Feb 23, 2010 - 1:57 pm
I survived this rare cancer about a year ago, and I would LOVE to talk to anybody who has/had this or even knows anybody that went through this. I really need some support. I have most of my taste buds back, but my saliva is almost non-existent (I live on Biotene spray, mouthwash, gel, etc.). My biggest problem is still not being able to swallow. I can only eat things with a lot of butter, condiments, etc., and must have a lot of water to swallow it down with. I can barely eat beef, chicken, pork, etc., and forget about breads, cookies, crackers, etc., unless they are smeared thick in butter. I can get some pasta down with tons of sauce, but even that's hard. I just want to swallow again. Is there anyone else going through this whose shoulder I can cry on? I promise you can cry on my shoulder right back! I found the CSN site just recently while looking for answers to my current problem -- breast cancer. Unreal. I feel like I'm a walking target for cancer. Anyway, I put off my PET scan to deal with the breast cancer treatment. Hopefully, I did the right thing. Needless to say, I'm a little overwhelmed right now and just need some feedback. Help!
Elaine in Georgia