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AMS 800 artificial urinary sphincter

Trew
Posts: 892
Joined: Jan 2010

One of many links with a diagram showing the device:

http://www.phoenix5.org/Basics/treatsides/incontinence/ams800.html

Is this the best device now available?

Best place to have this procedure done?

Interviews RE the artificial sphincter:

http://www.delawareurologic.com/audio/#video

I have a good friend who had bladder reconstruction after bladder cancer and he may be interested in one. Hey, some of us PC guys might be interested in one, too, so add as much info as you can about "Control Issues."

Hds15
Posts: 9
Joined: Nov 2010

Tom my name is Hal. I, like you have had this devise implanted in May 2010 and activated in July of 2010. I am currently urinating 10 to 15 time a day - at night I wake up 4 to 5 times before the sun rises. I'm taking are Vesicare(10mm)once a day. When I asked my doctor how long this situation will continue he tells me I have to be patient - he says everbody is different. I'm going into my 5th month since the activation.

What has been your experience?
How are you doing now?
My e-mail address hds15@aol.com
Any info you could pass on would be greatly appreciated.

JUMBO JIMBO
Posts: 2
Joined: Aug 2012

TOM, I'M NEW TO THIS "SCENE" BUT I WANTED TO CONTACT YOU SINCE YOU PROMISED SPECIFIC ANSWERS. I WANT TO ASK YOU A QUESTION THAT I HAVEN'T SEEN APPEAR IN THIS COLUMN -

HOW MUCH DID THIS PROCEDURE COST AND DID YOUR INSURANCE COVER ANY OF IT?

I AM 65 YEARS OLD, 10 YEARS POST SURGERY AND ONLY INCONTINENT FOR ABOUT 1 YEAR. MY UROLOGIST SAYS THERE'S NOTHING MORE HE CAN DO FOR ME, SO I AM STRUGGLING BY WITH 4-5 PADS A DAY (PLUS THE CUNNINGHAM CLAMP AND ONE SOAKING NIGHT PAD).

THANKS FOR ANY LIGHT YOU CAN SHED

JIM

Trew
Posts: 892
Joined: Jan 2010

A bit old, but here is an article on the failure rate of the AUS (artificial urinary device).

http://www.medkb.com/Uwe/Forum.aspx/cancer-prostate/3506/Artificial-Sphincter-Studies

I wonder if there are any more current studies on failure rates? The incision for implanting this device is made between the scotum and the rectum- legs up and spread apart. All this trouble from a little tiny cancer!

Skid Row Tom's picture
Skid Row Tom
Posts: 118
Joined: Apr 2010

I've had mine 3+ years. I've read that the AUS lasts 7-10 years. My urologist told me he put one in 17 years ago and it's still operating fine. I sure don't look forward to going through that surgery again, but if that's what it takes to lead a "normal" life, I'll do it.

Trew
Posts: 892
Joined: Jan 2010

Maybe in 7- 10 years the AUS will be even better.

Typical day for me. I used the same pad I slept in to exercise this monring. I came home and showered and and put a new pad in. Same pad I have been wearing all day now. I'll put a fresh one in before going to bed, and then change again in the morning. But the more exercise- like lifting, carrying, etc the more pads I will use. And one day may not be typical of the next. Still, do I want to go through surgery just to get right of 2- 4 pads a day? But then I think how often I modify my behavior without really thinking about it so I don't stress the bladder and leak.

So, Skid Row, do you use any pads at all with the AUS in? Are you like 100% dry- like before surgery? I so much wouldlike ot go out backpacking again but I can't if I am wetting a pad every hour or two- which I do if I am carrying a pack.

I am going to go slow and carefully on this decission. the first surgery did not turn out like I expected- my confidence is shaken in regards to a second.

Skid Row Tom's picture
Skid Row Tom
Posts: 118
Joined: Apr 2010

I'll never be back to the old "normal". I can't spend a lot of time thinking about it, or I know I'll get terribly depressed. I've had to adapt to the "new normal". It sounds like you're active, and so am I. If I have a day of relative inactivity (e.g., goofing around the house, watching a ballgame on T.V., going out to dinner with my wife), one "pantiliner" is more than enough. It will last all day and all night. For instance, yesterday, I rode my motorcycle to a festival -- about 225 miles -- walked around, ate, got on and off my bike, went to the grocery store when I got home, did some housework, and there was a dime-sized spot on my liner. However, if I go to the gym, work on the weight machines (either upper or lower body -- and upper body seems to cause more problems believe it or not), and walk/jog three miles,I use a Tena brand "Slender Pads, Ultra Thin" -- the package with two water drops on it. I'm not sure a liner would be sufficient. My son and I did a lot of hiking in Alaska last fall, and the liner lasted all day. However, for serious hiking or backpacking (like on the Appalachian Trail or a day hike that would require major elevation changes), I would wear the two-drop pad. My urologist said he could do a second operation and put in a second cuff which would almost "guarantee" 100% dryness. But no thanks -- not ready for that yet. Your last comment said a lot -- you must consider the extent to which the incontinence is controlling your life. Without the AUS, I would wear a heavy pad and could go ONE PLACE, for instance, out to eat. If my wife wanted to get groceries after we ate, I couldn't do it. I had to go home a change pads. About once a month, the heavy pad couldn't hold it and it would leak through to my pants. Awful! I had to have pads with me all the time -- in my car, at work. Other than the physical distress, I was FREAKIN' MISERABLE. Urine controlled my life. Like I said, the AUS gave me my life back (at least 95% of it) and I can't tell you how I fought against have this thing implanted. I tried PT, injections, medications, the Cunningham Clamp, etc. But now, depending on the day, my only decision is "a liner or a thin pad?". I would imagine, in your case, you ask "should I go backpacking today?" or "I wish I could hike today". If that sounds like you -- the yellow stuff is in control. I never ask anymore if I should do something. I just do it and prepare accordingly. By the way, a number of people that get the AUS are totally dry. As usual, I seem to be the exception.

Trew
Posts: 892
Joined: Jan 2010

This Tuesday I am scheduled for urodynamic testing to evaluate how my bladder is working.

Testing takes 45- 60 min. I see I need an enema 2 hrs before testing. always an enema! What is with these aliens and their enemas?

And I see the test is being done by a woman. I wonder if I do this naked?

It is just one sort of humiliating thing after another- nake for surgery, enemas, ED discussions, pads, incontinency, AUS, .....

And on 6/9/2010 I get to add a new word to my vocabulary and expereince: Cystoscopy. I am so excited about this- another opporutnity to be naked in front of strangers!

PC really really sucks!

RRMCJIM's picture
RRMCJIM
Posts: 149
Joined: Mar 2009

And Uncle Sam wonders how we can suffer PTSD.....go figure

Kongo's picture
Kongo
Posts: 1167
Joined: Mar 2010

Actually, I prefer a woman...their fingers are usually smaller!

lion1
Posts: 240
Joined: May 2007

Trew,
I have been thru all of that a couple times now----pretty ladies most the time---but it doesn't matter to me---all I could think about when they are doing these procedures is---FIND OUT WHAT REALLY IS GOING ON---AND THEN FIX IT!!!! JUST DO SOMETHING THAT WILL END MY INCONTINENCE!

It's really ironic now. As I have all these procedures, II REALLY DOESN'T BOTHER ME---I guess I just feel that I'll keep pressing up my stairwell to a cure and eventually this will all be but a memory.

My son gets Married in Dec 2010--- Iwant to be dry at the wedding.

Good luck and Keep the Faith---I am 50 now--LRP at 46--------------time flies even when you are incontinent-----can't wait till my next rip to Walter Reed....

Lion1

randy_in_indy's picture
randy_in_indy
Posts: 493
Joined: Oct 2009

I feel more comfortable getting naked in front of a woman than man....hmm, how strange is that...maybe I am in the wrong profession...LOL I have never been very modest when it comes to nakedness...I guess that means I am comfortable in my own skin.

Skid Row Tom's picture
Skid Row Tom
Posts: 118
Joined: Apr 2010

Hey, good luck on the urodynamics test. Yep, you're naked. Just like dealing with prostate cancer -- check your inhibitions at the door. Two women gave me the test. I have no doubt that this test was originally developed by some Eastern European country to extract information from "suspects". However, it's one of the battles you fight to get your life back. I've had a good number of cystos. While undergoing tests (including the urodynaics test) to find out why I was peeing all over myself, they discovered I had bladder cancer. Two tumors -- both superficial thank God -- but I had to undergo treatment for this before they could address the incontinence. I had BCG treatments -- a "poison" they inject into your bladder by way of a cystoscope -- one a week for six weeks. Then a cysto every three months, yada yada, but now I'm on a yearly rotation. No sign of either cancer for three years. At the height of all this pain and discomfort, I concentrated everyday on enjoying the day and blocking out anxiety of things to come. The day that I had to go to the hospital or have a procedure, well, that was the day to fight.

Trew
Posts: 892
Joined: Jan 2010

...while visons of sugar plums danced......

Ah, Merry chirstmas?

From some eastern country, you say? oh boy oh boy oh boy........

what a year this has been

Maybe I'll find out what the bleeding is from anyway?

maybe?

Trew
Posts: 892
Joined: Jan 2010

I just went online and made inquiery about urodynamics testing. Maybe I shouldn't have, BUT I guess it is nice to be prepared. And it does look like I will be naked.

Now, to look up that other word.....

randy_in_indy's picture
randy_in_indy
Posts: 493
Joined: Oct 2009

Trew, At least that's how they did me....after she discretly as possible hooked in the saline bottle to the cath I had a thin paper towel to cover the midsection so your not advertising your wares during the whole test...was quite respectable for the circumstance I thought. Hopefully you'll have the same care. As I remember, she seemed more nervous than me...LOL

Randy

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Kongo
Posts: 1167
Joined: Mar 2010

I can understand why she was nervous....especially if she knew about the double veins going into the penis. You should make sure you warn the medical staff not to get too frisky.

randy_in_indy's picture
randy_in_indy
Posts: 493
Joined: Oct 2009

Yes...it's really Randall but being Randy is much more fun!

LOL

Trew
Posts: 892
Joined: Jan 2010

are we having fun yet?

Urodynamic testing tomorrow afternoon- 3 pm ET. I can hardly wait.......

As in "Are we having fun yet?"

Trew
Posts: 892
Joined: Jan 2010

Well, that is done! the test was between 3- 4 pm. A few small complicatons but the test was finally completed. left the office just after 4 pm. stopped for a pizza which Mrs Trew and I ate in the van. Then on home- a 30 min drive. When we got home there was a message on phone that my Cystoscopy originally scheduled for June 9 had now been moved up to this Friday. The continency center where the test was done is just across the way from the uro's office. Fast communications. the tech said the test was very informative and they had a lot of info very quickly and I was done about 10- 15 minutes early once the caths were put in. I am a bit tender right now.

So Friday is the next step in the process. this is starting to move fast- maybe faster than I wanted it to.

As the procedure was in process I suggested that maybe this (urodynamic testing) could be developed into a theme park. Cost for less than 1 hr of testing: $1,600.

I don't understand all the dynamics and emotions involved, but for a few hours during and after I was almost overwhelmed how far I am slipping away from normal as I stood there nake with tubes hanging from personal body parts- front and back in the presence of people I had never met before. they made me feel as comfortable as possible, the I will say, the whole think is a bit socially ackward, to say the least. A year ago I never even knew such procedures existed and now I am on the receiving end of them.

My, I am really upset with PC.

Just a bit of venting here. Sorry. I will be better later.

Skid Row Tom's picture
Skid Row Tom
Posts: 118
Joined: Apr 2010

The worse part for me was when they ripped the tape off all the probes they had stuck in my "exit only" orifices.

Trew
Posts: 892
Joined: Jan 2010

I remember that part, too.
I wondered what the enema was for. Surprise!!
So nice to be able to touch base with a kindred spirit who has shared the same ordeal.

Trew
Posts: 892
Joined: Jan 2010

The other shoe drops in the morning: Cystoscopy at 9 am.

Maybe all I need is a little scare tissue removed and everything will be fine? Maybe.

I'm still a little tender from Tuesday- I hope this goes alright.

Trew
Posts: 892
Joined: Jan 2010

Well, that went very well. The root canal on the lower end is done. the whole process is indeed a memorable one no doubt and will be long remembered and cherished as part of my PC experience. A stricture has been widened, and I can now pee better. I just love how modern medicine works.

Now, I am going to enjoy a few hours of rest and the vicodin and the memories. The doc hinted at another round of wiring to see how the kegels are being done. Maybe a few other possibilities in therapy and then more on installing the AUS, if it comes down to that.

IF any of you heard anyone say, "Its just PC," please, kick them for me. Kick them hard.

And, I am very glad I changed doctors. That was a good move on my part.

lewvino's picture
lewvino
Posts: 1007
Joined: May 2009

So glad to hear that things are looking up for you!

Larry

Trew
Posts: 892
Joined: Jan 2010

Larry, the thought is nice, but "looking up" is a bit of a stretch for me this afternoon.

Right now I am fully and completely in a "I hate PC" mood. The doctor asked me if I had any problems with continency before surgery. I can hardly remember those days when everything worked perfectly. I miss those days so much. Forgive me- just a bit weepy here....

Skid Row Tom's picture
Skid Row Tom
Posts: 118
Joined: Apr 2010

Did the doctor tell you how "wide" they dilated you? It's usually stated in "French units". I had this procedure done (for scar tissue) at Johns Hopkins -- no drugs, no anesthesia -- you just laid there and took it like a man. This is the procedure that I think led to my incontinence. They started with a "12 French" and widened it to "22 French", which my current urologist said "I wouldn't have done it that much". I was recovering from PC great -- very little if any dribbles -- until scar tissue made it difficult to pee and then the procedure..... I'd love to know what your doctor did.

Trew
Posts: 892
Joined: Jan 2010

All I know is that first he injected me with a pain killer- I can't imagine what it would have been like without the shot- then he ran a very large tube down me- this is the 2nd time after his initial scoping- and then he started pushing wire down into the tube- much like the file stuff a dentist uses in a root canal- each wire a different coarseness. I think there were 3 filings- but by them I was just moaning softly to myself and wondering if we would be done by Xmas. He did not mention size of opening, nor did I ask. I did not what to spark any further interest on his part in extending the procedure.

And some people simply have a prostate removed and are dry 3 or 4 weeks later! IF I was one of those guys and reading my postings- or yours Skid row- I would give a prayer of thanksgiving every morning and night. And after all this I am still a T4 with a good chance of recurrance. Now wouldn't that be icing on the cake!!

Have I ever stated before that I really really hate PC?

And yes, once again, for all practical matters, I was naked in the presence of a strangers- a doctor and his nurse assistant.

My, but I do hate PC!

bdhilton
Posts: 759
Joined: Jan 2010

At the beginning of my journey I attempted to be “modest”…by the time I left the hospital after surgery all modesty when out the window… I no longer care who sees me naked (just like 40 years ago)…I guess I am really just an old hippie…

Trew
Posts: 892
Joined: Jan 2010

One thing about the procedure done yesterday I know a lot better when I am dribbling. Those first drops are like acid on a cut. IF I lie very still on my back while sleeping I have found I don't leak a bit. Turning onto my side, well, I know now I do leak some. Every turn releases a few drops and I think I felt them all during the night.

Skid R Tom, I think I had it a little better than you. At least I did get an injection of a pain killer, and I am no worse off this morning than I was yesterday morning before the procedure as far as leaking goes. But maybe my procedure was a bit diffrent than yours. Like I said, on me the doc inserted wires into the main cath line and filed away on me. I am surprised there is no bleeding this morning.

I think he said in three weeks he wants to have another look. Boy oh boy, I do hope I misunderstood him.

Skid Row Tom's picture
Skid Row Tom
Posts: 118
Joined: Apr 2010

MAYBE I have good news for you. After each of my cystos, it took a few days, and up to a week to get back to "normal". Even my AUS wasn't as effective. Things are pretty stretched out in there, and I think it takes a few days for tissues to snap back into shape. Hopefully, your dribbling will stop shortly.

About the cysto "afterglow"..... Anyone having one should INSIST on medication to stop the burning when you pee afterward. I have a prescription for Phenazopyridine (200 mg). It's an orange pill that makes you pee orange. I guess it neutralizes the acid from blood and urine, and without it, it's like peeing razor blades with an alcohol chaser. Take it immediately after your procedure or as soon as you wake up from anesthesia. Drink as much water as you can, and your first and subsequent pees should be delightful. Otherwise.....OOOOWWWWWW!

Trew
Posts: 892
Joined: Jan 2010

The doctor did not mention anything about taking a Rx. Certainly he mentioned nothing about Phenazopyridine. I had some vicodin around the house and I have been using that this morning- it does take the edge off. Peeing razor blades is not far off the mark. My wife said I look like I am being tazered when I pee, at least I did this morning. Right now I am just very mellow and slow. I'm going back down for an extended nap and concentrate on being very still- no drips allowed!

And thanks for responding to the personal message. This dripping is not going to last for years.

Trew
Posts: 892
Joined: Jan 2010

My wife knows about this "orange" pill from her years as an RN. She warns the orange urine it produces will stain just about anything it touched except the inside of the toilet. But she says, it works well.

I am working the steps, moving towards a decision....

Skid Row Tom's picture
Skid Row Tom
Posts: 118
Joined: Apr 2010

Your wife is correct -- it will stain everything except the toilet. Your pee is a wonderful fluorescent orange. As soon as the orange begins to fade, you need another pill. Keep this up for two days, and you'll pee without pain.

g8rb8's picture
g8rb8
Posts: 18
Joined: Dec 2008

AMEN!

When I had my cath removed post-daVinci, I had a cysto done. So I'm lying on the table, naked below the waist, hooked up and in walks a group of school children. Well, that's what it seemed like anyway. Ah the joys of medicine in a teaching hospital.

But I did get some small measure of revenge by making eye contact with them all and carrying on conversations with them while the doc did the cysto. I think it freaked them out just a little! :) They expected a mannequin and got a wise-cracking naked man instead.

Trew
Posts: 892
Joined: Jan 2010

I had a very good phone chat with SRTom last night. Having the AUS installed is no easy surgery and once again I am reminded PC is no simple cancer. And I consider Tom one brave man.

My conversation with Tom has also prompted me to begin a new drying out program I learned way way back in elem school from the little train....

My new program is......

"I think I can, I think I can, I think I can......."

Everyone wish me luck. If this one doesn't work I'll be one step closer to the knife....

My I do hate PC!!

Tom, thanks again for your time last night.

ob66
Posts: 218
Joined: Apr 2010

Had the procedure done Monday May 10 as I detailed Trew in a PM....All went well, but Tom is right. The surgery post op is worse than the daVinci surgery for prostatectomy. I have not been uncomfortable as far as pain goes (except that catheter removal backed up yielding unbelievable pain until re-catheterized), but penis and scrotal sacks are just coming down from grapefruit size and are between burgundy and black. Doesn't hurt per se, but movement is gentle at best. Going in this PM for my post op check. Obviously, it won't be activated for another 5-8 weeks. Any help from those that have been there for my stage right now would be appreciated. Ice is my best friend.

Trew
Posts: 892
Joined: Jan 2010

Ob, thanks for the update. As for me, well, all day it is, "I think I can, I think I can...." I am hoping chanting this over and over will do what kegels haven't been able to do.

My, I hate PC more and more evry day. And that is the Trewth!

harvs
Posts: 54
Joined: Jun 2003

Sound like you're doing the right things - - ice and rest
Take it easy with the pain meds
It's all worth it when it's activated.

Trew
Posts: 892
Joined: Jan 2010

I am thankful I have 3 expereinced vets to draw insight and guidance from. I wonder if I am leaking enough to qualify, but other times I think what other course is there for me?

I'd like to talk with you, Harvs, sometime on the phone. Could you personal message me with a phone number?

thanks.

Skid Row Tom's picture
Skid Row Tom
Posts: 118
Joined: Apr 2010

I told Trew your balls would swell up the size of a small grapefruit and turn a hideous plum color. I will answer any specific questions you have, or you can call me if you want. My surgery was three years ago. As I recall, I was fairly miserable for about two weeks. If you have a dog or cat, keep them away from you or put a huge pillow on your lap when you sit down. Dogs, cats, and kids have an uncanny knack for clobbering you in the balls. You have to take great pains (sorry about the pun) to keep the area as dry and clean as possible. In addition to the ungodly sight of it all, I found it disturbing to reach down there and come up with fingers full of blood as the incision tends to weep for awhile. The next big step is to have your doctor activate it. Basically he pushes the button on the upper end of the pump and massages the pump until it inflates. My advice to anybody having this procedure -- ask your doctor if he has a model of the AUS in his office. My doctor didn't. You can't tell how it feels by looking at the pictures. And when it was time for me to reach down there, feel for the pump and squeeze, I didn't know what the hell I was looking for. It took me a few days to get it right. Also, I felt it took me about 6 months before I "adjusted" to this new normal. However, if you were like me, your bladder controlled your life. The surgery was a b****, but I congratulate you for getting your life back.

ob66
Posts: 218
Joined: Apr 2010

Just as you described. Almost exactly. Have one problem. I had to be re-catheterized two days post op for I "backed up" when the cath was taken out before leaving the hospital. Yesterday, 4 days post-op the doctor was wanting it out, and I was afraid to do so before the weekend. So I have a fine catheter in, which works well. But apparently the worry is necrosis inside the sheath if the cath stays in too long. So Monday AM I must remove
it myself, and if I back up, it will be self-catheterization which holds no excitement for me. Anyone have such experiences??? Is it a blip in the big picture, or something to worry about. Seems like my grapefruits are going to tennis balls slowly, so it seems the healing is going well. Little to no pain. Lots of sitz baths, Keflex, slow motion, and ice. Thanks for any help.

Skid Row Tom's picture
Skid Row Tom
Posts: 118
Joined: Apr 2010

Unfortunately, I also have experience with self-catheterization. After surgery and scar tissue formed, they dilated me. They told me I had to do the self-cath thing several times a day to keep the urethra from closing back up. They gave me several to use and it was an ordeal. I think the ones they gave me were size 16 French (the diameter is measured in French units), the end that you put in first was shaped like a ball (imagine balancing a baseball on the end of a bat), and they were reusable (after sterilization). I got on the Internet and ordered some disposable ones that were smaller (14 French -- although if I had to do it over again I would by 12 French), and had a pointed end which made insertion easier. You'll need a big tube of Surgilube Surgical Lubricant. With the new caths (smaller and pointed) it was still uncomfortable but tolerable. When you put it in, it will slide up your urethra and stop and where the prostate is (was). Just take a breath and continue to apply a little pressure and it will slide about two more inches into your bladder. Removing it isn't a big deal. Just pull slowly.

Trew
Posts: 892
Joined: Jan 2010

Now I am starting to play mind games with myself about having a AUS installed, such a, What IF some one tied you to a tree and left you (like a robber)? My wife says, "Like how often has that happened?" But there are other supposes that could happen, a fall on the trail and you are left unconscious for hours. Then your bladder would explode.

Silly stuff like that enters my mind.

There is a 10- 20% failure rate- and I have been moving in on the wrong side of those perscentages since starting this whole cancer thingie.

So what if.......

And can they install this device in females and if so, where do they have the activation button? This inquiring mind wants to know.

cgerhardt's picture
cgerhardt
Posts: 10
Joined: Oct 2009

Trew,
I share your feelings. I am scheduled for an AUS July 8th. I am having those thoughts all the time but then I end up changing a pad and/or underware and/or slacks and come back to reality. I don't want to continue this way. I had a sling implanted in February and in six weeks I was back to where I started. I have resigned myself to the fact that the aus is the best last hope to get closer to dry. I have tried everything and just seem to be in that bad percentage of the bell curve. The other helpful thing has been listening to a lot of guys on healingwell.com that have the aus and the are happy as they can be.....so perhaps our feelings are just normal but not warrented....except for the recovery time/pain.
I am starting a thread on healing well to track my AUS surgery experience journey if you want to follow it. Are you scheduled yet or just in the considering stage?

Trew
Posts: 892
Joined: Jan 2010

I am into the countdown process moving towards a final decision and surgery date this summer. I figure if this AUS doesn't work I can jump off a bridge or something.

Where are you getting you AUS installed? I will see if I can find your thread over on healingwell.

Just a nasty decision to have to make- forget the if's- I just can't stand the leaking any more.

ob66
Posts: 218
Joined: Apr 2010

I am not through the process yet, but listen to SkidRowTom. It is unfolding the way he described. It wasn't easy. My catheter removal involved a back-up and a re-catheterization. It was removed again Monday and I was able to urinate. Thank goodness. There are a few things in life (eye surgery, catheterization) that scare me. Unrealistically you might say, but nevertheless raise fear. For two days and nights now I have been peeing. And when I remember being incontinent and wishing for same to stop, I am so thankful that incontinence has restarted after cath removal. I think I am mostly through this process. Your scrotal sacs and penis swell beyond imagination, turn plum, then near black, but then start to go down. The sutures are uncomfortable at best. In midstream I almost wish I had never had the AUS installed, but now, nine days post op, I know I made the right decision. SkidRowTom tells it like it is. It is not easy, but a week or two is small in the greater scheme of things. I hope this helps, that is my only reason for posting.

Skid Row Tom's picture
Skid Row Tom
Posts: 118
Joined: Apr 2010

Put your feet up and coast. The worst part's over. During the post-op, I also thought, "God, what have I done?" But after the doctor activated the AUS and I got the hang of it (no pun intended), I was unbelievably grateful that I could engage in "normal" activities. I had to give up riding my bicycle (too much pressure on certain areas) and am rather anxious if little kids or jumping dogs are around, but now the whole day is wide open. In fact, I'm leaving in mid-June on a 7500 mile coast-to-coast motorcycle trip (not my first), but improbable or impossible with out my AUS.

By the way, make sure you order some type of medical I.D. I usually wear a dog tag, but also have a bracelet that I seldom wear. I found a good selection of high quality medical I.D.'s at AmericanMedical-ID.com.

Skid Row Tom's picture
Skid Row Tom
Posts: 118
Joined: Apr 2010

I'm also on the wrong side of the percentages. However, my AUS has given me my life back. About being tied to a tree -- I still have a bit of stress incontinence. If I sneeze hard or go to the gym and work on the weight machines, I dribble and have to wear a liner. So, I would assume if I really had to go (being tied to a tree and all), I could put a little pressure on my bladder and go. As I understand it, the doctor has to make certain decisions about cuff pressure -- too little and you will leak, too much and it could lead to tissue erosion. So, the cuff isn't supposed to have a "death grip" on your urethra.

Skid Row Tom's picture
Skid Row Tom
Posts: 118
Joined: Apr 2010

I'm also on the wrong side of the percentages. However, my AUS has given me my life back. About being tied to a tree -- I still have a bit of stress incontinence. If I sneeze hard or go to the gym and work on the weight machines, I dribble and have to wear a liner. So, I would assume if I really had to go (being tied to a tree and all), I could put a little pressure on my bladder and go. As I understand it, the doctor has to make certain decisions about cuff pressure -- too little and you will leak, too much and it could lead to tissue erosion. So, the cuff isn't supposed to have a "death grip" on your urethra.

Trew
Posts: 892
Joined: Jan 2010

I emailed the company and asked if they have a list of recommended doctors. probably expecting too much.

I am starting to find this decision as hard as the one about getting surgery.

How does one find out if Dr Bour in Kalamazoo is as good as the medical team at the U of Michigan?

This has to be done right.

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