Just wanted to check in and say Hello. I do read all your posts because you have all become my family. I have been busy with my 80 year old Mom, who has been it 2 Nursing Facilities, and hospitalized twice in the last 5 weeks. The care in these places are incompetent, and I feel sorry for the elderly who have no one to be their advocate. I must check in each day, and show up at different times. The Drs. STILL have her medication wrong! This situation has keeping me hopping! :)
Unfortunately, my nutrition has continued to decline. I am now 110 lbs at 5'9". I began this journey at 138lbs.
I completed treatment on 10/16/09 and clean PET on 1/14/10 Yippee!
Finally, I contacted a nutritionist, (again) who actually returned my call! She was very perturbed that the Cancer Tx Ctr did not contact her much earlier. I have lost most of my muscle mass, and the next step would be a feeding tube in the hospital - No thank you! Anyway, I am now taking Carnation Instant Breakfast VHC which has 560 calories. My MD gave me Megace, which takes two weeks to kick in and stimulate appetite. Thank goodness for anti-anxiety meds, it helps to keep my focused on eating every two hours or so and staying positive. It helps keep those negative demons away, as does the Good Book.
As I have previously posted, I did refuse the peg tube during chemo & radiation, and had to switch Oncologists half way thru, because he began to treat me with disgust. (Great bedside manner!)I had no problem completing treatment with little weight loss, but the side effects of these poisons were worse than the TX! ( Thrush 4X - swish & spit solution, Sore mouth - Hydrocodone syrup, metal taste, no appetite, heightened sense of smell- P.U. meat!
I see my Dr in Mt Sinai in April, so am trying to "bulk up" b4 than! Ha ha!
Just wanted to say Thank you to all for you valuable threads, of info, whining,facts and fear! Again, I need to stress to all the New Members to stay on top of these Drs! Be your own Advocate! You can do it! I am living proof as so many others here are! God Bless you all, and keep you!
P.S. - After reading your threads - I am going to look into some mj for an added appetite increase, but it may only get me into the "cleaning the house mode" :( Lol! I'll keep you posted! Love & Prayers! Patty