Apr 01, 2010 - 11:40 am
My name is Susan and I am new to this website though Ive looked at it several times for information. I have Non Small Cell Stage 3B Lung Cancer. No - I do not smoke.
This morning I read a post from a man named Keven regarding the fatigue he is experiencing after radiation. I had chemotherapy and radiation. I thought the chemo was nasty.
Kevin - I hope you read this. What area did they treat? My treatment was in the chest - neck and upper back. I had 30 treatments. I really thought they were going to kill me.
Im still quite exhausted. If it wasnt for the kindness of a dear friend I would not have been able to care for myself. Its quite depressing.
Everyone is different. I hope you have a good rapport with your doctor. If not get another. I go to the University of Chicago Medical Center. My Oncologist is Phillip Hoffman. The man is top draw. My prognosis was grim at first and now I seem to be exceeding all their expectation.
Kevin - the fatigue is horrible. I couldnt get my socks on without assistance two days ago. I was threw up everything I ate or drank. If this is happening to you get with your doctor immediately. I used the powder packs of crystal light and gatorade to flavor my water and boost my electrolytes.
Yesterday I ate for the the first time in 5 days. Today Im still weak but i dont feel as bad as i did yesterday. My Radiologist told be the post effects fatigue - nausea could last for several weeks and then start to subside. Im on my second week of post treatments.
Kevin - it will get better, Ive cried and cried I couldnt take it anymore and everyday seems to be a bit easier. But even if you dont eat a lot right now you have to stay hydrated. IV fluid is the only way if you cant swallow. Also ASK about Carafate ( coats the throat lining) and Magic mouth wash - xylocaine and maalox - you drink it like a shot before meals. There are about 8 different recipes but most Oncologists are familiar with these. Also Zofran for nausea 3x daily helps too.
I hope this helps. It will get better. When your tired - rest. DO NOT force yourself to do anything. Listen to your body and when you read books or posts - take away what makes sense to YOU! You are an individual and what works for another may not be for you.
I'm in the trenches of the fatigue right now. Its hell. I had to ride in a wheel chair yesterday because I couldn't walk. I hated it.
Kevin - have faith and no it will get better everyday. I have always looked at the bright side of things and with cancer its very difficult. These are my own personal experiences I care with you and I hope you find the same will be for you. Every day a tiny change for the better. Walking without becoming dizzy - exhausted after putting your shoes on - no appetite. Rest give yourself a break and no there are lots and lots of people who experience many of the same things. Some more severe than others. My fatigue was severe.
My heart went out to you when I read your post. I hope you see my response. I had to log in etc and then I couldn't find your post. Hydration is so important. I learned that the hard way. If you cant drink you cant drink. Then talk to your doctor about iv fluids.
Please hang in there.