CT's are all clear
I have done 5 cycles of doxil and after the lowering the dosage to 30mg x m2, last cycle I had no side effects at all. I have talked my doc into adding the carboplatin to it, so on Wednesday I will receive my 6th doxil (30 mg x m2) with the carbo (AUC 5). It seems to be a common thing in the US, they have yet to use doxil with another agent here yet. I have done some research and it seems that the trials have only gone to the 2nd phase, although many docs are using it, with success for their patients. I have also received good second opinions from my docs in the US, and carbo was one of several chemo's that they recommended for me.
I am curious to hear from those of you that are/have used doxil/carbo with any success.
Meanwhile, I am counting my blessings today.
Love to all of you,
kathleen:)
Comments
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clear ct
I'm so happy for our news in regard to the ct scan. I think I'd have mixed feelings too about the pet scan. Maybe if you are not having symptoms though..why bother? And another thought is that the chemo should hopefully shrink it anyway. Maybe if you knew where the areas were you would obsess on those areas ... that is what I'd probably do!!!
I have not been offered the doxil/carbo combo. I receive my treatment at sloan kettering and I like to think they are leading the way in cancer care.
I too (try to) count my blessings daily!0 -
great news
Hi Kathleen, that is awesome news :-) about the ct scan. You know them buggers are pretty microscopic if they aren't showing up. I think everyone I know on doxil has had it as a single agent, will be interesting to watch replies and your results to see how it goes with carbo. Anyway enjoy the Valentine of clear scans. Hugs ♥ Prayers Bonnie0 -
PETunknown said:This comment has been removed by the Moderator
Thanks gals for your response and support!
I am still torn about the PET, and probably if I were doing more surgery, would do it in a minute. But, according to my Seattle doc and the Japanese one, I have had "adequate surgery". (THat would be 4 in 1 1/2 years, last one being a year ago!) They both agree that if I had an emergency, it would be necessary. I have so many adhesions, that it is very difficult to even open me up. I tend to agree. I do have a couple other docs that might weigh in on the other side, and have yet to contact them. That is another story for another day......
On the other hand, if my CA goes down to the normal range, I probably will get the PET to determine that I truly am NED. I dream about that day, and do still have hope. Miracles happen everyday!
Happy Valentine's Day!
Kathleen:)0 -
Hi kathleen,kayandok said:PET
Thanks gals for your response and support!
I am still torn about the PET, and probably if I were doing more surgery, would do it in a minute. But, according to my Seattle doc and the Japanese one, I have had "adequate surgery". (THat would be 4 in 1 1/2 years, last one being a year ago!) They both agree that if I had an emergency, it would be necessary. I have so many adhesions, that it is very difficult to even open me up. I tend to agree. I do have a couple other docs that might weigh in on the other side, and have yet to contact them. That is another story for another day......
On the other hand, if my CA goes down to the normal range, I probably will get the PET to determine that I truly am NED. I dream about that day, and do still have hope. Miracles happen everyday!
Happy Valentine's Day!
Kathleen:)
It seems you
Hi kathleen,
It seems you had a good valentines day!
After my cancer recurred for a second time,my oncologist had me do the doxil, carbo and avastin (avastin is a research study drug for women with recurrent ovc).
The treatment was very intense because of the three meds, but if definitely kept asymptomatic for 6 months. The doxil was my higher dose (about an hour of it), then my carbo was administered (for about 30minutes) and then the avastin for 1 hour.
I suffered with the gum/mouth sores and hand and foot syndrome with the doxil. (They call doxil "the red devil", because it looks like a red kool-aid drink in the bag). LOL!
Also, for me when they first administered the doxil, my heart did this funny kind of rapid beating (which scared me). So they stopped it, gave me a few minutes and restarted at a slower flow and everything was fine after that.
I say every opportunity you have to fight this disease, pleasssse do so. If I had the option to afford the pet-scan I would do it, so I just rely on the cat-scan and pray, pray, pray.
Sharon0 -
Hi Kathleen
I am pleased to hear your CT scans have come back clear. Hope everything works out for you. Love and best wishes tina xxxx0 -
HerniaMK_4Dani said:WOO HOO
Kathleen,
So glad to hear good news about your clear CT. WOO HOO HOO!
Life Is Good, Never Give Up
MK
Hello all I am new to this sight.... In remission 6 months and now dealing with a hernia.. My scats and all cam back negative but my stomach looks like I am 8 months prego..... has anyone had a hernia......0 -
Carbo/Doxil
Hi Kathleen,
That's what I'm on right now for my 1st recurrence. I've only had one infusion, and, I have to say, it was worse for me than the carbo/taxol in one way -- nausea. I don't have the bone pain I had with Taxol, but I was very nauseated for over a week. I have my next infusion next Tuesday, so I haven't gotten too far into it, so I don't have any results to report yet.
Have you had hand/foot syndrome yet? I haven't yet. But it seems just about everyone gets that.
Marty0 -
HerniaLisa Jean said:Hernia
Hello all I am new to this sight.... In remission 6 months and now dealing with a hernia.. My scats and all cam back negative but my stomach looks like I am 8 months prego..... has anyone had a hernia......
Lisa Jean, I have a very small hernia right where they cut for my surgery. It's very sore to the touch, but there's no bulging or anything. They haven't talked about having to take care of it, so it must be very small. I'm sorry to hear about your hernia. Have they talked about surgery for it? I'm sure you really want more surgery! Not! Let me know how it goes.
Marty0 -
side effectsMawty said:Carbo/Doxil
Hi Kathleen,
That's what I'm on right now for my 1st recurrence. I've only had one infusion, and, I have to say, it was worse for me than the carbo/taxol in one way -- nausea. I don't have the bone pain I had with Taxol, but I was very nauseated for over a week. I have my next infusion next Tuesday, so I haven't gotten too far into it, so I don't have any results to report yet.
Have you had hand/foot syndrome yet? I haven't yet. But it seems just about everyone gets that.
Marty
So sorry you had all the nausea. I had that with the cisplatin. Not fun at all!
This is my 6th doxil and first carb/doxil. I did have the hand/foot thing, it crept up me after the 4th infusion. After they lowered the dose, I did ok.
I had my first carbo/doxil last Wednesday. I've had slight nausea and some tiredness, but my goodness, the neuropathy has sure kicked up a notch. I have had neuorpathy since June after I finished my second line chemo, cisplatin/gemzar. I keep hoping it will get better, but I think my body needs a complete break from all chemo for that to happen.
Taking it a day at a time,
kathleen:)0 -
when did you have your PETkayandok said:side effects
So sorry you had all the nausea. I had that with the cisplatin. Not fun at all!
This is my 6th doxil and first carb/doxil. I did have the hand/foot thing, it crept up me after the 4th infusion. After they lowered the dose, I did ok.
I had my first carbo/doxil last Wednesday. I've had slight nausea and some tiredness, but my goodness, the neuropathy has sure kicked up a notch. I have had neuorpathy since June after I finished my second line chemo, cisplatin/gemzar. I keep hoping it will get better, but I think my body needs a complete break from all chemo for that to happen.
Taking it a day at a time,
kathleen:)
How many doses did you have before you had your PET? I had 3 doses and have a PET scheduled in 2 weeks. I'm wondering if it is too early for the pet.0 -
no PETnancy591 said:when did you have your PET
How many doses did you have before you had your PET? I had 3 doses and have a PET scheduled in 2 weeks. I'm wondering if it is too early for the pet.
Hi Nancy, I only had a CT (complete bone, pelvic and lung), after my 5th dose. My CA is holding at 132. I have always had PET's in the past, this is the first time I did the CT. I will do a PET in the future, if we need to confirm NED, after the CA comes down. It gets down to the mm range, and will tell you if there is anything there at all. The CT also has a smaller grid, but just isn't as accurate.
Is your CA in normal range?
Kathleen0 -
ca normalkayandok said:no PET
Hi Nancy, I only had a CT (complete bone, pelvic and lung), after my 5th dose. My CA is holding at 132. I have always had PET's in the past, this is the first time I did the CT. I will do a PET in the future, if we need to confirm NED, after the CA comes down. It gets down to the mm range, and will tell you if there is anything there at all. The CT also has a smaller grid, but just isn't as accurate.
Is your CA in normal range?
Kathleen
prior to starting Doxil I was at 15 then to 30. Now, after my second dose, I am at 23. Well within normal range. My reoccurence though was 13mm. It was picked up on a PET after having a clear ct.0 -
Carbo+doxil
That is what I was started on when I came out of remission... It was much harder on me than the carbo+taxol. They dropped the carbo after that and I just got doxil. My neuropathy really kicked in though. I have not had anything since Jan. 6th. My oncologist want to try taxitere (sp) or something like that. I will not have another appointment until Mar. so then I will know. Saundra0
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