Bone Metastasis Club

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CypressCynthia
CypressCynthia Member Posts: 4,014 Member
edited March 2014 in Breast Cancer #1
Just wondered how many out there have bone mets: where it metastasized, what meds, how are you doing, pain, etc. I was diagnosed with ribs mets last year and I'm on arimidex and zometa.

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  • m_azingrace
    m_azingrace Member Posts: 399
    #2
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    I have mets to bone
    The bone scan showed mets to my spine, upper left arm and my skull. It sounds bad, but none of my organs are affected, so that's good. My dear brother likes to joke "the brain scan came back negative". I have no pain in any of the affected areas, so the onc assures me that's a good indication that the meds are working. I do have minor side effects from the Femara, mainly hot flashes and slight joint stiffness. Otherwise, I'm doing very well. I'm also getting Zometa.

    We've heard of Club Med...is this "Club Mets" ?
  • babebussie
    babebussie Member Posts: 150
    #3
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    I have bone mets and the
    I have bone mets and the pain is awful. I'm considering accupuncture to see if it helps with this terrible pain. I have bone infusions once a month (aredia), sometime i feel some relief after a treatment and then sometime i feel that the aredia makes it worst. Hell i dont know, i'm going through the motions. I hope you feel better.
  • meena1
    meena1 Member Posts: 1,003
    #4
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    babebussie said:

    I have bone mets and the
    I have bone mets and the pain is awful. I'm considering accupuncture to see if it helps with this terrible pain. I have bone infusions once a month (aredia), sometime i feel some relief after a treatment and then sometime i feel that the aredia makes it worst. Hell i dont know, i'm going through the motions. I hope you feel better.

    i have bone mets to my
    i have bone mets to my spine, T-10. i get zometa every 4 weeks. My pet scan in October showed that it was stable right now. I have some back pain, not too bad. I take oxycodone for any pain. I am so glad you started this post, i have been thinking about doing this. Sometimes, this scares me a lot since i hear some bad things about bone cancer...oops...i dont want to scare you too! Where are your mets to? My doctor said that i will need to get zometa for another 3-4 yrs, maybe the rest of my life, plus the scans. Take care, i will put this in my favorites so we can keep each other up to day. I do know that you can qualify for disability and Social Security for this. I would love to, but I have a 19 year old daughter that i need to carry medical insurance for.
  • meena1
    meena1 Member Posts: 1,003
    #5
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    meena1 said:

    i have bone mets to my
    i have bone mets to my spine, T-10. i get zometa every 4 weeks. My pet scan in October showed that it was stable right now. I have some back pain, not too bad. I take oxycodone for any pain. I am so glad you started this post, i have been thinking about doing this. Sometimes, this scares me a lot since i hear some bad things about bone cancer...oops...i dont want to scare you too! Where are your mets to? My doctor said that i will need to get zometa for another 3-4 yrs, maybe the rest of my life, plus the scans. Take care, i will put this in my favorites so we can keep each other up to day. I do know that you can qualify for disability and Social Security for this. I would love to, but I have a 19 year old daughter that i need to carry medical insurance for.

    Also, where do you live?

    Also, where do you live?
  • babebussie
    babebussie Member Posts: 150
    #6
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    meena1 said:

    Also, where do you live?

    Also, where do you live?

    I live in las vegas....plz
    I live in las vegas....plz email me ANYTIME and we can talk off the board if you'd like.
    babebussie@gmail.com
  • CypressCynthia
    CypressCynthia Member Posts: 4,014 Member
    #7
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    m_azingrace said:

    I have mets to bone
    The bone scan showed mets to my spine, upper left arm and my skull. It sounds bad, but none of my organs are affected, so that's good. My dear brother likes to joke "the brain scan came back negative". I have no pain in any of the affected areas, so the onc assures me that's a good indication that the meds are working. I do have minor side effects from the Femara, mainly hot flashes and slight joint stiffness. Otherwise, I'm doing very well. I'm also getting Zometa.

    We've heard of Club Med...is this "Club Mets" ?

    Club Mets
    I love it--LOL. My mets is in 2-3 right ribs. I wonder about my spine as I had spondylolisthesis (slipped vertebrae not disc) with severe stenosis. I had surgery on my back in Jan 2009. By February, I was having horrible rib pain and ended up in the ER. I was told that I had pneumonia and probable bone mets. I had a rib biopsy in April as my original cancer was in 1987 and we weren't positive what we were dealing with. It came back breast cancer in the 2 ribs that they biopsied. ER+. I had radiation. Now stable on zometa and arimidex. Pain is mostly much better. The arimidex does seem to cause joint pain and neck pain for me, but nothing I can't deal with and much better than the rib pain that I had.
  • CypressCynthia
    CypressCynthia Member Posts: 4,014 Member
    #8
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    babebussie said:

    I live in las vegas....plz
    I live in las vegas....plz email me ANYTIME and we can talk off the board if you'd like.
    babebussie@gmail.com

    I live in Louisiana.
    I'm also still working as my husband will probably have to retire this year and we will need my health insurance. Glad to hear from everyone. It is nice to know that I am not alone.
  • meena1
    meena1 Member Posts: 1,003
    #9
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    CypressCynthia said:

    I live in Louisiana.
    I'm also still working as my husband will probably have to retire this year and we will need my health insurance. Glad to hear from everyone. It is nice to know that I am not alone.

    I also have to work for the
    I also have to work for the insurance, my husband retired 2 years ago. He was able to retire at 52 years old and took it. I am just worried about keeping the insurance since my company is cutting back. I am also stable now, but lately i have been having pain in my thigh. I know, every little ache and I think "CANCER". I go to my oncologist on Thursday. Oh no, more scans! Take care
  • m_azingrace
    m_azingrace Member Posts: 399
    #10
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    meena1 said:

    I also have to work for the
    I also have to work for the insurance, my husband retired 2 years ago. He was able to retire at 52 years old and took it. I am just worried about keeping the insurance since my company is cutting back. I am also stable now, but lately i have been having pain in my thigh. I know, every little ache and I think "CANCER". I go to my oncologist on Thursday. Oh no, more scans! Take care

    Hubbydearest retired in 2005, following knee replacement with complications. I was self-employed, but fortunately our health coverage comes through his retirement, so in 2008 I decided it was time to relax and spend more time with the grandkids. Except for the cancer, things are great! I try to do light exercise daily (sometimes I get lazy), and I think that helps with the stiffness. Hugs to you all. Gracie
  • crissy1234
    crissy1234 Member Posts: 10
    #11
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    Just found out I have it
    Just found out I have it too! Going to the Dr. today and will find out more. I had a CT and it showed a small spot on right rib and on T6....How are you doing? Did you have any surgury?
    I was on Arimidex after my chemo last time. What is Zometa>
  • m_azingrace
    m_azingrace Member Posts: 399
    #12
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    crissy1234 said:

    Just found out I have it
    Just found out I have it too! Going to the Dr. today and will find out more. I had a CT and it showed a small spot on right rib and on T6....How are you doing? Did you have any surgury?
    I was on Arimidex after my chemo last time. What is Zometa>

    Hi Crissy1234
    I'm so sorry to welcome you to Club Mets, but our sisters here will provide a wealth of information and encouragement.

    I had lumpectomy and lymph nodes removed after biopsy. After more tests revealed mets to bone, the oncologist ordered both a ct scan and a bone scan, and an MRI's to see if my organs were affected too. There is a lesion on my spine, on my skull, and my upper left arm. MRI to the skull shows it had not reached the brain. I'm doing well. No pain except for slight stiffness, and hot flashes from the Letrozole (aka Femara). Zometa is a bone strengthener. I get it because the Letrozole weakens bone.

    Hugs to you. Gracie
  • New Flower
    New Flower Member Posts: 4,294
    #13
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    m_azingrace said:

    Hubbydearest retired in 2005, following knee replacement with complications. I was self-employed, but fortunately our health coverage comes through his retirement, so in 2008 I decided it was time to relax and spend more time with the grandkids. Except for the cancer, things are great! I try to do light exercise daily (sometimes I get lazy), and I think that helps with the stiffness. Hugs to you all. Gracie

    I bump this post for our new member
    who needs encouragement and hope.
    You ladies are inspiration for all of us.
    New Flower

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