Apr 08, 2010 - 7:14 pm
My mom was dx'd with GBM IV in June 2009. She is 68. The tumor was debulked, leaving a mass approx the size of a walnut near her motor strip. Chemo (Temodar) reduced the tumor to the size of a dime. She is starting her 5th round of Temodar 5/23 today. Her last 3 MRI's have shown no tumor growth and she has done incredibly well up until now. Her bloodwork is good, her speech is excellent and no problems with vision or hearing. Unfortunately, recently I am seeing some signs of decline.
She has fallen twice within the past week, in one case injuring herself severely enough to require stitches. Her gait is becoming kind of "shuffly." She is only taking .5mg of Decadron per day so I do not believe the steroids are affecting her muscle strength but of course I could be wrong. Her arm strength is decreasing - she is having difficulty getting off the toilet (we have a medical raised seat for her) by herself. Does anyone know if her doctor would likely prescribe, and if Medicare would cover having a physical therapist work with her a couple times per week to improve her arm and leg strength? Also, does Medicare cover items such as a cane, walker and portable wheelchair?
I am expecting to hear of tumor progression at her next doctors visits coming up next month. I am trying to be proactive and keep her mobile for as long as possible, as she has indicated she would like to be outside and active. Her primary caregiver (not me) is easily distracted and I am worried mom will experience more falls and injuries. Can anyone offer any suggestions - thank you in advance.