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My dad's cancer has spread to his liver/chemo or not?

Tina Blondek's picture
Tina Blondek
Posts: 1560
Joined: Nov 2009

Hey all here, Yes, my dad's cancer unfortunately has spread to his liver. In the next few weeks we have to decide as a family whether or not to start the chemo treatments. It will be two treatments of irinotecan and cisplatin given through the vain. Has anyone here had this kind of treatment? If so, what side effects did you have, and what was the result? Any and all of your help will be appreciated. I have also posted this on the liver cancer discussion board. Thanks.
Tina

ndmp's picture
ndmp
Posts: 38
Joined: Jan 2009

Tina,

Hi, I am so sorry to hear that the beast has spread. My father had mets in the liver as well. I am always reluctant to respond because my story does not have a happy ending. I know how you feel right now. I hate this beast. It makes me so mad. My Dad had Cisplatin and Irinotecan. There is a wonderful web site called Chemo Cares it gives a list of side effects. I used it a lot while Dad was going through treatment. I can't remember the exact side effects from this combination of drugs. I hate to say this but chemo was very difficult on my Dad. He did many different types of chemo and all were difficult. Dad was very advanced in the disease, I pray that your Dad will respond to the treatment and he will have a better experience. My thoughts and prayers are with you.
Nicole

lindadanis
Posts: 267
Joined: Nov 2009

I was reading your story and abouth these two chemo's, my name is Linda and I have posted on this question. How long did your dad do the cisplatin and iriotecan and did he have radiation as well? I am gathering from your post, that your dad lost his battle to this horrible cancer. My husband is in his fourth chemo session, lots of mets to his stomach, liver, etc. Do you mind me asking if your father was stage four when diagosed and did he finish all his chemo's and also, did he finish radiation/andor surgery if he did any of that. I was very much on the line with chemo but felt my husband had no other choices for him, they said no surgery and no radiation at this point. He has lost about 60 pounds, cannot eat too much, does get some things down, however the chemo is very touch on him. do you mind me asking from when he was diagnosed to the end, how long was it? I hate asking these questions but sometimes I just need to know what to expect although I know everyone is different, this cancer is certainly a beast.

Tina Blondek's picture
Tina Blondek
Posts: 1560
Joined: Nov 2009

Thanks Nicole. I have your email. Thanks for the web site as well. I will be in touch.
Tina

lindadanis
Posts: 267
Joined: Nov 2009

My husband has stage four that also has spread of liver, stomach, etc. He is currently on his four dose of those two chemo's you mentioned. How many sessions did his doctor tell him he needed, ours told us six sessions, which total 12 individual chemo sessions. Where do you live? How old is he? My husband did ok with these chemo's, very tired, some diahera but other than that, no too bad. Please let me know more of your story ok.

Tina Blondek's picture
Tina Blondek
Posts: 1560
Joined: Nov 2009

Dear Linda,
Thanks for your response. No....my dad has not lost his battle with this cancer yet!! If i have anything to do with it....he wont!! He beat the cancer in his esophagus, and it has now spread to his liver. He will start these two chemos in the next few weeks. Your husbands experience is positive as far as how he did with these chemos. Good luck to you and him. Keep us in your prayers as well.Dad had stage IV ec, and they did not stage this liver cancer. He will be 71 on Feb 26th. He had chemo and radiation for 6 wks for the ec, and did very well.
We live in Virginia, and go to UVA in Charlottesville.Linda.....sorry.....I just realized you were writing to Nicole and not me!!!! Pardon me. My brain is not functioning properly today!
Tina

mumphy's picture
mumphy
Posts: 486
Joined: Jun 2009

Al has been on both the those chemo meds. He did better with those two then the original cocktail that they had him on.

I do know that after a few additional treatment with this cocktail after the heavy duty original one was when they noticed the the tumor had shrunk.

I will be sure to let everyone know the game plan for Al tomarrow when I get home. Who knows
he might be back on the same thing.

Prayers on the way.
God Bless
Kath

Tina Blondek's picture
Tina Blondek
Posts: 1560
Joined: Nov 2009

Thanks Kath. That is some good news that Al did well with these chemo treatments. Lets keep our chins up and prayer for the best! hugs to you both.
Tina

lindadanis
Posts: 267
Joined: Nov 2009

that's ok that you answered my remark. I am so happy that your dad beat the cancer in his esophogeal area., did these two chemos get rid of that tumor? That so wonderful., is he starting these two chemos again for his liver and also, how long was he on these two chemos before for his esophagus?

Tina Blondek's picture
Tina Blondek
Posts: 1560
Joined: Nov 2009

Hi Linda,
We are happy too that he beat the ec. For the ec he recieved xeloda oral chemo and had radiation for 6 weeks. Tumor shrunk considerabely. Now that it has spread to his liver, he will be getting two different kinds of chemo. Two treatments 3 weeks apart. Very strong chemos this time. More so than the xeloda. Worried about that. But....since treatment is available....we have to keep fighting!! Thanks again and hang in there. There are small lights at the end of the tunnel. They go away...but do come back. Enjoy every minute of every day. Keep in touch.
Tina

JaneE2366's picture
JaneE2366
Posts: 332
Joined: Jul 2009

Hi Sherri,
Charlie was given the Emend before each of his rounds of chemo. He had his chemo in the hospital but the hospital doesn't "stock" the Emend....too expensive. So I was given a script for it and had to bring it to the hospital. I was only given a script for 3 pills each time....even with insurance it cost us $90......$30 a pill! I gave him the pill 1x a day for the first 3 days of his chemo. Seemed to help him a lot....we were told the protocol he was on would cause him extreme nausea.....
Sorry to hear Jim has too go through this again....but his (& your attitude) is wonderful. Stay strong....keeping you both in my prayers.
Jane

Tina Blondek's picture
Tina Blondek
Posts: 1560
Joined: Nov 2009

Hey Sherri,
Thanks for your response. This is the same chemo my dad will be taking. Glad to hear that Jim has done well with it. There has not been a mention of this type of anti nausea med as of yet. It does still have a lot of the anti nausea meds left over from his chemo for the ec. We will cross that bridge when we come to it. I try to think one hour at a time, or I get too far ahead of myself and go crazy. Proud of myself today, I finally went to get my hair cut!! Almost fell asleep in the chair. I told my beautician...I am not ignoring you, but it just feels so good to close my eyes. Thanks again, and you and Jim are in my prayers.
Tina

emg09
Posts: 252
Joined: Mar 2009

Yet again another common thing with our dad's. My dad will be 71 on 2/23. I'm so amazed at the stuff those 2 men have in common. I wish they could meet. Maybe they could help each other fight this battle!!!

Tina Blondek's picture
Tina Blondek
Posts: 1560
Joined: Nov 2009

Hey Erika!
That is just too funny. I take this as a sign that our two Pisces men are born to be fighters!
If you want, I was thinking maybe we could exchange phone numbers so our dads could speak. Where do you live? That would be cool. They have so much in common, I think it would help them to talk. Let me know. How has he been doing? What is his update? Talk to you soon. Thanks for the smile today.
Tina

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