I am looking for anyone that has more then 90% of there tongue removed due to cancer. My husband was first diagnosed in Jan 2009 with stage 1 cancer and had his first surgery Feb 2009. He had a small portion removed followed by 6wks of radiation to his neck because they also took out his lypmh nodes. He had a peg tube then too. He had lost about 30lbs. He took the tube out in July 2009 and began to eat soft foods again but he had continued pain and discomfort even though his PET scan came back clean. In Sept 2009 they found out that the radiation didn't work and the cancer continued to spread. He was then diagnosed with stage 4 cancer He had 13hr surgery which we thought was only going to be half the tongue but the surgeon said when she went in it was something totally different and she had to make a decision or else if they left it he would become inoperable in 2wks. He had to have his entire tongue removed, 1/3 of his jaw bone and the rest of lymph nodes. He is currently going through chemo and is very sick. He gets better the wk before chemo but then gets sick all over and he has dry mouth and this terrible cough due to mucus. He is back on his feeding tube. The DRs are saying he will be life dependent on it and will probably never eat again. I am looking for any hope out there. We have only been married a year and its very hard to deal and cope with. I am looking for comfort and information.