Mar 08, 2010 - 11:10 pm
My husband, Hal, 57 yr. old, began this EC journey back in November 2009. He had difficulty swallowing, had endoscopy, found tumor, spread to lymphs and biopsied discovered mets to muscles and bones (ribs, tailbone, muscles all over - legs mostly.) He began having pains in legs, pain has gotten increasingly worse over these months. All the while, we began radiation and chemo (Taxotere and Carboplatin). The last scans showed radiation had helped shrink the primary tumor site, but the 6 weeks of chemo had not helped at all. We are devastated as his pain has increased, leg weakness and now his arms are affected. The PET scan showed aggressive changes to muscular system.
We begin a new chemo drug duo tomorrow in hopes this will work to kill some of this cancer, or at least slow it down. He is not the man he was a few months ago. They have had to increase his pain meds significantly and I do not know when he is safe to leave alone now. He tells me he is okay, but then he can't remember stuff and gets it confused. (head CT was clear! praise)
Just wondering if anyone else has had anything like this and if they got better with further treatments. He is about ready to give up, but we have two wonderful kids and I want him to fight, but he is already tired of feeling so bad. I have to "coach" him to eat or drink. Even after the "burned up" feeling from his esophagus radiation subsided. He still doesn't want to eat very much.
Please offer me some suggestions if you have any. I think the new chemo meds are Cisplatin? and 5FU? not sure if this is correct, will find out tomorrow.
I had been reading so many good reports on here, I had so much hope that his first treatments would help some and to know that all that chemo did nothing. I'm glad the radiation helped the esophagus, but he still can't swallow very good (especially meds). We do liquids and crush other pills.
Thanks for any advice. He tells me he feels this is just taking over his whole body and he has not control.
I pray everyday and many are praying for us, that is the only reason I have any strength to work and take care of him and the two kids is all the support we have had from church family and friends.