Jan 03, 2010 - 3:14 pm
Hi, my name is Robin and I'm new here. I had my mastectomy a few months ago and have been looking for someplace to get info and advise. I had DCIS left breast with mastectomy being my only choice. No chemo or rads and I'm ER-, PR- so no hormone therapy. I never found a support group that fit for me and maybe that was my fault but when I sit and listen to what other women have gone through with the chemo, hair falling out, nausea, etc. I just don't feel like I fit in. I'm not even sure I have the right to call myself a breast cancer survivor since I didn't have to go through any of it. When I have looked into programs that I've heard about I usually am told they are for women going through chemo or rads so I'm still looking. I saw an oncologist that said DCIS isn't really cancer! Than can someone please explain to me why I had to loose my breast? Is there anything for those of us with DCIS?
Well at least I have been able to vent here and hopefully no one will think I'm a whiner (even though I am) I do feel a little better. Thanks for letting me vent.