Apr 09, 2010 - 1:55 pm
Made it through Week 1. Radiation on Monday – Friday. Then the Mitomycin Chemo on Day 1 and the 5FU Chemo drip through the week.
I really struggled with bathing/showering. Ended up washing my hair at the kitchen sink, and then just took a bath for the body portion of the equation. I just couldn’t figure out how to do a shower – how to cover the port with food wrap and how to set the pump outside the shower. I was just beyond my grasp of how to do it…
I didn’t have a problem sleeping with the pump. I was so, SO tired I could have slept standing up! So, I just kept the fanny pack strapped on and either slept on my back, or gently curled on my side.
I was absolutely not prepared for how tired I was! That really caught me off guard. On Monday I felt pretty good – I guess that was just a tease due to the steroids they gave me. On Tuesday, felt fairly good most of the day, then started to fade in the late afternoon and early evening.
By the time Wednesday rolled around I felt completely and totally drained. I was at work, but felt like I could just drop to the ground and pass out at any moment! And, I couldn’t think… I was totally unproductive as an employee. It was really unsettling and depressing – I was very weepy. I thought there would be more days that I felt ok, so I felt very deficient and lacking in my moral and physical strength. It made me very sad. The Onc Nurse calls it Chemo Brain.
I went to work on Thursday morning, but left early afternoon due to excessive fatigue. Went to my mom’s for a cat nap before my doctor’s appt and rad treatment. Then, came home and slept some more. Just got up to eat something, and then went back to bed. It was amazing how many hours I slept.
Today is Friday, and I’m looking forward to getting rid of the Chemo Pump. I am hoping that will help restore some of my energy. And, maybe some of my brain cells.