Feb 05, 2010 - 4:04 pm
Thank you JDuke for starting this new discussion board. I've gravitated to CSN periodically during my treatment but found Anal Cancer discussions going on all over the place under CRC and "Other Rare Cancers". So I've spent time on another site. Good to be back.
I thought it might be nice to start a topic where we can all post our stories rather than follow each separate discussion thread. So here goes:
54 years old; experienced none of the common risk factors other than suspecting HPV (only three sex partners in my lifetime -- only takes one I guess..)
Dx - January 09 Stage I NOMO
Tx - surgery February 09 and rad/chemo April-May 09; 28 fractions radiation with mitomycinC during first and fourth week.
Late effects - hospitalized one week after treatment ended for neutropenia & UTI (common), abscess and fistula (resulted in a fistulotomy Nov09), leg muscle fatigue and low back & hip pain (exercise & yoga help alot). Also, intestinal issues come and go (4-5 x's per day right after treatment--it gets better). Close watch on diet, lots of water and exercise help. No major issues with vaginal or rectal stenosis.
Advise for newly diagnosed - 1. Read NCCN anal cancer treatment guidelines 2. Research on PubMed 3. Check out other discussion boards "Rare Cancer Alliance" 4. Demboro (spelling?)soaks during radiation as soon as skin begins to break down are a must and warm baths and sitz baths are extremely helpful.
I'll stop and welcome others to follow.