Hi everyone! I am so glad to be here!I am in need of some quick help though...
I've had a "pain" in the neck, lol, which started back in June (or before I think) with a dull ache in the lower left thyroid area (if you were looking at me), that of course I ignored, until in October I had to be seen for a small fender bender car accident I was in. My ARNP decided to palpate my neck due to the complaint I had that the pain and hoarseness was still there while she was examining me. She thought it may be a nervous condition called globus... but I assured her it was not. She sent me for an ultrasound, and when my D.O. saw the results he (and the nurses at the office) went up in arms wanting me to go to oncology, but I have not yet been diagnosed so they wouldn't see me, which is reasonable. My D.O. set me up for a thyroid nuclear scan and uptake and referred me to endocrinologist, who did labs, and all of the testing came out fine, all within limits (although I have always been on the low side for TSH). Endo set me up for a FNA biopsy with ultrasound guidance in his office the next week, with ultrasound guidance. The nodule had grown by then from 1.2cm to 1.5cm. The U.S tech saw that the nodule looked as though there was something inside it. When the endocrinologist came in to look at the screen he made a joke about my nodule having a baby, lol.
The FNA came back indeterminate for follicular neoplasm with a possibility of it being adenoma. So, he wants TT due to it being indeterminate. I went to Moffitt Cancer Center 6 hours away to meet with a surgeon specialist who does TT with the robot. I want to do this laprascopic if possible, so I can heal faster. He said I am not a candidate at this time for surgery. He wants to wait 6 mos. and do another ultrasound with a possible FNA. I spent a total of 10 min, maybe with him after driving 6 hours and he says wait, 6 mos! So, before he leaves the room I ask him why I am experiencing pain (which got worse with FNA done over a month before this) and he says wait a minute, no one told him about pain, so he thinks I have thyroiditis and to take Aleeve every day for 6 weeks and let him know. I read in the consult letter he was going to allow other pathologists at Moffit look my biopsy slides over, but I haven't heard anything.
It's been well over 6 weeks, as the visit to Moffitt was before Thanksgiving, and I am still having the dull ache. It wakes me up at night sometimes. I can eat fine, it dosen't get worse, just the same. I can feel it every time I swallow, but it's not difficult to swallow. I am aware of this every day. I suffer from intermittent hoarseness. I know what sinus drainage feels like and this is not it. It is not globus. It is only to the left of my lower windpipe (if you were looking at me). I am extremely frustrated, as I do not have the time with my work schedule to call around for new Dr's who take BCBS of Florida. I am a uterine cancer survivor 2005, and have had to be on HRT since 2006, and had BSO (ovaries removed) in 2007, due to complications. I am fatigued to no end, I have night sweats from time to time, and trust me, my HRT levels are perfect. I wish someone could just tell me what to do. I know I need to have the TT, as I have the 1.5cm nodule in question on the lower pole right lobe and 4mm nodule in the left midlobe in order for them to do the proper pathology. Anyone willing to take this on?
hypoechoic noncystic nodule with vascular character 1.2cm maximum dia. in the lower pole right lobe of my thyroid gland. There is also a 4mm vascular nodule hypoechoic focus centrally observed in the left lobe. The gland is otherwise homogeneous in echotexture and normal in vascularity and normal in size. Thyroid Peroxidase Antibodies <10 (ref. range <35 IU/mL) Thyroglobulin Antibodies <20 (ref. range <20 IU/mL) Thyroglobulin 9.8 (ref range 2.0-35.0 ng/mL)
Fine Needle Biopsy read:
Clinical Data: RIGHT THYROID NODULE DIAGNOSIS: FNA, RIGHT THYROID NODULE: MICROFOLLICULAR PREDOMINANT PATTERN WITH ABUNDANT COLLOID.
MICROSCOPIC DESCRIPTION: It appears mostly microfollicular with nuclear overriding.
Due to the predominance of the microfollicular pattern a follicular neoplasm cannot be totally excluded.
It has been very difficult to find people to talk to with our problem... I have posted to several forums, to no avail. I work for a family practice as a nurse for a D.O. I run at work every day so I never get to take a lunch much less think about me :0)
Thanks in advance...