Mar 13, 2010 - 9:19 am
I was diagnosed with multiple myeloma with amyloidosis in 2002. I had a stem cell transplant on 08/07 with was only 40% successful. The amyloidosis has affect vital organ, my kidney (now I am a dialysis patient), it is in my liver but my liver it working okay at this time. I have had fluid drained from around my heart and lungs due to amyloidosis. Is there anyone who has the same diagnosis? I have not talk to anyone with my diagnosis.
The medicine I was given is not affective. Now I am going to Boston University Medical Center, Amyloid Treatment and Research Center, Boston, MA on March 22 for a second opinion. I was told this is the best place in the world for my condition.