cysplatin & TX was completed. At first it was like a 2 second shock, and would end b4 I knew it happened! I had two CT scans w/contrast(head, neck & spine) in February which showed nothing. As you said, when I touched my chin to my chest, my legs would tingle.
    At first, it would happen infrequently and for a very short duration. Soon I was realizing, I could "control" it by moving my chin. Yikes! And both my legs would tingle, then stop when I raised my chin, then again, when I lowered it! It has subsided somewhat, but I figured it must be a reaction from all the poison put into my body.
    The neurologist was puzzled, and very concerned, but came up with no answers. I will check out you link for more info, thank you!
    I am attending a ACA conference tomorrow, and will bring it up to the doctors there.
    I am just happy it has subsided.
    Please let me know when yours began, and if it has subsided, and in what areas you are affected. I am - once again - glad to know I am not alone. God bless! Patty
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    Google It
    Scam,

    Actually there is a lot of information on it, Google this;

    Lhermitte's Symptom Head & Neck Radiation

    You'll find several entries on it.

    I'm not sure when I first noticed it, but it was after the 35 radiation shots to the head & neck. I'm pretty sure it was brought up in a CSN Forum posting a few months back (not as the main topic), but I believe that DelNative had mentioned what it was.

    I'm not sure if mine has really gotten any better of not (10 months post), but it hasn't gotten any worse. I can induce mine by slightly bending the head forward, chin to the chest. I feel a tingle that goes between my shoulders, sort of down my spine and hips although way to the toes.

    But that's the only time I feel it, I mean I can do that anytime and I always get the sensation, but at no other time.

    John
  • Kent Cass
    Kent Cass Member Posts: 1,898 Member
    Skiffin16 said:

    Google It
    Scam,

    Actually there is a lot of information on it, Google this;

    Lhermitte's Symptom Head & Neck Radiation

    You'll find several entries on it.

    I'm not sure when I first noticed it, but it was after the 35 radiation shots to the head & neck. I'm pretty sure it was brought up in a CSN Forum posting a few months back (not as the main topic), but I believe that DelNative had mentioned what it was.

    I'm not sure if mine has really gotten any better of not (10 months post), but it hasn't gotten any worse. I can induce mine by slightly bending the head forward, chin to the chest. I feel a tingle that goes between my shoulders, sort of down my spine and hips although way to the toes.

    But that's the only time I feel it, I mean I can do that anytime and I always get the sensation, but at no other time.

    John

    excellent find, Scam
    Mine extends from mid-chest to my chin on typical right-side. When I lower my head, or chin towards the chest (to look at my PEG), for instance- there's the tingling, again. Also, when I do things with my hands and arms over my shoulders, do notice it. Mine does not extend below the mid-chest.

    kcass
  • Landranger25
    Landranger25 Member Posts: 210 Member
    Kent Cass said:

    excellent find, Scam
    Mine extends from mid-chest to my chin on typical right-side. When I lower my head, or chin towards the chest (to look at my PEG), for instance- there's the tingling, again. Also, when I do things with my hands and arms over my shoulders, do notice it. Mine does not extend below the mid-chest.

    kcass

    Me too
    I have this as well. Noticed it towards the end of treatments. Was driving down the highway and just sort of stretched my neck muscles a bit and when I dipped my chin felt the tingles all the way to my toes. I can reproduce this at will as well. I have had a C-5,6 fusion and just chalked it up to some stiff muscles from the rad treatments. Will sure try to find out more. See Onco man on Thursday and Chiropractor tomorrow. Will see what they say. Thanks all.

    Mike
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    Kent Cass said:

    excellent find, Scam
    Mine extends from mid-chest to my chin on typical right-side. When I lower my head, or chin towards the chest (to look at my PEG), for instance- there's the tingling, again. Also, when I do things with my hands and arms over my shoulders, do notice it. Mine does not extend below the mid-chest.

    kcass

    Source
    Actually I believe the credit goes to DelNative, he is the first I saw mention of it a few months back.....
  • Kent Cass
    Kent Cass Member Posts: 1,898 Member
    Skiffin16 said:

    Source
    Actually I believe the credit goes to DelNative, he is the first I saw mention of it a few months back.....

    DelNative
    Then thanks to Jim in Deleware, John.

    These symptoms didn't start with me until a couple months ago- at least 9-10 months after the last rad. Others experience the same starting so long after treatment? And, anybody notice an increase in severity- especially to the point it becomes more than just a nuissance?

    kcass
  • delnative
    delnative Member Posts: 450
    Kent Cass said:

    DelNative
    Then thanks to Jim in Deleware, John.

    These symptoms didn't start with me until a couple months ago- at least 9-10 months after the last rad. Others experience the same starting so long after treatment? And, anybody notice an increase in severity- especially to the point it becomes more than just a nuissance?

    kcass

    FWIW
    I noticed it not long after treatment ended -- though I don't remember noticing it when I was still "cooking" and suffering through the mucus and all the rest of that misery.
    I mentioned it to Dr. Nuclear, and I don't think he told me what it was called but he said that it was not unusual. I never did ask how long it was supposed to continue. I still have it at 17, almost 18 months out, but the buzz isn't as strong as it used to be.

    --Jim in Delaware
  • dogsrule
    dogsrule Member Posts: 96
    pattyanny said:

    Hi Scambuster
    OMG! This is the first I have heard of anyone having this! I have had this since Jan 2010, 3 months after my Cysplatin & TX was completed. At first it was like a 2 second shock, and would end b4 I knew it happened! I had two CT scans w/contrast(head, neck & spine) in February which showed nothing. As you said, when I touched my chin to my chest, my legs would tingle.
    At first, it would happen infrequently and for a very short duration. Soon I was realizing, I could "control" it by moving my chin. Yikes! And both my legs would tingle, then stop when I raised my chin, then again, when I lowered it! It has subsided somewhat, but I figured it must be a reaction from all the poison put into my body.
    The neurologist was puzzled, and very concerned, but came up with no answers. I will check out you link for more info, thank you!
    I am attending a ACA conference tomorrow, and will bring it up to the doctors there.
    I am just happy it has subsided.
    Please let me know when yours began, and if it has subsided, and in what areas you are affected. I am - once again - glad to know I am not alone. God bless! Patty

    lhermites to
    I to have been experiencing this sensation. I am 50 year old female diagnosed with scc-unknown primary. Noticed 2 swollen lymph nodes on left side of neck. Had a modified neck dissection in Nov 2009. 27 rads 5000cy finished in beginning of Feb. Just started to have this electric shock feeling last weekend. Glad to find out what it might be. I asked my surgeon about this and he had no clue. Gonna call the radiologist on Monday and find out what he knows. I wonder how long this is going to last. Have a peg in, thougt it had something to do with that. I hope I am posting this right,seem to be having some difficulty
    figuring out how to post.
  • CajunEagle
    CajunEagle Member Posts: 408
    dogsrule said:

    lhermites to
    I to have been experiencing this sensation. I am 50 year old female diagnosed with scc-unknown primary. Noticed 2 swollen lymph nodes on left side of neck. Had a modified neck dissection in Nov 2009. 27 rads 5000cy finished in beginning of Feb. Just started to have this electric shock feeling last weekend. Glad to find out what it might be. I asked my surgeon about this and he had no clue. Gonna call the radiologist on Monday and find out what he knows. I wonder how long this is going to last. Have a peg in, thougt it had something to do with that. I hope I am posting this right,seem to be having some difficulty
    figuring out how to post.

    "Electric shock feeling"
    I'm not sure how long it lasts or it's cause, but all I know is one day it was gone. I probably didn't realize it's departure for some time. As part of the excersise routines that I went through last Fall (09) in learning how to swallow, the Speech Therapist had me lie prone on my back and do 30 repetitions of just lifting my head up off the floor and seeing my toes. I did this four times a day for two months. I'm assuming this was to strengthen my neck muscles...or to make sure I still had feet :)....but initially the shocking sensation happened during every rep. It was another one of those, "gosh I hate doing this, but I'll do as I'm told" situations and it sure helped. And then it must of just disappeared. I too had a peg tube at the time.
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    Kent Cass said:

    DelNative
    Then thanks to Jim in Deleware, John.

    These symptoms didn't start with me until a couple months ago- at least 9-10 months after the last rad. Others experience the same starting so long after treatment? And, anybody notice an increase in severity- especially to the point it becomes more than just a nuissance?

    kcass

    Over Time
    Over time I've probably been aware of the sensation since a month or so post last rad starting around July or so 2009.

    While it hasn't intensified, I don't think it has changed much, its actually relatively faint. I can even slightly feel it though my arms to my finger tips as well as the legs and toes.

    But it isn't even as strong as when you have the feeling of your fingers or hands going to sleep, just a small tingling sensation that lasts for a second or so.

    ~JG
  • Scambuster
    Scambuster Member Posts: 973
    Skiffin16 said:

    Over Time
    Over time I've probably been aware of the sensation since a month or so post last rad starting around July or so 2009.

    While it hasn't intensified, I don't think it has changed much, its actually relatively faint. I can even slightly feel it though my arms to my finger tips as well as the legs and toes.

    But it isn't even as strong as when you have the feeling of your fingers or hands going to sleep, just a small tingling sensation that lasts for a second or so.

    ~JG

    Amazing... Why don't our Quacks know ??
    Thanks for all the feed back everyone. Please keep it coming as I sort would like to table all those who had this sensation and also if you didn;t get it so I can get an idea of %. Isn't is a bit funny how so many of us have and nearly all our Doctors have 'No Idea'. Similar to the 'Feeling Cold' thing.

    I intend make a report and sending it off to all my Oncomen and ENT guy as well as other Cancer boards so they can improve their knowledge. I have been miffed more than once by ignorance among the people shoot us with big Radar guns and poison for large sums of money. I asked my Doc about Amifostine last week (like waaay too late). He sort went very quiet and fidgety when he realized he screwed up and neglected to offer it when I went through. Anyway, I digress. Keep up the reporting folks and thanks again.

    Scambuster
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member

    Amazing... Why don't our Quacks know ??
    Thanks for all the feed back everyone. Please keep it coming as I sort would like to table all those who had this sensation and also if you didn;t get it so I can get an idea of %. Isn't is a bit funny how so many of us have and nearly all our Doctors have 'No Idea'. Similar to the 'Feeling Cold' thing.

    I intend make a report and sending it off to all my Oncomen and ENT guy as well as other Cancer boards so they can improve their knowledge. I have been miffed more than once by ignorance among the people shoot us with big Radar guns and poison for large sums of money. I asked my Doc about Amifostine last week (like waaay too late). He sort went very quiet and fidgety when he realized he screwed up and neglected to offer it when I went through. Anyway, I digress. Keep up the reporting folks and thanks again.

    Scambuster

    Amifostine
    Scam,

    It is kind of interesting concerning the Amifostine. My chemo doctor was the one that set me up for that. My chemo center was on the floor above my rad center. I'd go in about 15minutes before the rad for my injection each day.

    She (chemo doctor) suggested it for not only some salivary function retention. But more so for prevention or relief from thick mucositis and dysphagia.

    In my case I believed it worked pretty well. I never had the problems that I read some here have/had. Especially with the thick mucous build up. I am ten months out and can form saliva at will 90% of the time. It's normal and clear, not as much as before, but quite a bit.

    I can actually eat toast, pretzels and chips, most anything without taking water every bite. I mainly have dry mouth during the nite when salivary function is inherently low normally.

    But back to the rads doctor, mine never mentioned it. I asked him about it and got that he wasn't really for it. He didn't think it did much more than possibly 20% in helping to save saliva reproduction.... HELLO, 20% is better than nothing, I'll take that 20% please.

    Makes you think that these people should deal with some of what we go through...although I'd never wish that on anyone, just sayin.

    JG
  • thegirlfriend
    thegirlfriend Member Posts: 142
    Skiffin16 said:

    Amifostine
    Scam,

    It is kind of interesting concerning the Amifostine. My chemo doctor was the one that set me up for that. My chemo center was on the floor above my rad center. I'd go in about 15minutes before the rad for my injection each day.

    She (chemo doctor) suggested it for not only some salivary function retention. But more so for prevention or relief from thick mucositis and dysphagia.

    In my case I believed it worked pretty well. I never had the problems that I read some here have/had. Especially with the thick mucous build up. I am ten months out and can form saliva at will 90% of the time. It's normal and clear, not as much as before, but quite a bit.

    I can actually eat toast, pretzels and chips, most anything without taking water every bite. I mainly have dry mouth during the nite when salivary function is inherently low normally.

    But back to the rads doctor, mine never mentioned it. I asked him about it and got that he wasn't really for it. He didn't think it did much more than possibly 20% in helping to save saliva reproduction.... HELLO, 20% is better than nothing, I'll take that 20% please.

    Makes you think that these people should deal with some of what we go through...although I'd never wish that on anyone, just sayin.

    JG

    interesting.....
    Lhermitte's Sign may also appear during or following high dose chemotherapy. Irradiation of the cervical spine may also evoke it as an early delayed radiation injury, which occurs within 4 months of radiation therapy.

    http://en.wikipedia.org/wiki/Lhermitte's_sign

    Kathy
  • staceya
    staceya Member Posts: 720

    interesting.....
    Lhermitte's Sign may also appear during or following high dose chemotherapy. Irradiation of the cervical spine may also evoke it as an early delayed radiation injury, which occurs within 4 months of radiation therapy.

    http://en.wikipedia.org/wiki/Lhermitte's_sign

    Kathy

    Thank you Jim- for"Dr
    Thank you Jim- for"Dr Nuclear". It was the first smile I had today.
    There does seem to be a gap between the patient experience and the provide knowledge base.

    1. Tingling
    None yet, but I will keep on the lookout.

    2. Amifostine
    Only 1 of the 2 onc recommend it here, they were not sure if the results warrented the side effects. I had Amifostine, but cannot tell how it worked, I do seem to have some saliva....

    3. Cold
    Always! As I sit here with a coat on, talking some jello down my throat

    4. Thanks
    To all of you-I feel like I am not alone! In the good company of other cold people with sore throats who are yet happy to be done with treatment..and of course this is Montana, some of you are probably warmer.

    Stacey
  • delnative
    delnative Member Posts: 450
    staceya said:

    Thank you Jim- for"Dr
    Thank you Jim- for"Dr Nuclear". It was the first smile I had today.
    There does seem to be a gap between the patient experience and the provide knowledge base.

    1. Tingling
    None yet, but I will keep on the lookout.

    2. Amifostine
    Only 1 of the 2 onc recommend it here, they were not sure if the results warrented the side effects. I had Amifostine, but cannot tell how it worked, I do seem to have some saliva....

    3. Cold
    Always! As I sit here with a coat on, talking some jello down my throat

    4. Thanks
    To all of you-I feel like I am not alone! In the good company of other cold people with sore throats who are yet happy to be done with treatment..and of course this is Montana, some of you are probably warmer.

    Stacey

    Dr. Nuclear
    Hey, Stacey. I forget if it was on this forum or elsewhere, but I remember someone calling his or her chemo doctor "Chemical Ali."
    I got the biggest kick out of that, but I can't use that for my chemo doc: She's a she.
    "Chemical Alice" just doesn't have the same ring to it.

    --Jim in Delaware
  • Kent Cass
    Kent Cass Member Posts: 1,898 Member
    delnative said:

    Dr. Nuclear
    Hey, Stacey. I forget if it was on this forum or elsewhere, but I remember someone calling his or her chemo doctor "Chemical Ali."
    I got the biggest kick out of that, but I can't use that for my chemo doc: She's a she.
    "Chemical Alice" just doesn't have the same ring to it.

    --Jim in Delaware

    Alice
    Mine too, Jim. Just "Alice," you know, suffices.

    Let the Safety Manager at work know about this thing, and he wrote it down to Google it. Had advised my Boss about it around a month ago, so I am on record at the place I work with it. Again, thanks for this info.

    kcass
  • dogsrule
    dogsrule Member Posts: 96

    Amazing... Why don't our Quacks know ??
    Thanks for all the feed back everyone. Please keep it coming as I sort would like to table all those who had this sensation and also if you didn;t get it so I can get an idea of %. Isn't is a bit funny how so many of us have and nearly all our Doctors have 'No Idea'. Similar to the 'Feeling Cold' thing.

    I intend make a report and sending it off to all my Oncomen and ENT guy as well as other Cancer boards so they can improve their knowledge. I have been miffed more than once by ignorance among the people shoot us with big Radar guns and poison for large sums of money. I asked my Doc about Amifostine last week (like waaay too late). He sort went very quiet and fidgety when he realized he screwed up and neglected to offer it when I went through. Anyway, I digress. Keep up the reporting folks and thanks again.

    Scambuster

    you would think
    You would think that in all our doctors experience they would have been familar with this side effect. I tried to call my rad man all day today and the number is out of service. What..big hospital in philadelphia and I can't get ahold of him to see what he knows about it. After my neck dissection, my left I was droopy. The eylid looked swollen and it lasted for around 5 months. I asked my surgeon what was up with that and again,no clue. I asked the onco and he didn't know either. I was very bummed out about that. I asked the rad man and he told me that there is a big nerve that runs thru there and the eyelid is at the end at it would probably take some time for the blood flow to travel all the way back up and it should get better. Finally an answer and he was right I guess because my eye is back to normal now. Thank god.
    I asked about Amifostine at the beginning of my radiation treatments after researching radiation and he told me that they stopped using it because they did not see any conclusive results. So I was not offered it. I do have some salivia, not as much as before,
    makes it hard to eat, have to sip water. From reading all of your posts it seems like it will probably get better over time.
    Thanks for posting
    Jo
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    dogsrule said:

    you would think
    You would think that in all our doctors experience they would have been familar with this side effect. I tried to call my rad man all day today and the number is out of service. What..big hospital in philadelphia and I can't get ahold of him to see what he knows about it. After my neck dissection, my left I was droopy. The eylid looked swollen and it lasted for around 5 months. I asked my surgeon what was up with that and again,no clue. I asked the onco and he didn't know either. I was very bummed out about that. I asked the rad man and he told me that there is a big nerve that runs thru there and the eyelid is at the end at it would probably take some time for the blood flow to travel all the way back up and it should get better. Finally an answer and he was right I guess because my eye is back to normal now. Thank god.
    I asked about Amifostine at the beginning of my radiation treatments after researching radiation and he told me that they stopped using it because they did not see any conclusive results. So I was not offered it. I do have some salivia, not as much as before,
    makes it hard to eat, have to sip water. From reading all of your posts it seems like it will probably get better over time.
    Thanks for posting
    Jo

    After Effects
    Sooo, first question, "what kind of dogs do you have", LOL..we have two chocolate lab sisters (Kali (Kaylee) and Jasmine (Jazzy)).

    Sorry they didn't offer you the Amifostine (even though it's not a treat). I do feel that it helped me in a lot of ways. I can't compare as I did have it, but I have regained probably 80% of my saliva back. I also didn't have the thick mucous or phlegm form during treatment.

    Amifostine comes with it's own demons when using it. I'd get a rash at each injection site. They were all in my stomach, so each day they'd pick a different spot. Then the skin would get dry and itch. That lasted for several months afterward.

    I also started getting really high fevers during the last few sessions. I had to stop the injections around 30 out of 35, I couldn't handle the temperature swings any longer.

    I use to have to have water with me constantly at first also. Sipping with each bite of food. I no longer need to do that. I can eat pretty much everything without sipping water constantly. I can eat toast, crackers, chips, whatever with no water inbetween.

    The blood flow you are talking about sounds a lot like the same scenario with many and the Turkey Neck thing. That's a result of the lymph glands being damaged in the neck and throat area during radiation. It causes the fluid to build up makng your neck and throat swollen and puffy. Eventually (usually) through gentle massage and mainly time, the lymph paths re-establish and start draining again. I'm almost 10+ months post radiation and my neck/troat is almost back to normal...I'm barely a Chicken Neck now compared to a full blown Turkey Neck, LOL....

    John
  • dogsrule
    dogsrule Member Posts: 96
    Skiffin16 said:

    After Effects
    Sooo, first question, "what kind of dogs do you have", LOL..we have two chocolate lab sisters (Kali (Kaylee) and Jasmine (Jazzy)).

    Sorry they didn't offer you the Amifostine (even though it's not a treat). I do feel that it helped me in a lot of ways. I can't compare as I did have it, but I have regained probably 80% of my saliva back. I also didn't have the thick mucous or phlegm form during treatment.

    Amifostine comes with it's own demons when using it. I'd get a rash at each injection site. They were all in my stomach, so each day they'd pick a different spot. Then the skin would get dry and itch. That lasted for several months afterward.

    I also started getting really high fevers during the last few sessions. I had to stop the injections around 30 out of 35, I couldn't handle the temperature swings any longer.

    I use to have to have water with me constantly at first also. Sipping with each bite of food. I no longer need to do that. I can eat pretty much everything without sipping water constantly. I can eat toast, crackers, chips, whatever with no water inbetween.

    The blood flow you are talking about sounds a lot like the same scenario with many and the Turkey Neck thing. That's a result of the lymph glands being damaged in the neck and throat area during radiation. It causes the fluid to build up makng your neck and throat swollen and puffy. Eventually (usually) through gentle massage and mainly time, the lymph paths re-establish and start draining again. I'm almost 10+ months post radiation and my neck/troat is almost back to normal...I'm barely a Chicken Neck now compared to a full blown Turkey Neck, LOL....

    John

    I want to be a chicken neck to
    We have a Chesepeake bay ret. She is a light color (blond) her name is Venus. She is 7 years old. We had a chocalate chessie together with this one but she reached 14 yrs and we had to let her go. Great dogs. We have a place on the north chesepeake bay and they are right in their element down there. They love swimming and boating. Labs are great dogs to.

    My salivia seems to be getting better. I hope I can get to where you are without having to sip water with practically every bite of food. I just went to the onco yesterday and he has ordered a follow-up PET. Probably sometime next week. They are going to call me. Hopefully everything turns out ok and it's all gone. I'll let ya know.
    Glad to know that the turkey neck will eventually go away. Mine seems to be a little better, but still there. I haven't been massaging it. How do you do that? Just rub in an upwards motion?

    I have a moderate narrowing of my throat due to scar tissue, had a barium swallow done last week and those are the results. The doc said that it could possibly get worse if the scar tissue builds up. Right now I can swallow Ok but it is restricted. Hope it doesn't get worse or they might stretch it or something. Thanks for the encourgement John. Good to know that things get better over time.
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    dogsrule said:

    I want to be a chicken neck to
    We have a Chesepeake bay ret. She is a light color (blond) her name is Venus. She is 7 years old. We had a chocalate chessie together with this one but she reached 14 yrs and we had to let her go. Great dogs. We have a place on the north chesepeake bay and they are right in their element down there. They love swimming and boating. Labs are great dogs to.

    My salivia seems to be getting better. I hope I can get to where you are without having to sip water with practically every bite of food. I just went to the onco yesterday and he has ordered a follow-up PET. Probably sometime next week. They are going to call me. Hopefully everything turns out ok and it's all gone. I'll let ya know.
    Glad to know that the turkey neck will eventually go away. Mine seems to be a little better, but still there. I haven't been massaging it. How do you do that? Just rub in an upwards motion?

    I have a moderate narrowing of my throat due to scar tissue, had a barium swallow done last week and those are the results. The doc said that it could possibly get worse if the scar tissue builds up. Right now I can swallow Ok but it is restricted. Hope it doesn't get worse or they might stretch it or something. Thanks for the encourgement John. Good to know that things get better over time.

    Dogs Do Rule....
    Morning Jen,

    We had a Black Lab (Ebony) for 13+ years before she passed, she was a huge part of our life and is still thought of nearly everyday. She is gone but definitely not forgotten. We always comment on how she prepared us for the two sisters we have now. They can't get away with nearly anything thanks to Ebony "training" us...LOL.

    Is this going to be your first post PET, if so I know it's rather scary, not sure if they ever don't become I guess.

    As for the massage, I never really found out a proper method or procedure. Some on here utilize types of exercise and mild weights also. I just mainly gently use my finger tips with mild pressure having the fingers spread a little. I pull them down along the outside of my throat starting behind the ears, down over the neck to just past my collar bone. I do that to the entire sides and front of my throat, face and cheeks included....

    I also try stretching my neck a little side to side, opening my mouth wide keeping those muscles from tighting up. I dunno if any of it works, I just know that my Turkey Neck has reduced significantly the last few months. I used to be able to run my finger tips over the front of my throat and feel the lump from swelling over my adams apple. That lumpness is no longer there.

    It use to be worse in the morning, I suppose from laying during the night restricting any lymphatic fluid from flowing. I believe it is more gravity dependant on flow anyways...

    Hoping that you get great news on your PET and that your road to recovery is well underway.

    Good Luck, God Bless,
    John