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goblet carcinoid or signet ring cell of the appendix or colon???

hpsquad's picture
hpsquad
Posts: 7
Joined: Nov 2009

The confusion is overwhelming. I was originally diagnosed with Stage IV Poorly differentiated signet ring cell adenocarcinoma. surgery removed my a tumor, appendix, part of my colon,small intestine the omentum (which had tumors in it) and several lymph nodes of which one had a tumor. A month later they changed the diagnosis to goblet carcinoid of the appendix. They said that it is rare but I can't find much more info. They said that appendix and colon cancers are treated the same. They are treating it with Folfox and Avastin which I will start Friday. With the original diagnosis, I was told that with chemo, they can give me some time but that it would come back stronger and would be fatal. Needless to say, I changed doctors. I have read alot of the message boards but don't know what to compare this situation to. Does anyone have any info or help?

acekayaker
Posts: 9
Joined: Feb 2010

Dear Hpsquad,
My husband was diagnosed in February of 2009 with signet ring cell adenocarcinoma of the appendix. He was not able to have
surgery due to the amount of tumors spread through his abdomen. He was on many cycles of chemotherapy to keep the growth
of tumors at bay. I would highly suggest using chemotherapy as a means to keep the tumor growth down. Yes, they do treat
appendix cancer like colon cancer. My husband was also on Folfox and avastin. He was also later on irenotrican and xeloda and also avastin. He was also on blood thinners due to the risk of blood clots. He did fairly well through about ten months and then became more sick from the chemotherapy and just passed away on March 24, 2010. These are not nice cancers. I do not know the difference in what you were diagnosed and what you now have a new diagnosis of the goblet carcinoid. I am glad that you could have the tumors removed and hopefully the cells can be killed by the chemotherapy. Did they give you the chemotherapy treatment in your abdomen area directly in the area of the tumors they removed? can write me at acekayaker@myfairpoint.net

ForBenandSophia
Posts: 10
Joined: Nov 2010

HI HPSquad,

My husband had the same but it originated from a tumor in the cecum that spread to the peritoneal. We did 8 rounds of Folfox and are heading to Dr. Alexander at Univ of Md. Caner Center fr HIPEC. This is is truly his only shot for a cure. He has responded amzingly to the Folfox with minimal side effects. We pray the surgery is a success, but know there are no guarantees. I will say that Dr. Alexander and Onclogist her in Florida have been amazing and work well together. Would love to hear an update on your treatment.

Erin

iamsopositive
Posts: 4
Joined: Sep 2012

Hello Forbenandsophia
I was wondering how your husband was doing. I know you posted this in 2010 and I hope he is recovering from this. Please could you let me know, as my husband was also diagnosed with this less than one month ago and is currently undergoing his 2nd round of chemo (FOLFOX). I dont know how he is responding to it as it is too early to tell. He is sched for surgery/ HIPEc in November after his chemo. Would love to hear an update from you soon. HOPING FOR THE BEST !

abrub's picture
abrub
Posts: 1528
Joined: Mar 2010

Please, please speak to someone who has treated appendix cancer. Much of the treatment is the same as for colon cancer, but some is different. I am an appendix cancer survivor,and had tumors on my ovary, omentum, and throughout the peritoneal cavity. I had several consultations before selecting my dr at Memorial Sloan Kettering - he has lots of experience with Appendix Cancer. I had a belly port placed, and intraperitoneal chemo prior to systemic chemo (Folfox/Avastin).

From another post I made on another website to someone else newly diagnosed:

Ask your doctor:

How many cases of this cancer have you personally treated? Was the cancer confined to the appendix or was there mucin or ascites? What is the tumor type?
Who can you refer us to who is an expert in this cancer?

Make sure that the dr does not treat this "simply" as a variation of colon cancer. Although that chemo is commonly used, there are more considerations.

There are several websites with information on Appendix cancer. Go to them and ask lots of questions.

Shanin
Posts: 3
Joined: Jul 2011

Hi abrub-My father-in-law resently (July 15th 2011) was diagnosed w/ Signet Cell after his appendectomy. We are in a state of shock & very scared. He has an appointment w/ an oncologist tomorrow, July 19th '11. We are desperately trying to gather information + appropriate questions to ask during this visit. Any & all information is highly appriciated. My email is mrsshaninhall@aol.com .
Thank you in advance for your time-Shannon (a very concerned daughter-in-law)

Shanin
Posts: 3
Joined: Jul 2011

Hi abrub-My father-in-law resently (July 15th 2011) was diagnosed w/ Signet Cell after his appendectomy. We are in a state of shock & very scared. He has an appointment w/ an oncologist tomorrow, July 19th '11. We are desperately trying to gather information + appropriate questions to ask during this visit. Any & all information is highly appriciated. My email is mrsshaninhall@aol.com .
Thank you in advance for your time-Shannon (a very concerned daughter-in-law)

barbchris
Posts: 1
Joined: Oct 2010

Hello Hpsquad,

hopefully you came across this link:
http://www.appendix-cancer.com/
It is a complicated technique, but it can help a lot.
From what I know so far, one of the best places for its application is the center in Washington DC (Dr. Sugarbaker):
http://www.surgicaloncology.com/
Give a try and always keep a goal for yourself and never give up!

sitchy57's picture
sitchy57
Posts: 27
Joined: Sep 2010

I was diagnoised with appendix cancer in Sept 2010. It was discovered during a hystorectomy to remove my uterus, ovary , omentum and they told me they would take out my appendix while they were at it. Since it had a stone in it anyhow. The appendix was tested and it came back with cancer. The tumor was small but they were worried that some of the cancer could have escaped or be on my colon. I had a colonoscopy and a pet scan and everything came out clear. They took my appendix case to a tumor board to recommend treatment, because I was being treated by a gyn-onc for the uterine and ovarian cancers. My appendix cancer was 2 separate rare appendix cancers. If you have to be rare you might as well be double rare. The tumor board called for the pet scan and then decided to just watch close for the appendix cancer. The recommendation was to start the chemo for the ovarian cancer and mid way start the internal radiation for the uterine cancer. That is call Brachy Therapy. I am currently in chemo treatment every three weeks and the radiation will start the first part of Jan.

sitchy57's picture
sitchy57
Posts: 27
Joined: Sep 2010

My appendix cancer was also goblet cell (carcinoid) it was a grade 3 and still contained in my appendix. Praise the Lord Sharon

geomar
Posts: 2
Joined: Dec 2011

My husband has the same diagnosis and they did surgery on him, too. There is a really good "closed" support group on Facebook. It's called: PMP Appendix Cancer Support Group. There you can ask any question you would like and the wealth of information and patient experience is incredible.

I would like to know, though, who your doctor is now and how your treatment has been so far.

Thanks and best regards!

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