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Trigeminal Neuralgia

Posts: 31
Joined: Feb 2010

8 years after treament, I have recently been crawling the walls with extreme pain in the right side of my faace - very like the pain I had during radiotherapy, but just on one side, as if I have severe ear ache, dental bscess and broken jaw all at once. Docotr has finally said it is trigeminal neuralgia, and has started me on some treatments ( normal pain killers don't work on this disease). I am keeping my fingers crossed it works - he said it is caused by the radiotherapy as the scar tissue is now compressing the nerve at its root. Anyone else had this?

Hondo's picture
Posts: 6473
Joined: Apr 2009

It seams that there are a lot of things that happen to us many years down the line after rad & chemo that we were not told by our doctors.

Most of my pain is in the left ear but from the tube I am told, but not to sure if my ENT knows for sure. The other problem is if I over stress my self on anything I get terrible pain in the neck right under the right side of the jaw and then everything goes numb including the tongue , I can’t talk, I can’t swallow, I can’t eat. It last sometimes for ½ hour before it starts to ease up. I look at it as just another one of those side affects.

Hope you can get some help for your pain my Friend, all the best to you