Mar 17, 2010 - 7:21 pm
I was just diagnosed with DFSP on Monday, 3/15/10. I have a similar story to the few others I've managed to find. I first noticed the lesion when I was about 15 years old but was told by a dermatologist that it was probably just a benign tumor and not to worry about it unless it got bigger. I've shown it to a couple other doctors along the way with substantially the same reaction. It has grown very slowly over the years but nothing appreciable until I had my 3rd child about a year and a half ago. Since then it has quadrupled (at least) in size. I'm now 34. I finally went to the doctor and insisted on a biopsy. When the pathology report came back as DFSP, I was referred to a dermatologist. He was great and did some research and got special permission from my insurance carrier to have a Slow Mohs procedure done by a well respected surgeon. I'm totally stoked about that but now I'm stressing out that because the lesion has been there for almost 20 years that it may have crept into muscle or bone. I'd say the lesion was about the size of a large garbanzo bean surrounded by blue mush about 2-3 cm diameter.
A few questions:
1. Does anyone know if size matters with regard to the severity of the microscopic spread of the cancer cells? My lesion doesn't seem all that big compared with some pictures I've seen on the internet and I'm hoping that's a good sign.
2. Has anyone had the Slow Mohs procedure who can describe the process to me and how it differs from traditional Mohs?
3. Does length of time with the lesion have anything to do with the chances that it's metastasized? I know this is a type of cancer that very rarely does but I'm worried that my chances are increased because the lesion has been there for so long.
I know that none of these questions can be answered for certain. I'm just hoping to hear other peoples' experiences.