Dec 26, 2009 - 7:01 pm
Hello-My name is Tonia and I have a 16year old son who has a rare disease of the esophagus called Achalasia.I know this board is for cancer but I have no where else to turn right now regarding the surgery , Minimally invasive esophectomy..
He has underwent 2 operations in the past 4 years and is having horrible esophageal spasms daily and has been hospitalized 2 X the past month,on homebound from school and taking heavy narcotics daily,and severely depressed.His surgeon @ the Cleveland Clinic Ohio does not want to do the surgery on him cause he is too young so we searched further to the University of Pittsburg to Dr Luketich.DR Luketich has done over 1400 of these and has the expertise we are in need of.
DR Luketich said my son must get his quality of life back and is willing to do the Minimally Invasive ectomy on my son. I am looking for anyone who had had this done who would be willing to give me advice and info on this procedure.I know its a long hard recovery but we have no other choice at this time.Please any help or advice would be great!!!!