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Bile Duct Cancer

cvertz
Posts: 5
Joined: Feb 2010

My wife was diagnosed yesterday with bile duct cancer. I have ready so many testomonials about people who have made the right decisions. I want to know what should our next step be, we are already looking for a second opinion but with so many out there it is hard to find the right one. We are currently living in Illinois but are willing to go anywhere we can to get the best treatment for her. She is only 26 years old. If anybody has any information that would help our situation it would be greatly appreciated.

HES4C
Posts: 1
Joined: Oct 2009

I'm so sorry to hear about your wife's diagnosis. My husband was given the same diagnosis about 6 months ago and is currently receiving chemo. Consider taking your wife to one of the major comprehensive cancer centers. Here is a link to the National Cancer Institute's list by state http://cancercenters.cancer.gov/cancer_centers/cancer-centers-list.html#IL. You may also want to look into clinical trials. The Institute has a searchable database at http://www.cancer.gov/clinicaltrials. And their overview of bile duct cancer is at http://www.cancer.gov/search/results.aspx. In our experience, doctors who deal with pancreatic cancer are the ones who are most knowledgeable about this disease. Wishing you strength and courage in the days ahead.

Tina Blondek's picture
Tina Blondek
Posts: 1561
Joined: Nov 2009

Hello,
Welcome to our csn family. I am a caregiver for my dad, Ray, 71 beat ec cancer in March 09, now has mets to his liver. He spent 8 days in the hospital the week before Christmas with a blocked bile duct. Had surgery to place a stent in blocked duct. Also has tumors on his liver. He is now taking an oral form of chemo called xeloda. So far so good. This chemo worked for his ec cancer. I am so sorry to hear that your wife is going through this at such a young age! Get all the info you can. Hes' post should help tremendously. Definitlely take her to the best cancer center you can. One that specializes in liver cancer would be the best. Coming to this site will prove to be a great asset to you both. These people have been there and done that. Keep us posted. Hugs to your wife.
Tina

cvertz
Posts: 5
Joined: Feb 2010

It is good to hear that the chemo is working on your father. We are currently taking her to the University of Chicago and the Mayo Clinic. I am glad that there is such a site to help us get information from people who have been fighting this disease and are winning. Thank you for your time.

rowena32
Posts: 18
Joined: Dec 2009

I, also, have bile duct cancer. I have had radiation and chemo. I finished both the first of November and have just been watching the blood tests. Last month the CA-19 got down to 1525 but yesterday. a month later, it is up to 4074. I have a call in to my doctor to see what the next step will be. It was so nice not having treatments for 4 months, but now I am afraid it has given the cancer a chance to grow. The chemo and radiation did not shrink it but it did not grow while I was having treatments. Tina, what is ec cancer? Does the xeloda seem to be working? I had a metal stent put in my bile duct last July when I was diagnosed with the cancer. Have you heard of any success with photodyamics? I live in California and plan to go to UCSF. Hope I am making the right decision.

Tina Blondek's picture
Tina Blondek
Posts: 1561
Joined: Nov 2009

Hi Rowena,
I know you are making the right decision! EC stands for esophageal cancer. The xeloda did work for the ec, now we are trying it for the liver cancer. This time around, dad is having alot more side effects. He has 3 more days of treatment, then will have a pet scan to see how well the chemo worked. My dad also has a metal stent in his bile duct, as well as his esophagus. I am not familar with photodynamics. Best of luck to you.
Tina

rowena32
Posts: 18
Joined: Dec 2009

I hope your dad's pet scan will be a good one. It will be great if the xeloda will work as well with the liver cancer as it did on his ec. I will ask my doctor about the xeloda as my veins are not holding up. If and when I start chemo, again, I will probably have to have a "port". I have heard good and bad things about having a port. Let us know the results of your dad's scan.
Best wishes,
Rowena

mrslar
Posts: 9
Joined: Mar 2010

I pray for each and every one of you. My brother, who is 43 years old, had a Whipple's procedure at Johns Hopkins on Monday and should come home this Monday. We do not have his pathology reports back, but a previous scope indicated the tumor was cancerous. Until we meeting with the doctor on Monday, we are unsure as to his method of additional treatment post surgery. This is all very scary and makes you realize what a gift each day is.

mrslar
Posts: 9
Joined: Mar 2010

I pray for each and every one of you. My brother, who is 43 years old, had a Whipple's procedure at Johns Hopkins last Friday and should come home this Monday. We do not have his pathology reports back, but a previous scope indicated the tumor was cancerous. Until we meeting with the doctor on Monday, we are unsure as to his method of additional treatment post surgery. This is all very scary and makes you realize what a gift each day is.

cvertz
Posts: 5
Joined: Feb 2010

Thank you for your comment. We are currently working with doctors from both the Mayo Clinic and University of Chicago. I am sure we will be starting her chemo shortly. I will definately look into these websites that you gave me. Thank you for your time and consideration.

renatka
Posts: 7
Joined: Jul 2010

could you please tell me what the Doctors from Mayo Clinic said.I have the same cancer.I'm with Northwestern but considering go to Mayo.

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