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Your Fast Food Favorites?

ratface's picture
ratface
Posts: 1254
Joined: Aug 2009

Hi everyone. So how many of you tell the counter person at McDonalds you are a cancer patient and need two syrups to get those hotcakes down. Luckily they don't normally give me a hard time. I imagine that most of us have had to change their eating habits while eating out as the lack of saliva and swallowing issues becomes the new norm. I wonder if we can amass some favorite places and tips while eating at some of the more well known chains that most of us are likely to frequent. For instance at Mickey D's I can eat the hotcakes and sausage and scrambled eggs. I always have to ask for extra syrup to get the hotcakes down. I can eat the fish without cheese and without the bread. The salads there are doable although the Southwestern dressing is very spicy.

Wendy's- The salad bar and the very tame chili is doable.

Popeyes- The red beans and rice comes with rice on top which is easily removed leaving mostly red beans in sauce to contend with.

So where do you fast food and what do you order?

carolinagirl67's picture
carolinagirl67
Posts: 153
Joined: Jul 2009

My husband loves the chicken soup at Chick-fil-a. Sometimes he eats two bowls. Enjoy

Craig_Griffin's picture
Craig_Griffin
Posts: 32
Joined: Feb 2009

This is an interesting topic. I still crave a lot of fast foods, which I used to eat. However with the advanced stage 4 cancer that I had the taste is not the same long after my treatment. Right now my favorite is the $5 foot long Subway tuna fish sandwich. Most foods that I now eat are softer than before. I really don't mind. -C. Griffin.

Landranger25's picture
Landranger25
Posts: 208
Joined: Nov 2009

(3 months post treatment) I have done Big Mac, Quarterpounder and the Big n' tasty all at McDonalds. 1/4 pound single at Wendy's as well. I have to say they are all what I call "work". I want to eat them but always have a drink handy, small bites and chew very well before sending down the rest of the way. I feel much better at Taco Bell with a Burrito Supreme or Soft Taco Supreme. (no sauce, mild or otherwise!) Chili tastes yucky as does any other tomato based foods like spaghetti. Now it's white sauce with my pasta. Buitoni has several filled pastas that I like and are quick and easy. I can even have Texas Toast with them. I have found I can eat just about anything texturewise as long as I have that drink. Mouth and tongue sensitive to hot. Very careful with coffe and such. I'll continue to keep trying as I feel my throat is better all the time. I still have 9 months to improve according to my Oncologist.

Mike

MarineE5
Posts: 762
Joined: Dec 2005

Ratface,

Nice topic, always good to get feedback from other people on what they can get down without too much trouble.

Wendy's- as you mentioned, the chili is mild enough for me to eat and is good. I can eat the little 5 piece packs of the chicken nuggets, I usually get 3 packs with the chili.

Burger King- I treat myself to the Whopper 1/4 pounder with the largest Chocolate Milkshake they have and biggy fries. The whopper has a messy sauce on it that helps.

Denny's- I have been going there for some time now and they know that I need allot of gravey on my food. Always make sure I have water and coffee. They take care of me great there.

My Best to You and Everyone Here

Hondo's picture
Hondo
Posts: 5927
Joined: Apr 2009

OK. I will tell the truth,

I am a sucker for a McDonald’s Egg and Cheese Biscuit with a hash brown I don’t do it all the time just now and then.

Also love Long Johns fish and more platter.

Landranger25's picture
Landranger25
Posts: 208
Joined: Nov 2009

Right there with you on the fish & more at Long Johnx Hondo. One of my favorites as well.

Mike

micktissue's picture
micktissue
Posts: 432
Joined: Dec 2009

Hi everyone. I know I am in a different place than most of you - I have not yet had radiation - and it is likely I'll alter my position once I'm there, but, as of right now, nothing un-orgainic is entering my system. I am so focused on nutrition that any notion of eating a food that has not demonstrated a cancer fighting or immune system building property is off the menu.

Of course if I am starving to death because I cannot swallow I'll need to reconsider this stance in the short term and consider some of these alternates, but I am focused and motivated on avoiding them at (almost) all costs.

Best,

Mick

carolinagirl67's picture
carolinagirl67
Posts: 153
Joined: Jul 2009

Mick,

I am with you on that. I am a strict vegetarian and am slowly converting my husband. I buy organic for him and try to do the best I can for nutrition. You will see that as your taste changes it becomes very challenging but it is possible. If we do eat out we avoid fast food but he will eat soup from Chick-fil-a. I know you are reading Anticancer, and it is amazing at how much our enviroment & diet really affect us. We can beat this! My best to you. Donna

micktissue's picture
micktissue
Posts: 432
Joined: Dec 2009

Hi Donna. It was opposite with us - my wife is the veg and I was the carnivore. The switch has been easy for me because I believe so fervently that nutrition has played a huge role in what happened to me and so that it will play a huge role in what happens from now on. If your husband has not read AntiCanter, I encourage him to, and maybe have him start with teh short story about Lenny (the guy with pancreatic cancer).

Right now I feel better than I have in many years, and this is after major surgery only 10 days ago. I started my life style change in November and I can see and feel the difference, and not just physically; I feel mentally and emotionally stronger as well.

All the best to you.

NEVER GIVE UP, NEVER SURRENDER!

Best,

Mick

Skiffin16's picture
Skiffin16
Posts: 8103
Joined: Sep 2009

My favorites, although I know aren't the best health wise, even considering the cancer I had....

Burger King Double Cheese Burgers (and they're only a buck)....

McDonalds Steak and Cheese Bagels....

Like Hondo, I like Long John Silvers, especially the Clam Strips and Lobster Bites, although I eat plenty of fresh fish as I go fishing almost every week-end weather dependant.

My wife makes great soups, chili's and stews, but they don't taste very good to me any longer unfortunately. The Chicken Noodle that she make's is excellent and I used to love it, now it kinda of tastes like a bowl of chicken fat soup.....hopefully I'll regain some of that taste back, but so far I haven't.

Another item that she makes which is awesome is spegetti sauce, unfortunately that no longer tastes so great either. But, they're are plenty of things to keep me happy, it's just a matter of learning my new taste.

I don't have very much of a sweet taste any longer, although I do like the Nestles Chocolate Chip and Walnut or Pecan bake and serve cookies with a cold glass of milk. The milk isn't quite as good as it used to be, but it's pretty darn close.

OK, I need to quit this stuff, I'm starting to make myself hungry.....

John

Hondo's picture
Hondo
Posts: 5927
Joined: Apr 2009

Don’t forget the Clam Chowder at Shells

delnative's picture
delnative
Posts: 452
Joined: Aug 2009

I've always been a big one for natural foods. With the exception of chicken, the only meat my wife and I eat is what I've bagged when I hunt, which I do frequently: We live on venison, waterfowl and the occasional wild hog. (As Ted Nugent says, "I like my pork pissed off!")
However, maybe a month after I had completed treatment and was driving home after a visit to my docs at Johns Hopkins, something told me I needed to stop at McDonald's and buy some fries. I hadn't eaten any solid food since my treatment began, my throat still hurt and I had no clue if I'd be able to eat even one fry, much less a large order of them.
I stopped, bought some fries, and man, they tasted good. I haven't set foot in a McDonald's since then and probably won't again (other than to use their restroom) but old Ronald did right by me then.

--Jim in Delaware

Skiffin16's picture
Skiffin16
Posts: 8103
Joined: Sep 2009

Yup, Shells is definitely a favorite, but not so much a fast food place...but when you get into the restaurant catagory, that's totally another subjct LOL....

DelNative, you look like the Fred Bear type, especiually with that hat...not sure if you're an archery hunter or not, but look the part.

I used to hunt a lot when I was a kid and in Ohio. Now in living in Florida for several years, I hunt fish....

JG

Scambuster's picture
Scambuster
Posts: 975
Joined: Nov 2009

While I have thought about doing breakfast at Mc Dos I have resisted and mainly stay on natural foods. I normally start the day with cereal with fruit and my health shake instead of milk in the morning. I then usually have 2 salads a day with Paul Newmans Mustard Honey dressing. I don't reckon the Fast food stuff is too good for us, especially once we stop losing weight and either maintain or start to regain some weight. The only Fast Food I do get is from a juice bar. Sorry no contribution here for FF tips.

It's tough trying to gain weight back but I am now used to my new (or old) slim shape which is about how I was when I was 25. I just bought new jeans today with a 33" waist and i still have a little wriggle room in them in case I do gain a few pounds. I was wearing 37+. I will need to buy a lot of new clothes as I'm over the 'tight belt' on trousers and jeans that are 'too loose' and so will now adjust to the new me.

Scambuster

Kent Cass's picture
Kent Cass
Posts: 1747
Joined: Nov 2009

That is me, Ratface. Every night for supper= chef-type salads, with typical French dressing. I'm in a kick now, of adding sliced black olives, and sometimes even sliced onions to it. Just something about the French dressing that agrees with me, bigtime. Used to be a Whopper fanatic, long ago, but what I now have found tasty are simple Wendy's Jr. Cheeseburgers (not the Bacon ones). Something about them, with the sliced onion and combo of dill, and ketchup and mustard, along with a strawberry shake...a weekend treat, for me.

I used to be a 34, but did get down to a 31 during treatment- am between a 33 and 34, now. Even my Onco, today, acknowledged the fact I've gained 8 lbs over the last 3 months. Would be more, but I seldom drink the Ensure, anymore, as food has gotten much better, over 9 months since my last rad.

kcass

micktissue's picture
micktissue
Posts: 432
Joined: Dec 2009

Scam that is funny. Someone today commented on how good I look! I've lost 18 lbs since changing my diet (no sugars, lots of big leafy greens, mung beans, lean meats, etc.). I have started to gain a bit of weight back to prepare for the rads and chemo (chemo is just a possibility at this stage, but rads are for sure).

The new normal is such a strange thing, isn't it? We're forced by this beast to rethink and retool our priorities and redirect our energies. I do not recommend this protocol for someone who wants to change their lifestyle, but I can honestly say that some very positive changes have happened because of it. This disease may end up *saving* my life. It has certainly saved my marriage, which is another story.

Warmly,

Mick

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

I've never really been a fast food fanatic but I absolutely love McDonalds filet of fish sandwich with cheese. I very rarely eat one because I live in the country and the closest McDonald's to me is a 20 minute drive.

I am a Subway fan though, I love their honey and oat rolls. Of all the fast food places around I think they might have the healthiest foods available. I haven't tried any of their sandwiches since finishing treatment because I have severe dry mouth and don't produce much saliva so any breads are very difficult for me to swallow.

I'm surviving quite nicely on home cooked meals so I really don't miss fast foods much.

Hoping everyone continues to improve and they get great scans!!!

Glenna

Hondo's picture
Hondo
Posts: 5927
Joined: Apr 2009

Almost forgot about the toasted veggie sub at subway, another one of my favorite food.

Hondo's picture
Hondo
Posts: 5927
Joined: Apr 2009

Sometimes it is hard to see the good in something bad; I do believe your focus is in the right direction. I would love to hear your story of cancer saving your marriage; I would also love to use it to tell others but only with your permission.

A positive attitude and a health diet makes for a healing outlook, all the best to you my friend.

ratface's picture
ratface
Posts: 1254
Joined: Aug 2009

Wow, some places I never heard of that don't exist in the midwest. Fish and soup seem to be popular. I'm making some home made chicken soup tonight, It's so cold in Chicago today I just can't get warm. Went to my doctor for bloddwork for a thyroid test to see if that is why I'm freezing. Thanks for the responses, I'm going to try some ot the things suggested. I've lost 40 lbs along the way and generally eat salad, soup, and grains but on occasion when traveling do have to eat out somewhere. Keep the ideas comming.

Hondo's picture
Hondo
Posts: 5927
Joined: Apr 2009

Don’t worry about trying to gain to much weight back fast, its taking me 4 ½ years to gain 22 lbs.

Its 66 disagrees here in Louisianan to day, sunny and just great, but will be freezing by this week-end. I am like you not looking forward to the cold weather, except that is the weather for Gumbo here,and I am looking forward to Gumbo.

Take care my friend and God be with you.

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

Ratface,

For me, during part of my chemo mouth phases, I was able to eat Chipotle's. After unsuccessfully trying to eat chicken and rice with guacamole, I settled on beans and guacamole, and mashed the beans to eat them (workers very kindly didn't charge for the beans when they saw I couldn't eat my dinner). Guacamole's full of MUFAs (good for you fats), and it's nice and cooling and slimey; the beans aren't spicy, so didn't burn. So, I got a fairly decent amount of calories with protein and MUFAs.

Also liked Egg Drop Soup in shopping mall food court - unfortunately, it's high in sodium, I think.

Keep up the (yummy) research,

- Pam

soccerfreaks's picture
soccerfreaks
Posts: 2801
Joined: Sep 2006

If you ARE a meat eater and have problems eating meat, including fish, which is, after all, equivalent to cow meat in the eyes of the fish, I can state from personal experience that processed meat is easier, much easier to eat, than the alternative.

The theory in my house is that the meat, having been 'processed', has already been chewed by something else (we should all try to avoid meat that has been previously chewed by SOMEONE else).

The first meat I ate after head/neck cancer surgery, in fact, was half of a MickeyD cheeseburger (without the bun: bread stuck to the roof of the mouth which is a bad deal for someone with a shorter than average tongue).

(The first MEAL I attempted after that surgery was a huge blueberry cheesecake slice in the hospital cafeteria ... and they have really good food, despite the stereotypes ... I cannot fathom the cajones I had to attempt that then.)

Take care,

Joe

CajunEagle's picture
CajunEagle
Posts: 363
Joined: Oct 2009

After 7 months out from radiation/chemo, I seem to really be into eating chicken. Love the simple chicken sandwiches at both Wendy's and Chick-fil-A. Also get a big Chocolate Frosty at Wendy's. Another favorite of mine is the Big Box Combo ar Raising Canes..(5 chicken fingers, Slaw, Texas Toast and Fries)...but it usually takes me around an hour and 15 minutes to eat it. Grilled redfish and talapia with bernaise sauce do me right also. I'm fortunate to have so many places within walking distance to try something new quite frequently. Geaux Saints !

micktissue's picture
micktissue
Posts: 432
Joined: Dec 2009

Hi Joe. The problem I have with some meat is that is not raised without growth hormones nor without nutritional giudelines that would produce the healthiest meat available to me. I am not a scientist and not really an expert on this subject, but my understanding is that meat produced at fast food establishments is cheaply farmed, corn fed, and non-free range. The cow then is stressed, nutritionally deficient, and injected with who knows what. The omega 6/3 imbalance then, if you proscribe to the book AntiCancer, may create inflammation which may give rise to cancer.

The meat I'm eating is free range, grass fed buffalo. It is extremely lean but I know where it comes from. I have it as steaks or ground (processed). I also eat salmon, but not too much because of mercury contamination.

Best,

Mick

maria2009
Posts: 10
Joined: Oct 2009

Hi Joe
In Britain recently, parents have been urged not to put ham and other processed meat into their children's lunchboxes to avoid them developing a cancer risk later in life. If we as adults contine to eat them, be it so but you would be doing your children a great desservice by encouraging them to develop a taste for smoked, cured or salted meats.

Having said that, I know it is difficult as my teenage son do love the Mcsausage muffin. I live in Canada now and I wish the authorities here would do likewise in UK to put the message across.

MarineE5
Posts: 762
Joined: Dec 2005

Ratface,

Not sure if your on Blood Pressure pills or not, I am, and one side effect of them is cold feet and hands. If my feet are cold, I'm cold. I start wearing longjohns right after Holloween and stop around Easter. That's me though, not sure about anyone else. My wife on the other hand is always warm,that is a good thing : )

My Best to You and Everyone Here

ratface's picture
ratface
Posts: 1254
Joined: Aug 2009

Hi Marine

No I'm not on BP pills and was just at the Doc yesterday and it was fine. I'm suspecting thyroid or just the lost 40lbs are making a differnce. It dosen't help that I live in Chicago. Honestly I don't remember ever being this cold during winter so it must be related to the treatment. My bloodwork should be back by tomorrow checking the thyroid.

I was Army but you marines Rock!

Landranger25's picture
Landranger25
Posts: 208
Joined: Nov 2009

3 months post treatment I only feel slightly cold. (Live on Lake Huron north of Detroit) Got my first lesson in really cold weather while in the Army. (2 years at Fort Wainwright Alaska) When I worked in the field (survey technician) year round I would develope a metabolism that my wife thought was amazing. She said it was like a furnace. On cold evenings there was always a battle to sit with Dad. My daughter, wife and cats to see who would get there first. During my treatment I about froze. It was only fall but I just couldn't keep warm. I dug out my Duofold 3 button henleys (wool and cotton)and have worn them all winter so far. Though I am able to stay warmer since adding 15 pounds back on I am not my old heating self just yet. These shirts are much better than a tee and wear very well.

Mike

Skiffin16's picture
Skiffin16
Posts: 8103
Joined: Sep 2009

Bass Pro has some nice non-button long sleeves for $10....

fishingirl's picture
fishingirl
Posts: 188
Joined: Nov 2009

I have to say, I like the McD's fish fillets. Something about the sauce. lol! I tried one a while back, when I shouldn't of. I really wasn't ready to swallow that well yet. But I sure tried!! Gonna have to try again, now that I am able to eat more things.

And about being cold. I swear, I am cold all of the time! It's a game between my hubbie and I. I will turn the heat up and he'll come behind me and turn the heat down. But not wonder I am cold all of the time. I am 5' and only weigh 95 lbs.! I'm still trying to gain that extra 10lbs that I had on me before radiation.

Cindy

Skiffin16's picture
Skiffin16
Posts: 8103
Joined: Sep 2009

I'm not sure what it is about those fish sandwhichs....before I never cared for them, I eat a lot of fresh fish. But since treatment I also like them. I think part of it is because the cheese and tartar sauce helps them slide down easier..LOL.

John

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

after working for almost 8 years as a GM of a golden arches, that was the last thing i ever wanted to eat after leaving there a few years ago. i have not had it for years and years. once you eat it everyday for that long, well ....gag. now that i cannot eat, every stinking time i see a big mac commercial, i want one. lol. the pizza commercials are killing me too. ah, back to my PEG tube formula.

HAWVET's picture
HAWVET
Posts: 318
Joined: Apr 2006

At first, I could eat tomato sandwiches. My saliva probably is worse after aging. Had my NPC 12 years ago.

When I visit a fast food place, I always order coffee or a small cartoon of milk. The Big Mac or Whopper now has too much meat and is difficult for me to swallow. I dip the cheeseburger or fish sandwich in the coffee or milk. I also have a coke or milkshake with the sandwich.

On submarine sandwiches, I always take them home. I dip it in Cream of Mushroom soup. Am lucky that the finally built a CostCo in the area.

Hondo's picture
Hondo
Posts: 5927
Joined: Apr 2009

Hi HAWVET

I need to know what you been doing to keep your NPC from coming back

HAWVET's picture
HAWVET
Posts: 318
Joined: Apr 2006

Hondo,

Sent a reply to your PM.

Kent Cass's picture
Kent Cass
Posts: 1747
Joined: Nov 2009

Do wonder, hawvet, if chef-style salads played a part in your recovery diet. They are of critical importance to me- I weigh more, now, than I did 5 years ago! Can't get enough of such salads, w/French dressing. Something about them is just so agreeable. Please advise-

kcass

sent you a PM.

micktissue's picture
micktissue
Posts: 432
Joined: Dec 2009

Hi there. Like Hondo, I'm interested in your lifestyle approach.

Best,

Michael

frank10g
Posts: 37
Joined: Jan 2010

Hi everybody,
Finished my radiotherapy and chemo 4 weeks ago for NPC. Wondering when will I get my taste back. Hard to eat when all foods taste the same - bland and dry. I also need to gain back my weight, So far my wife prepares brown rice mixed with beans and steam vegetables + soups for lunch and dinner, eggs, oatmeals and beans + juice for breakfast.
cut up fruits and more juice for snacks. With this diet, I am wondering when will I be able to gain weight. I lost 24 lbs.
To Hawvet, could you also share with me your lifestyle after treated for NPC 12 years ago?
Regards,
Frank

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Hi Frank. Happy to hear you have finished the chemo.

Eating is definitely not as pleasurable as it was pre-cancer but you must keep trying and experimenting with different foods. I'm 4 months post treatment and my taste buds are slowly returning, still not as good as they used to be but at least now I can taste some foods. I still suffer from severe dry mouth so I keep a bottle of water with me at all times. Saliva production is near 0 but my doctors have already told me not to expect this to get any better because my salivary glands were "fried" from the radiation. I guess it's the price we must pay, it's definitely better than the alternative.

I have been able to maintain my weight but was unable to gain any until I started drinking the Ensure Plus again. I drink 2 or 3 bottles a day and have finally managed to gain 3 pounds. LOL - this is the first time in my life that I have had a hard time gaining weight. I'm not crazy about the taste of the Ensure so I just think of it as a medicine I must take daily. I do not eat sweets or junk food, even though they would probably help me gain weight, I prefer to eat healthy, nutritional foods which will benefit me. The Ensure is an additional 1050 calories per day and is quite nutritional.

Hope everything improves for you and you are soon on your way to enjoying eating again.

Stay strong and keep smiling,
Glenna

HAWVET's picture
HAWVET
Posts: 318
Joined: Apr 2006

Thank you for your interest in my life style. I have replied to Hondo and have another request in my PM file. Since there is a couple more interested, I have decided to write a short narration of things I can remember. It was in January 1998 when my NPC was discovered.

Please give me a few days. I will not publish it in this forum. I will PM it to you. I had printed a brief sketch a while back.

For your information, I do not know why my NPC did not return. After you read my story, you can make your own determination. Please do not ask me for recommendations, since sometimes it does not turn out well and people get upset or distrustful. If you ask a question, I will be happy to respond to it.

I believe the best bet is for individuals evaluate what others did and decide for themselves the approach they want to take. Let me give you an example on dry mouth conditions. As the years have progressed, I think mine is worse than before. Like may, we carry a bottle of water, not to drink but to keep the mouth moist. I tried that little Oasis mouth spray (about 4 inches tall). I did not like the taste. One day, I emptied the contents, washed it out and filled it with water. Most of the time, I now leave my bottle of water in the car and carry that spray when at the stores or at the mall.

Kent Cass (reply to your question): Salads may or may not have been a part of my recovery process. Do you remember the old saying "An apple a day keeps the doctor away". Immediately after treatment, I was doing a lot of reading on vegetables, herbs etc. I cannot remember why, but I decided besides herbs, to make juice out of two items. I will include this as part of my story, but I drank the juice of one apple and one carrot every day. In recent years, I probably do it about 15 days a month.

So as not to stray away from Ratface's thread, let me reply on my method of eating pancakes. I place the butter on top before slicing it. I only slice in pieces about a fourth at a time. I then place my syrup on the pieces. It is not enough for my extreme dry mouth so I pour milk and soak it up to the degree where it is moist enough for my chewing and swallowing.

I do not visit this forum as often so while I am on and to...

Glenna M: I recently started Ensure because of my weight problem. I too, do not like the taste. In order to change it, the therapist recommended adding things like chocolate milk, ice cream or coffee. I still do not like it, but to me, it is more tolerable.

Aloha,

Johnny

fsdman
Posts: 51
Joined: Jul 2009

Glenna,
Lack of saliva drove me nuts .My Dr told me about a study called "accupuncture for radiation induced xerostomia".I am not a big alternate beleiver but Anthem would pay 100% for 12 treatments so I found an accupunturist who agreed to follow the specific needle location protocol used in the study..After 3-4 sessions I actually noticed an improvement .The saliva improved to the point where it allowed me to eat far more things without drowning them.The accupunturist ,at my request,also worked on my tongue which always burned. It also helped that alot.Make sure the accupunturist doesnt just stick needles where he wants.Ask himto also treat the tongue and taste buds.It worked for me and greatly improved my quality of life.I still keep my water close but its great to have a little(30-50%)saliva again.Good luck

Kent Cass's picture
Kent Cass
Posts: 1747
Joined: Nov 2009

That is very excellent news, fsdman. Wish I knew of one in my area, but just may explore the possibilty. Again- thank you.

kcass

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Thanks for all of the information, it is definitely encouraging and I am happy to hear it is working for you. My tongue also burns after eating certain foods but assumed it would get better in time or else just be part of my new "normal".

I will check with my onco doc about the accupuncture and see if he feels it would benefit me.

Stay strong and keep smiling,
Glenna

Hondo's picture
Hondo
Posts: 5927
Joined: Apr 2009

If you don’t mind and I hope it is ok to do here on the board it to give us the Name and phone number of your Acupuncturist doc. May be he can make recommendations to each of us of who in out local area can do this type of treatment.

I find that there are two types of Acupuncturist doc one is pain management and the other is disease management. Correct me if I am wrong but I think the disease management Acupuncture is what we need.

Thanks again for your post, like Kent and Glenna I am glad to hear this has worked for you.

Take Care my friend

fsdman
Posts: 51
Joined: Jul 2009

I found the study on line .Just Google "accupunture for xerostomia" It was at www.n5ev.com/cancerxerostomia.pdf. Good luck

fsdman
Posts: 51
Joined: Jul 2009

Hondo,
I posted the web site for the report. I got a list of covered accupunturists from AnthemBC .I would suggest you download the study and send it to whoever you want to use to be sure they follow the protocol.Many accupunturists never heard of xerostomia and want to just stick you with needles.Good luck.

micktissue's picture
micktissue
Posts: 432
Joined: Dec 2009

I've been seeing an acupuncturist for several weeks now preparing for rads and chemo. He has heard of xerostomia (dry mouth) and we've been working on building up my immunity. He is also working on calming my mind, which he does. Every time I go there I leave feeling so calm and peaceful. The needles hurt sometimes, but the benefit is worth the pain.

Best,

Mick

Hondo's picture
Hondo
Posts: 5927
Joined: Apr 2009

Are you doing pain or disease management acupuncture, I am told that there is a big difference between the two. I found a guy here that does disease management acupuncture my first visit was very weird, I expected it to be different but not to blow my mind.

When I found out the guy smokes a lot of many Jane I decided not to go back for fear he would get busted with me in the place with a needle stuck in me.

Is this normal?

micktissue's picture
micktissue
Posts: 432
Joined: Dec 2009

Hi Hondo. Traditional Chinese Medicine (TCM) and acupuncture typically does not treat specific symptoms but looks to treat what is found systemically. For example I am being treated for 'heat'. Some people are treated for a yin or yang deficiency (most people have yang deficiencies or so says Joe Park, my practitioner).

In addition to being treated for heat Joe is doing what he can to restore 'balance' in my body. He doesn't talk much so I'll try and get a more complete answer when I see him on Wednesday. He says all he's doing will boost my immune system and help deal with pain, but it's all part of the systemic treatment of reducing heat and restoring balance.

I know that will not make sense entirely, but I am stronger now that I ever have been and I think it must have something to do with the approach I'm taking, uniting West and East. I am hoping that by continuing this approach, I will get a cumulative effect that will make recovery faster and long term survival more likely.

My surgeon said, once he diagnosed me, that my life would change forever. At the time I thought that was a bad thing. Right now I have strength and hope, so that is a positive change from where I was, even before diagnosis. My marriage has been saved. My friends are numerous and I am happy. If cancer caused that then maybe I need to be more grateful. That sounds strange, but perhaps it is truer than I care to admit.

Best,

Mick

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