Mar 30, 2010 - 10:20 pm
I hope that those of you that are going through treatment are keeping daily logs/records of you progression down this hellacious road. We keep at home daily records of weight....temperature.....blood pressure....bowel movements (Y/N)....plus any notations on number of regurgitations, hours slept, and introductions of new meds, etc.. It's amazing to go back a year later and read that stuff. My doctors would not allow my peg tube to be removed until I maintained, or at least slightly increased, my weight for 30 days. The record keeping kept me on a course to specifically watch my weight. Peg was removed a week and a half ago, and has totally healed. Never thought I'd be swimming this soon after removal.