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Chef Trek

Chefdaddy
Posts: 164
Joined: Dec 2009

I apologize it took me so long to get a new thread started. I had looked all over the site for the "new thread" button and it was right in front of me the whole time. I'm blaming starvation and pain! lol

Thank you everyone for your support and prayers.

Mike

Skiffin16's picture
Skiffin16
Posts: 8057
Joined: Sep 2009

Hi Mike,

Glad to see you on here, hope all is settling down a little for you, or at least becoming somewhat routine. Hang in there guy, it's a rough road, but you can do it....looking forward to a get together in the future.

God Bless You and the kids,
John

Chefdaddy
Posts: 164
Joined: Dec 2009

Hi John,

I named my throat after my ex-wife, a relentless fiery b*%$h!

I'm hoping they get the canned food issue resolved quickly, I'm becoming too weak and the chemo people are going to stop treatment if I lose anymore weight.

Good to hear from you, got to take off for another cooking session.

Your friend
Mike

Fire34
Posts: 350
Joined: Feb 2010

Mike
When I got my treatments I was put on Fetanyl patches that seemed to work a little and some morphine as needed. The university of Chicago had the same threshold for weight loss and when I passed it they placed a tube. Are you on 5FU? They say that has nasty side effects for the mouth/throat area. I was and must have been lucky as my sided effects were contained to the mouth area and diflucan worked wonders. I am still glad I had the tube as the mucous buildup also made swallowing was very difficult. Keep a positive attitude and as I have said before a great support person makes things easier. Good Luck

Hondo's picture
Hondo
Posts: 5648
Joined: Apr 2009

I love the ex-wife throat thing, be carful my friend and take care

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

I'm glad you started a new thread as I was getting confused trying to find the new responses - LOL

Haven't been on for 4 days so it's taking me a while to catch up on all of the new posts. We had a bad storm and lost our power for 4 days. We take for granted everything we use that takes electricity until we lose it ;-( Life is finally back to normal and we have heat again - winters are cold enough in New Hampshire without trying to survive them without heat.

I hope you continue to improve Mike and your life can get back to some form of "normalcy".

Keep up the good fight and keep us posted.

Your friend,
Glenna

stevenl's picture
stevenl
Posts: 587
Joined: Jan 2010

Hey chef, catchy sequel title much better than Planet of the chefs. Prayin and hopin and hopin and prayin. Uh oh showing my age again. Hang in there Chef!!!

Steve

Chefdaddy
Posts: 164
Joined: Dec 2009

Hi Fire34,

I'm not familiar with 5FU. I have a PEG, but I'm very allergic to the Iodine that is apparently in all canned food for PEG feeding. My radiation doctor ordered an emergency consult with the hospitals nutritionist to figure out feeding options. This is my first morning waking up with the Fentanyl patch on. so far the pain seems not quite as intense but still to painful to swallow anything. Thank you for your response.

Hi Hondo,
LoL, it seemed appropriate.

Hi John,

Age and gravity both suck! LOL

I'm running (okay, crawling) off to radiation.

Bless you all

Mike

Fire34
Posts: 350
Joined: Feb 2010

Chef
5FU is short for 5 fluorauracil it was a chemo drug I had while inpatient, we those of us in the study, were on it for 5 days 24 hours. I have seen some people go home with a pump. But I believe my problems were a combination of 5FU and radiaition. They started me out on ensure plus and after that was not working I was put on IsoSource 1.5 cal which seemd to work best for me. Trouble for me I was not able to put enough cans in between radiation treaments. I started using gravity instead of that stupid bag and go closer to what they wanted. Hope this helps. Good luck to everyone
Dave

debbiejeanne's picture
debbiejeanne
Posts: 2275
Joined: Jan 2010

hi, Chef. I"m sorry you're in so much pain and I will pray for you as I always do. How did court go? I hope everything went the way you wanted it to. You have enuf on your plate w/o worrying about your mean X...lol. I pray you are feeling much better very soon.

All, I am 21 weeks post rad trmnts. My tastebuds had come back for a while but are messed up again now. My hands shake really bad sometimes, I feel hair on my cheek when it isn't there, my pupils are very big and stay that way all day, i become very dizzy several times and day and ofter stumble (like a drunk) when I walk. Have any of you experienced these things? I am not sure what to think but it is becoming a real hassel. It is bringing me down and making me wondering if I'll ever get to the point where I feel half way normal. It seems like each new day brings a new side effect. It is honestly dishartening.

Thank you in advance and God Bless!
Debbie

thegirlfriend's picture
thegirlfriend
Posts: 147
Joined: Sep 2009

Hi Debbie,
my boyfriends issues are similiar. He still doesnt have his taste back or saliva, but he notices that his hands shake alot more than before. im wondering if its because of all the muscle mass that he lost. i didnt notice his pupils bigger at all. he has very bright blue eyes so i think i would have seen that easily. I live 500 miles away from him so i dont see him everyday. this has made it much harder for me to know all the facts of his cancer and treatment and after effects. He has gotten dizzy several times when getting up too fast from a sitting position usually. But at least those things arent like the pain that can be felt.
Not sure what else I can offer, but you arent the only one with those added side effects.
he is 18 1/2 weeks post treatment for SCC in his jaw I think is where it was. only 1 tumor was found and its totally obliterated with no evidence of any more cancer. Just trying to recover from his treatment.

Kathy

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

Glad that you started a new thread. Cannot pull up any lengthy threads between this site that crawls, and my cruddy DSL connection.

I hope that you can figure out the food thing. I am not sure if I told you that I also supplimented my canned nutrition with baby food, and activia yogurt because I was having trouble with getting enough potassium, fibre, and calories. If it was a little thick, I would add some water, or put the baby food in with the canned formula. Sweet potato, banana, and squash were the ones I used most.

I was on 75mcgs of fentanyl, and at the peak of the pain I would not want to know what it would have been like without it.

Hang in there. Still praying for you.

Kent Cass's picture
Kent Cass
Posts: 1746
Joined: Nov 2009

Iodine in the Jevity, Chef? If you have a PEG, you got the system in place. Had not thought of baby food, but the Gerber route might be worth looking-into. I used 4.0 Jevity for some 8 weeks, and ate nothing, and lost some 17% of my body weight. Not sure if you could find something you could put into a blender that might help. Structure of the PEG as it is, one can't get away from the liquidity form. Was told, early on, that if I ran out of the formula, that Ensure or Boost could tide me over until I got the formula. Hope things get better for you, Chef.

As for the pain(s)- morph and magic mouthwash, and minor-dosages of Xanax, got me thru the worst of it. And, when not on the morph, then I did use chopped-up Vicodin. Would not advise anyone to use the morph, but remind everyone that one must do what is necessary to make it thru the treatment battle. Getting thru it all is Priority-One, when in treatment. And, people, this is C. Not sure about the fentanyl patch thing. Seems the hands-on morph doseage is something one can have better control of.

Did get the Flourouracil, too. My treatment was different from any others that I know of: 96-hours of Cisplatin and Flourouracil in two pumps w/bags at the start of weeks #1 and #4, while getting the full H&N rads. Was incapable of any rads in weeks #5 and #6, with a hospital stay in #6. I always figured it was the combo of Cisplatin and rads that did the number on me, but it mighta been both the Chemo meds with the rads, which includes the FU5.

Hope you can find what you need for nutrition, Chef. Can one grind-up one-a-day multivitamins? You gotta get the nutrition into you, my friend. Hope you can find a way.

Believe.

kcass

Hondo's picture
Hondo
Posts: 5648
Joined: Apr 2009

I hope things are going a little better for you today then they have the last few days. I lost one of my best friends yesterday that I have worked with for many many years, somehow while driving to work his SUV flipped over and through him out killing him on the spot, he was only 55. I get so tired of this life of sickness and suffering and having to see people I care about go through trials that sometimes seam so unnecessary. Please take care Mike I want nothing more then to someday be able to meet you and your children, I hope and pray everyday for you my friend.

Skiffin16's picture
Skiffin16
Posts: 8057
Joined: Sep 2009

Sorry for the loss of your friend Tim....

John

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

Very sorry to hear about the loss of your friend, Hondo.

Chefdaddy
Posts: 164
Joined: Dec 2009

Hondo, I'm so terribly sorry for your loss of a good friend. I too feel the same way about all the suffering and losing people we care about. There is little I can say to you at this time that will pick you up other than I know your strong faith in God will help in buffering some of the pain.

Call me if you want to talk my friend. Anytime!

Mike

pk's picture
pk
Posts: 192
Joined: Aug 2009

Thinking about you at this time of loss. My best friend died 3 yrs ago from complications of MS. I miss her and think of her everyday. We are so blessed to have these great friends in our lives. They love us and support us, and when they are gone there is such a void. Take care.
Phyllis

Chefdaddy
Posts: 164
Joined: Dec 2009

Hi everyone,

I finally have internet!!!!!

Here's an update.

This morning I awoke to the worst pain I've felt in my mouth and throat so far, it put me in tears before I could get out of bed. The Magic mouthwash didn't work and then I went to the straight Lidocaine, but that didn't phase it either. The Fentynal patch did nothing as it was a lower dosage.

Later, when I arrived for my radiation treatment I told the technician of the pain and when the procedure was over I was told to wait as the nurse wanted to see me. She examined my mouth and then had the doctor come see me. After he did his inspection of my mouth he told me that I was very cooked and if I couldn't get the pain under control he would have to stop the radiation treatments. He then told me to wear two patches and then he called several pharmacies looking for Fentynal lolly-pops on a stick. It turned out that the pharmacy there at the hospital had them in stock. They are extremely fast acting and strong.
He told me to suck on one for about 10 minutes to see how it was affecting me, it took me about three minutes and I felt it kicking in so I stopped. Amazing stuff!

As far as the PEG food problems, the nutritionist for the company that supplies the canned
PEG food called me to inform me that they could not find any that didn't have Iodine, but they were still researching it. I bought several jars of baby food and I'm trying it watered down a little bit so it will flow through the tube. They are also hydrating me everyday now, 2 liters, I think I'm going to grow gills! LOL

My gums are very swollen now from the cooking, as well as from the bone chips trying to work their way out, I can no longer close my mouth. A new radiation technician was putting my mask on me and it wasn't going down smoothly, so she started hitting the mask to force it down, which was also hitting my swollen bleeding lips and gums. I became rather rude at that point.

I'm hoping that the baby food will work until they can find a pre-made canned food for the PEG.

Take care everyone, and have a great weekend.

Your friend
Mike

Scambuster's picture
Scambuster
Posts: 975
Joined: Nov 2009

HI Chef,

I posted previously but not sure if you got it. I used Vitashake to get me through as couldn't tolerate anything the Hospital had or even the hospital 'Nutritionist ' had specially made for me.

I found Vitashake myself in a desperate search & luckily they had a distribution centre in HK where I was treated. I hate the fact it is a Multi-level Marketing outfit BUT it kept me alive for the 2 months I couldn't eat. I still take one a day and haven't had a cold or flu since and apart from my Saliva i feel great.

It's all natural so you should have no adverse reactions to it.

My wife joined as a member so we get the 20% discount so it's about $2USD a feed and will give you about 200 calories. I mixed with Rice milk and got an extra 200 Calories there. 4-5 feeds a day through your Peg will keep you alive and well.

My Chemo Doctor (arrogant twit) thought it was garbage and even though my weight had stabilized (I lost 44 lbs) and i was doing fine, insisted I get a PICC line jammed up through arm into my jugular. It went horrible wrong as it kinked somewhere in my shoulder and I damn near died until they pulled it out. Nurses were highly p%$ed off with the doctor. He backed off after and I survived on this stuff till well after treatment. You can read about what's in it >> http://www.besthealthfoodstore.net/sunrider_vitashake.html and also find a place to buy it. It worked for me. You need to get something going Mike so this may be a good option.

Hang in there.
Scambuster

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

I am so sorry to hear that you are still having so many problems with being able to control the pain but glad to hear you found the lollipops!! Does it make you feel like a little kid again?? When I was little the doctors used to give us lollipops at the end of our check ups if we were good - LOL

I wish I could make a suggestion for some type of liquid supplement that would help you but I have no idea what ingredients are in any of them. Please be careful of any products you may buy OTC as I have read that some of them are actually harmful to you if you are undergoing treatment. Don't give up, I'm sure either the nutritionist at the company that supplies your canned food or your doctor will find something that will help you.

Take good care of yourself and keep sucking on those lollipops ;-) I know you are probably tired of hearing people tell you that it will get better - but it will. It may seem like it's taking forever but you will get through this.

You and your children are always in my prayers.
Glenna

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

I am glad that the lollipops worked for you. At the height of my pain I tried to take a tsp of liquid vicoden or something when I was on my 75mcgs of Fentanyl, and felt like I was overdosed. I did not try that again.

I am glad you got some baby food, but that may not be enough cals and vitamins for you. I hope that they find you some thing quickly. I also had to have fluids a few times.

Hang in there.

Hondo's picture
Hondo
Posts: 5648
Joined: Apr 2009

I wish there was a way I could take some of your pain my friend, I am glad to hear you were able to get some relief from the lollypop. In my last few weeks of treatment all my wife could get down in me was some very watery grits and Oatmeal and boy it hurt with every swallow, but I remember her just sitting there and giving me the encouragement I needed to keep moving forward. Sometimes the only thing we can do to help is to encourage our brother and sister who are fighting the battle to keep moving forward. Right now you are in the middle of the tunnel Mike and it seams dark on both ends, while in pain it will be hard to see the light showing you the end. But listen and you will hear the voices of your many friends calling you to keep moving forward.

Take care mike your many friends are all here to encourage you.

ratface's picture
ratface
Posts: 1232
Joined: Aug 2009

Amen!

Chefdaddy
Posts: 164
Joined: Dec 2009

Hi Debbiejeane, Scambuster, Glenna, Sweetblood22 and Hondo:

Hi Debbie,

No court yet and I'm a little ticked with the kid's attorney for not telling the judge early on what the ex had done. I'm assuming we are going to court on the originally set date of the 22nd of this month.

Debbie did you have chemo as well? I ask because of the neuropathy it can cause. They chose to give me Erbitux instead of the regular chemo due to the severe neuropathy in both my legs, feet and hands. I have no feeling in them and now that I am on Fentynal walking has become more challenging. The dizziness I have from the nerves that were affected when the removed my right lymph node. It messed up the band of nerves that goes from the jaw up to the ear and now the radiation has made it worse. I lost hearing in that ear and gained piercing pain.

I would suggest to have one of your doctors refer you to a neurologist, as most of your symptoms appear to be somewhat nerve related.

My prayers are with you my dear.

Scambuster,

I looked up Vita-shake and finally found the ingredients and it has iodine as well.

Thanks anyway.

Hi Glenna,

Thank you for your continued prayers and encouragement.

Hi Sweetblood,

I get "overdosed" really easy so I have to be very careful. The top halves of both my lungs were burned in a chemical exposure 30 years ago and all pain medications drop my o2 intake fast to dangerous levels.

Hi Hondo,

How are you doing? I am so very very very tired of this.

Did I mention I'm so very tired of this? lol

I truly am so very tired of all this as it makes tending to my son's emotional, physical and psychological needs extremely difficult.

Please continue keeping him in your prayers.

PS. The "lolly-pops" are giving me Po-Boy dreams! LOL

Your friend

Mike

Skiffin16's picture
Skiffin16
Posts: 8057
Joined: Sep 2009

Thanks for the update Mike...

I'm glad that at least you have your internet connection back.

Stay strong, we're all pulling for some relief for you bro....

JG

Dazey
Posts: 86
Joined: Sep 2009

or my thought of food - I never had a peg, but if you are able to do baby food through a peg, could you, perhaps, get a "MagicBullet"appliance and puree/liquefy things like Progresso soups and put through the tube? You could also puree crushed vitamins into it, as well as soy proteins. Just a thought and as I said, I did not have a peg, so I know nothing about them.

Please know that there are many who are rooting for you and that old friends and new ones will help you get through this. Dazey

debbiejeanne's picture
debbiejeanne
Posts: 2275
Joined: Jan 2010

Chef, thank you for replying as busy as you are. I wish there were a physical way I could help you. You just have so much going on all at once and it breaks my heart.
I'm very glad to see that you can still get in some humor tho! Take care.
God Bles,
Debbie

debbiejeanne's picture
debbiejeanne
Posts: 2275
Joined: Jan 2010

Hondo, I'm very sorry for your loss. I know how hard that is b/c I lost a best friend to colon cancer 5 years ago. He was only 48. It is hard to accept but eventually we come to grips with it b/c we have no choice. I will continue to pray for you and your friend's family.
God bless,
Debbie

Chefdaddy
Posts: 164
Joined: Dec 2009

Debbie,

There is a way you can help me physically....PULL THE TRIGGER NOW! LOL

I truly appreciate your concern and prayers, you are a very caring person.

Your friend
Mike

Dazey,

I need something like that, my blender is dying and the food processor is old and worn out like me. It's funny though, the last few stores I went to that usually carry those appliances didn't have any on their shelves. I'm going to have to look harder to get food blended down enough to get through a small orifice.

Thank you

Hi John,

Yeah finally huh?

I'm really happy for you to get such great news.

Take care my friend

Mike

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

you really need to get a food emulsifier. a regular blender did not get the food pureed enough. i have my healthmaster one, and it works great, but it was not cheap. maybe you can find a used or cheaper one on ebay or amazon? i bought it new, and i think it was $250. but i tell you, you could put a brick in that sucker and it would grind it to dust. i love it for my home made apple sauce. my friend uses hers for her tomato sauce that she cans. you don't need to boil them and slip the skins off. just throw them in whole and whiz them up! great time saver.

Chefdaddy
Posts: 164
Joined: Dec 2009

Hi Sweets,

How are you doing? You were on my mind a lot today while I was at the hospital all day.
I was thinking about several of your posts that I have read and what you have gone through between family loss, divorce, treatment pain and the blood issue. My heart goes out to you my dear.

I was also thinking about you today while on the way home because the top of my mouth began screaming in pain and I realized it was now covered in sores. I remembered what you said about what happened to the top of your mouth while driving home. Gives me goose bumps just thinking about what you went through. I think you are one tough gal!

I know I need to find one of those emulsifiers, as you said, anything else just doesn't do the job. My mom used to make incredible apple butter. The store bought stuff in a jar doesn't come close.

I appreciate your friendship and I am praying for you.

Your friend

Mike

Hondo's picture
Hondo
Posts: 5648
Joined: Apr 2009

Another week is gone and so you are another day closer to the finish line my friend, I was gone the last few days traveling to my friend Rusty’s funeral so was not able to post much. I hear of all the pain you are going through Mike and I want to tell you it will get better. The pain that we suffer now will only make us stronger and better people to help others who are hurting. I am looking forward to that day wend we will all sit around and laugh and cry of the days that are passed “Hope it is while we are fishing with John in Tampa”.

To all of you here on Head & Neck

I am glad to be a small parts of a big team of people who care so much that you each give your time in staying here on CSN to help our friends who are going through treatment. Even we survivors need a little help at times and it is a blessing to have the prayers of friends with us wend we need it the most.

Gods blessings to each of you

Chefdaddy
Posts: 164
Joined: Dec 2009

Hi Hondo,

I figured you were taking care of personal business my friend.

Fishing sounds so good. Heh, and we could throw a couple doctors on the BBQ! lol

Okay, so maybe I shouldn't be one that helps others lol

Talk to you soon

Mike

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

Sorry that's the way you had to think about me. :( I really wish that those of us that have gone thru radiation before you could take the pain for those that come after us. As bad as my mouth still hurts now, at least it's not bleeding constantly now. And the pain is a tenth of what it was. All of you that are going through treatment, hang in there.

Mike, I had never seen apple butter until I moved to PA. We Sicilians never made any of that. My ex like to eat it, and his mother made it. Not really something I cared for. There are actually a lot of foods i never saw until I came here. Pickled eggs, whoopie pies, shoo-fly pie, scrapple, (EEEEWWWW!) ham and green beans, chicken corn soup with rivels, raisin filled cookies, chicken and waffles, and 'pot pie'....etc. The last one is noodles, and not a pie with crust. That confused me. His family is Pennsylvania Dutch, and we have a lot of Amish here.

Thanks for the kind words. Praying for you and your family.

Blessings,

d

Chefdaddy
Posts: 164
Joined: Dec 2009

Hey kiddo,

Sicilian? Molto buono! I hope you have some good recipes I can borrow. lol

Alright, you have me on some of those items, like whoopie pies, shoo-fly pie, scrapple, rivels??(what the heck is that?) and pot pie with noodles?? I have no idea what that is. lol

Your very hungry friend

Mike

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

I would share any recipe with you, LOL. I had almost 300 cookbooks at one point in time. Had to leave most at the farm when I left. I really wish I could eat. grrr. I make a mean hand made chicken tortelini, awesome bolognese, and many other italian dishes. :( Maybe one day, I will be able to eat, swallow and taste.

Whoopie pies are like Devil Dogs. Chocolate cake with creme filling. Shoo-fly is a molasses and brown sugar pie with crumbs on the top. Usually 'wet bottom' is made here. Very goopy on the bottom. Scrapple is all the nasty parts on a pig, like the head, after slaughter, boiled and mixed up with cornmeal and spices, and pressed into a mold like a bread pan, like a terrine or pate. It sets up, and then they slice it and fry it. Some people put maple syrup on it. gag. Rivels go into soup. They are sort of like spaetzele in a way. They are made with eggs and flour, and look like little cut up bits in the soup. And the pot pie with noodles is actually really good, but should not be called 'pie' if there is no crust. It is sort of like a chicken and dumpling dish. But they make the noodles instead of dumplings, like a thicker, square, big piece of pasta. Or you can buy them in the store as 'pot pie bows', but they are not anywhere near as good as home made.

Here endeth the cooking lesson for today.

d

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Hi Sweetblood, almost had to run off to the bathroom when I read your description of what Scrapple is!! I think I'm still a little green - LOL. I'm familiar with whoopie pies but none of the other foods you mentioned. Sorry, I'm from NH and I think I'll stick with our foods - New England Clam chowder, Homemade Beef stew and many, many more delicious foods.

Gotta go, I just thought about scrapple again and have to run off to the bathroom one more time - LOL

Take care all,
Glenna

stevenl's picture
stevenl
Posts: 587
Joined: Jan 2010

Hey sweet,
Now Shoo Fly, unlike Scrapple, Is gooood sttttuuuuuffff.
Everyone should try some.

Steve

D Lewis's picture
D Lewis
Posts: 1521
Joined: Jan 2010

Here's hoping you'll be eating again some day soon!

warmly,

Deb L.

Greend's picture
Greend
Posts: 679
Joined: Feb 2010

I spent three years on the heel of the boot - Brindisi - and you brought back great memories. The tortelini was winderful.

Denny

thegirlfriend's picture
thegirlfriend
Posts: 147
Joined: Sep 2009

my boyfriend is from Buffalo, NY and so he is very familiar with many of those foods.
He told me what scrapple was just recently!! He loves to cook and has tons of cook books as well.

Kathy

Fire34
Posts: 350
Joined: Feb 2010

Mike
What kind of chemo are you on. I was given 5FU and that gave me the mouth sores. I was given diflucan daily and it did help the sores. I was also on Erbitux that just gave me the really bad acne. The magic mouthwash only helped a little for me, but seemd to work better the worse things got. Stay strong Mike
Dave

Fire34
Posts: 350
Joined: Feb 2010

Mike
What kind of chemo are you on. I was given 5FU and that gave me the mouth sores. I was given diflucan daily and it did help the sores. I was also on Erbitux that just gave me the really bad acne. The magic mouthwash only helped a little for me, but seemd to work better the worse things got. Stay strong Mike
Dave

Chefdaddy
Posts: 164
Joined: Dec 2009

Hi Dave,

I'm getting Erbitux and with a few side affects. One annoying side affect is that all my finger tips have open splits that are very painful and bleed a lot. Due to a different condition, I have no feeling in my hands and feet in the surface nerves, but if I get cut deep enough I feel pain.

Another is the sores that are all over my scalp, face and chest.
I also have blurred vision, mostly in one eye though, so the doctor is having my eyes looked at to see if they cooked my retina.

I was using the Magic mouthwash but I would feel ill after swallowing it and then I learned it has Benadryl in it, which I can't have so I use straight Lidocaine now. It numbs the mouth pretty well but it doesn't stop the throat pain. The doc said I'm cooked pretty bad though. He said he might stop the radiation so my throat can heal up a little bit.

Take care my friend

Mike

Chefdaddy
Posts: 164
Joined: Dec 2009

Hi Sweets,

Well, it's obvious we need to open an Italian eatery! No Scrapple though! lol

I too had hundreds of cookbooks that were lost between divorce and moving. One that I especially miss was from the early 1800's and was written by a President's White House Chef.

I know what you mean about not being able to eat, but I cook meals for my kids and they are rather spoiled with my cooking. My brother, their uncle, cooks gourmet as well and has been doing it for nice eateries for many years.

Before becoming ill, I installed cooking and baking equipment for restaurants and bakeries. We would have to open one on the West coast though, I hate the cold! lol

Or, we could open one in Florida so we could cook up all that fish that John and Hondo are going to catch.

Thanks for the cooking lesson, I need more for those "foreign" foods. lol

Scrapple, what were they thinking? Some things just need to be tossed and not cooked.

Your friend

Mike

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

"Some things need to be tossed and not cooked", Mike? What, and waste a perfectly good snout?

Teasing - here, we don't have scrapple, we have goetta (pork shoulder and pinhead oats).

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

i hear you, glenna. the first time my ex cooked scrapple for breakfast, i woke up gagging out of a dead sleep from the smell. no thanks.

Chefdaddy
Posts: 164
Joined: Dec 2009

LOL, that had to be an indicator that something was dreadfully wrong with him. Ugghhhhhh, just the thought of the smell....

Ralph signing off

Hondo's picture
Hondo
Posts: 5648
Joined: Apr 2009

I agree on the scrapples, we need Pam and Sweet to join us all in Tampa for a toast of eating Fish and kicking Cancer in the butt.

Chefdaddy
Posts: 164
Joined: Dec 2009

Hi my friend,

What a great "get together" that would be huh!

We were contacted by the Make-A-Wish foundation and they are going to send my son, my daughter and myself to either Disneyland California or Florida. My son has a fear of heights so I'm not sure if flying is a possibility yet. If he thinks he can fly it would be great to go to Florida and maybe hook up together. I understand Disney in Florida is pretty awesome. I've been to Disney in Ca. several times since I was a little kid, but the last time was back in the late 80's.

I was using a small hand mirror with the bathroom big mirror today trying to see what was hurting the back of my neck so bad. I could tell I had big sores just above the hairline on my neck, but when I looked I saw that I no longer had any hair there, it was bald from where it had started on my neck, up to about three inches towards the top of my head. The rad. doc said I would lose a little hair back there, but this is a lot more than a little.

The sores are obviously radiation burns and I've noticed that the muscles in my neck are sore and achy. Did you experience this as well? It looks like one of those 1920's bowl haircuts. lol

Well my friend it's late and I have to take my son to his oncology doc early tomorrow morning before my appointment to get cooked some more.

Your friend

Well done Mike

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