Mar 14, 2010 - 9:00 pm
Up until we switched to taxol, I had thought I was doing pretty well. However, when I went in for my first taxol treatmnet, the blood tests showed my RBC was waaaaay low. The dr. said I could either wait and see if it built up on its own, then do the taxol, or we could do the taxol and I get a blood transfusion the next day.
I chose to do the taxol (Thurs. 3/4) and get a blood transfusion the next day (Fri. 3/5). That night (3/5), I started itching, just on my torso. When I talked with my dr's nurse on Tuesday, 3/9, all she could say was take Benadryl and that the dr. thinks I'm reacting to the blood transfusion, not to the taxol.
It wasn't too bad at first, but it has progressively gotten worse. I am now at the point that the rash has spread to my legs & arms as well as more tender portions of my anatomy. :( It itches so much at times that I cannot keep from scratching. Last night was really bad, and I scratched myself raw in several place, took several showers trying to stop the itch and rinse off ointments that didn't seem to be helping. I finally took 4 Benadryl and managed to fall asleep for a little while, but Benadryl triggers my restless leg syndrome, and I kept waking up with whole body twitches. Mostly I just walked the floor, and that's pretty much what I've had to do today; I can't even sit down without having twitches. Sometimes I twitch so hard even while walking that I almost fall down.
It's been a week & 2 days since I received the blood transfusion. I have had to take Benadryl all day long today. I'm probably going to have to take my drug that helps with restless leg syndrome tonight, which I never take, but I have to sleep somehow!
Has anyone else experienced this? What did you do? Any suggestions? I'm getting desperate!