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myxopapillary Ependymoma

hotdoggy03
Posts: 2
Joined: Feb 2010

Hello everyone, Im happily married with 3 beautiful boys and i just found out i have a cancer called myxopapillary ependymoma(tumor in spine). I start radiation tuesday, but i was just wondering if anyone has had this or knows someone who has. Im pretty scared to be goin through this, im young and just wanna get better, this has really changed how i function with day to day activities.

thanx
Stephanie

bgrimaudo1
Posts: 5
Joined: Jun 2014

Hi, I was diagnosed June 30th 2010 after removal of my myxopapillary ependemoma who 1 at l2. It was 1 cm. I had 26 rounds of radiation and have been cancer free since. Does anyone know the reoccurance rate and survivor rate. I was told that in 98%of the time it does not come back. Had anyone heard different

samhutchinson13
Posts: 1
Joined: Jul 2014

Hi, 

 

I found out I had a spinal myxopapillary ependymoma when I was 17 during my senior year of highschool.  I had surgery almost immediately.  I am 19 now but still know so little about what I actually had.  I am doing fine, but am just curious.  Was it cancer? I asked in the hospital and recieved two different answers.  

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