Jan 22, 2010 - 11:36 am
UPDATE: just got this email from my Dr:
"Your interpretation is correct [I asked him to clarify what I heard the day before, see below]. It is uncommon to survive distant mets although people do. No 100%'s in medicine. Regional mets (what you have) is a different story. I expect you to do very well and continue to come seeing me for follow up for years to come."
"I received the pathology report. No primary source as we thought. Total of 7 lymph nodes out of approx 50 that had cancer. All were located in the upper levels 2 and 3. 1, 4, and 5 were clean. There was focal extracapsular extension in a few of the nodes. That means it was going outside of the lymph node microscopically in a couple of locations. As such, definitely want to do radiation therapy to the neck."
END OF UPDATE
So from this I can assume a couple of things: 1) that they believe they can treat this regionally, 2) that they caught it in a transitional phase and I have avoided vascular invasion.
Good news, no?
Hi everyone. I had the 2nd of 2 drain tubes removed from my chest yesterday but was told no shower for 3 days - argh! Sponge baths do not become me!
My Dr said something that disturbed me a bit and I wanted to float it out here for opinion. (I sent him a qualifying email on it just now).
He said in my case, if distant mets show up it essentially equals terminal cancer. I was shocked by the statement and he was talking in terms of statistical distribution. From what I understand many on this board have had distant mets and are doing quite well. Up until that point all discussion has been very positive, so now I wonder what's going on. I was too stunned to reply in his office and I'm kicking myself. My wife was with me and she was stunned too! We do not yet have the final pathology.
Anyway, today I'm a little down and I don't really feel like I can afford to be down.
Any opinion or thoughts on this are appreciated.