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A Sorrow Lives In My Heart

HeartofSoul's picture
HeartofSoul
Posts: 732
Joined: Dec 2009

»-(¯`v´¯)-»

I’ve talked with the American Cancer Society reps/CSN staff and supervisors regarding the chat site technical issues. I also spoke to both CSN management and the Web Master on why it’s so important for both cancer survivors and caregivers to have access to chat to receive the attention and care that each member is entitled to. I shared real life examples to those I speak with at CSN and share stories like the young mother who's child was just diagnosed with brain cancer, the father of 4 who was told his colon cancer is back again, the caregiver who just lost her spouse to colon cancer, and the middle age woman who was told she has no more options left and to seek hospice.

I have expressed by phone to CSN how chat is a valuable, knowledgeable, and caring community of people that dedicate themselves to making positive a difference. How everyone in chat reaches out in their own special way to inspire others in need of comfort and friendships. I emphasize that caregivers help their loved one's and also bond with other caregivers and survivors or how survivors reach out to other survivors and to other caregivers, and most of all, the gratitude shared by so many members.

Typically the responses I get from CSN is they appreciate my feedback on the chat site technical issues and say thank you for being there to help others. They listen and pass my message on to the appropriate resource(s) to their ACS offices.

We all know cancer is a vicious and merciless disease. The thought of so many human beings afflicted with cancer and the physical and emotional pain it leaves behind is hard to describe with words. CSN Chat was a place we would come to day or night and find a special and caring community to share our experiences, our tears, our fears, losses and gains, and inspirational stories. It was a place that changed attitudes and lives. Today, that special place called CSN Chat lies silent with an uncertain future. Thank god, its members do not lie silent and will continue to make the future of everyone living with cancer more certain

soccerfreaks's picture
soccerfreaks
Posts: 2801
Joined: Sep 2006

And I thought chemo made me nauseous.

stayingcalm's picture
stayingcalm
Posts: 656
Joined: Feb 2007

Tsk tsk

HeartofSoul's picture
HeartofSoul
Posts: 732
Joined: Dec 2009
HeartofSoul's picture
HeartofSoul
Posts: 732
Joined: Dec 2009
HeartofSoul's picture
HeartofSoul
Posts: 732
Joined: Dec 2009

Im speechless

damama24
Posts: 175
Joined: Nov 2009

Heart I understand how you feel even if others out there don't. There are so many times the people in the chat room lifted me up and gave me courage to fight on. I went through a tough patch at the holidays last year and you guys were all there for me. Thank You! Deb

Tina Blondek's picture
Tina Blondek
Posts: 1560
Joined: Nov 2009

Hey Heart,
Thanks for your post. Thanks to you, a lot of things get done on this site. They might not even have been made aware of the problem if not for you. Hopefully they can fix their ungoing problem and we can get back to our original csn chat room. I have made so many wonderful friends through chat. They have helped me, I have helped them. For now we will meet at Caring Voices. Hope to see you there.
Tina

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